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Doctor Follows Up Weeks Later?


dbuhl79

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dbuhl79 Contributor

I'm sure many of you have followed my previous posts but I'll recap briefly. After a lot of digestive episodes, I was referred to a GI specialist (who specializes in Celiac Disease, IBS, Crohns). I was tested for Celiac Disease. After calling to receive my results, I was informed that they all came out negative. No exact numbers were given, nothing. And the assistant/nurse informed me that there was no follow up since they hadn't turned up positive.

I was disappointed to say the least that my GI doc had not bothered to have me come back, and review other avenues of diagnosis. Even if it was to generalize me and label me IBS I would of respected, but I didn't even get a follow up appt.

Now the doctors Phys. Asst has called and left a msg on my machine, asking how I am doing. If the Levsin they prescribed is working (which made me feel worse and I stopped taking it). Indicating they may want to see me again if I had issues still. This has been weeks since my appointment. Almost a month.

After getting these test results I've gone gluten-free and know that I feel normal when I am off gluten. When I occassionaly slip up and cheat (yep I'm just weak!!) I will feel the effects of it sometimes in 30 minutes or the next day or so.

I realize this is a personal choice, but I'm curious to get others opinion. Is itworth calling the doctors office back? Should I bother pursuing a follow up appointment? (And no I dont recommend self diagnosis) I'm just not sure its worth my time.

Thanks for any thoughts! :)


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Tasha2004 Contributor

I went through this yesterday with the rheumatologist. Test results normal, therefore nothing else to do and no reason for me to come back.

I say, get your test results out of them, and then tell them what you are doing and how you are feeling better.

I intend to do this with this guy, if I can get some kind of different help somewhere else.

There is probably no point setting your foot back in their door, because they essentially dismissed you anyway.

plantime Contributor

Why go back to them? They obviously don't think they can help you, or they would have tried. The gastro that did my endo gave me a positive diagnosis in Sept, and I have yet to hear from him about it. No follow-ups, nothing. Just "you have celiac, don't eat wheat, barley, rye, or oats." It wasn't even him that I heard it from, it was from the surgeon that removed my gall bladder! So, why give your moeny to a doc that doesn't want it?

tarnalberry Community Regular

If the doctor is otherwise good, then I wouldn't necessarily decide to leave just yet, though it's always an option. I would go back (or call) and let him know the progress, since they asked. They may well not have called sooner because getting data that covered less than a month on the med you took may not mean anything to them. Doctors don't always call to follow up on every single thing, so I'd be willing to cut him some slack, but also proceed with caution. It's a tough call between a doctor being proactive and a patient being proactive. In the end, though, if you need more follow through, and less reliance on the patient to call back if he/she wants to pursue things further, then it sounds like this isn't the style of doctor for you.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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