Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Follows Up Weeks Later?


dbuhl79

Recommended Posts

dbuhl79 Contributor

I'm sure many of you have followed my previous posts but I'll recap briefly. After a lot of digestive episodes, I was referred to a GI specialist (who specializes in Celiac Disease, IBS, Crohns). I was tested for Celiac Disease. After calling to receive my results, I was informed that they all came out negative. No exact numbers were given, nothing. And the assistant/nurse informed me that there was no follow up since they hadn't turned up positive.

I was disappointed to say the least that my GI doc had not bothered to have me come back, and review other avenues of diagnosis. Even if it was to generalize me and label me IBS I would of respected, but I didn't even get a follow up appt.

Now the doctors Phys. Asst has called and left a msg on my machine, asking how I am doing. If the Levsin they prescribed is working (which made me feel worse and I stopped taking it). Indicating they may want to see me again if I had issues still. This has been weeks since my appointment. Almost a month.

After getting these test results I've gone gluten-free and know that I feel normal when I am off gluten. When I occassionaly slip up and cheat (yep I'm just weak!!) I will feel the effects of it sometimes in 30 minutes or the next day or so.

I realize this is a personal choice, but I'm curious to get others opinion. Is itworth calling the doctors office back? Should I bother pursuing a follow up appointment? (And no I dont recommend self diagnosis) I'm just not sure its worth my time.

Thanks for any thoughts! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tasha2004 Contributor

I went through this yesterday with the rheumatologist. Test results normal, therefore nothing else to do and no reason for me to come back.

I say, get your test results out of them, and then tell them what you are doing and how you are feeling better.

I intend to do this with this guy, if I can get some kind of different help somewhere else.

There is probably no point setting your foot back in their door, because they essentially dismissed you anyway.

plantime Contributor

Why go back to them? They obviously don't think they can help you, or they would have tried. The gastro that did my endo gave me a positive diagnosis in Sept, and I have yet to hear from him about it. No follow-ups, nothing. Just "you have celiac, don't eat wheat, barley, rye, or oats." It wasn't even him that I heard it from, it was from the surgeon that removed my gall bladder! So, why give your moeny to a doc that doesn't want it?

tarnalberry Community Regular

If the doctor is otherwise good, then I wouldn't necessarily decide to leave just yet, though it's always an option. I would go back (or call) and let him know the progress, since they asked. They may well not have called sooner because getting data that covered less than a month on the med you took may not mean anything to them. Doctors don't always call to follow up on every single thing, so I'd be willing to cut him some slack, but also proceed with caution. It's a tough call between a doctor being proactive and a patient being proactive. In the end, though, if you need more follow through, and less reliance on the patient to call back if he/she wants to pursue things further, then it sounds like this isn't the style of doctor for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,062
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.