Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Follows Up Weeks Later?


dbuhl79

Recommended Posts

dbuhl79 Contributor

I'm sure many of you have followed my previous posts but I'll recap briefly. After a lot of digestive episodes, I was referred to a GI specialist (who specializes in Celiac Disease, IBS, Crohns). I was tested for Celiac Disease. After calling to receive my results, I was informed that they all came out negative. No exact numbers were given, nothing. And the assistant/nurse informed me that there was no follow up since they hadn't turned up positive.

I was disappointed to say the least that my GI doc had not bothered to have me come back, and review other avenues of diagnosis. Even if it was to generalize me and label me IBS I would of respected, but I didn't even get a follow up appt.

Now the doctors Phys. Asst has called and left a msg on my machine, asking how I am doing. If the Levsin they prescribed is working (which made me feel worse and I stopped taking it). Indicating they may want to see me again if I had issues still. This has been weeks since my appointment. Almost a month.

After getting these test results I've gone gluten-free and know that I feel normal when I am off gluten. When I occassionaly slip up and cheat (yep I'm just weak!!) I will feel the effects of it sometimes in 30 minutes or the next day or so.

I realize this is a personal choice, but I'm curious to get others opinion. Is itworth calling the doctors office back? Should I bother pursuing a follow up appointment? (And no I dont recommend self diagnosis) I'm just not sure its worth my time.

Thanks for any thoughts! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tasha2004 Contributor

I went through this yesterday with the rheumatologist. Test results normal, therefore nothing else to do and no reason for me to come back.

I say, get your test results out of them, and then tell them what you are doing and how you are feeling better.

I intend to do this with this guy, if I can get some kind of different help somewhere else.

There is probably no point setting your foot back in their door, because they essentially dismissed you anyway.

plantime Contributor

Why go back to them? They obviously don't think they can help you, or they would have tried. The gastro that did my endo gave me a positive diagnosis in Sept, and I have yet to hear from him about it. No follow-ups, nothing. Just "you have celiac, don't eat wheat, barley, rye, or oats." It wasn't even him that I heard it from, it was from the surgeon that removed my gall bladder! So, why give your moeny to a doc that doesn't want it?

tarnalberry Community Regular

If the doctor is otherwise good, then I wouldn't necessarily decide to leave just yet, though it's always an option. I would go back (or call) and let him know the progress, since they asked. They may well not have called sooner because getting data that covered less than a month on the med you took may not mean anything to them. Doctors don't always call to follow up on every single thing, so I'd be willing to cut him some slack, but also proceed with caution. It's a tough call between a doctor being proactive and a patient being proactive. In the end, though, if you need more follow through, and less reliance on the patient to call back if he/she wants to pursue things further, then it sounds like this isn't the style of doctor for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.