Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Found Me A New Celiac Friend!

blueeyedmanda

By blueeyedmanda
in Coping with Celiac Disease

Recommended Posts

blueeyedmanda Community Regular
blueeyedmanda
Posted

So at the hospital today they were celebrating some kind of tradition with this pudding. I turned down the pudding and told the woman I had allergies, she asked me to what and I said I have celiac disease and this has wheat in it. She told me she had celiac too and was rather new to it. She was diagnosed about a year or so ago but had recently moved to our area. We chatted for awhile and I dropped her an email and let her know the area dining spots, grocery stores, and some other tips. I also told her about this board, maybe we will have a new member too. The good news is she works at the same place I work so it will be nice to catch lunch together and share things. Exciting!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

How nice for you! I wished I had somebody like that around here. I hope you have other things in common besides celiac disease, as just having celiac disease isn't enough for a friendship (but it is a start).

lizard00 Enthusiast
lizard00
Posted

I have to admit, I am rather jealous too. :rolleyes:

I just need another person to eat with who understands... my family is so great and supportive, but it would be great to have a friend to catch lunch with who does't say "wow! are you still doing that diet?"

JNBunnie1 Community Regular
JNBunnie1
Posted
I have to admit, I am rather jealous too. :rolleyes:

I just need another person to eat with who understands... my family is so great and supportive, but it would be great to have a friend to catch lunch with who does't say "wow! are you still doing that diet?"

HAHAHAHA!!!! Yeah, still doing 'that diet'. I met someone who happened to bring gluten-free brownies to a party I brought gluten-free banana muffins to, and we so totally didnt hit it off. I find a lot of women in their late thirties-mid forties are a bit cold to someone my age, I'm not sure why. I get along great with elderly people....... So I guess Celiac really isn't enough to 'bring people together.......'.

Jestgar Rising Star
Jestgar
Posted

When I discovered this whole gluten thing a friend of mine started asking about it and after some discussion she realized it was probably the cause of her migraines. Now we're both strictly gluten free, soy free and dairy lite (she's more ultra-light).

It's really really nice to have someone to exchange food stories with.

confusedks Enthusiast
confusedks
Posted

That's so great Amanda! I went to Celiac camp last summer and one of the campers and I flew home together, and it was SO fun to be at a restaurant together and ask them all kinds of questions...and she didn't think I was wierd! :lol: LOL!

It is really great!

gdobson Explorer
gdobson
Posted

I am jealous as well! What I wouldn't do for a local celiac friend!!!!!! Oh, who am I kidding - what I wouldn't do for a good regular friend. :P Real friends are hard to come by.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

I actually do have a few local celiac friends, two are from the board, Guhlia and Sunnydyrain. One is a woman I met at my dentists office, she works there. We joined the support group together but we did not rejoin this year. She actually made the bouquets for my wedding in November, she is very crafty.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

We should all get together sometime for lunch! I have a celiac friend where I work too. Do you get an hour lunch?

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
We should all get together sometime for lunch! I have a celiac friend where I work too. Do you get an hour lunch?

yep I do, we should do The Chocolate Ave Grill, that place is great. Just let me know when.

Judyin Philly Enthusiast
Judyin Philly
Posted

Amanda that's so cool happy for you

did i read somewhere on here John was sick again???????????????//

DingoGirl Enthusiast
DingoGirl
Posted

I'm soooooooo jealous!!!!!!!!! but happy for you - - this is great news!!!!!!!

:)

HAK1031 Enthusiast
HAK1031
Posted

One of my best friends since sixth grade has celiac, and when I was diagnosed this year, she was SO helpful. She told me what to buy, where to eat, everything. My Spanish teacher was giving out cheez its a little while ago in class ( I have no idea why :rolleyes: ) and we just looked at eachother and laughed- the little things make SUCH a big difference. I also have two other friends who are gluten intolerant, but they're not strict about it. Either way, it's still helpful!

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
Amanda that's so cool happy for you

did i read somewhere on here John was sick again???????????????//

actually we are both sick now.

Judyin Philly Enthusiast
Judyin Philly
Posted
actually we are both sick now.

SORRY YOUR BOTH SICK :ph34r: BUT HOPE YOU STAYED HOME IN CASE YOU HAD THE ICE STORM WE DID TODAY AND DIDN'T HAVE TO DRIVE IN IT.

LET ME KNOW OK

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
SORRY YOUR BOTH SICK :ph34r: BUT HOPE YOU STAYED HOME IN CASE YOU HAD THE ICE STORM WE DID TODAY AND DIDN'T HAVE TO DRIVE IN IT.

LET ME KNOW OK

Judy, yep we were both home today, I am finally feeling better tonight but John is still sick but he said he is going to work tomorrow....

We had snow all day but now it is supposed to change over to ice....how about at your place.

home-based-mom Contributor
home-based-mom
Posted

I have friends who have close family members who are dealing with severe intolerances (life threatening in some cases) and even though I do not react anywhere near that strongly to gluten, they totally understand why I avoid gluten like a vampire avoids the sun! :lol:

It is nice to share grumbles, have someone understand where you are coming from and not think you are weird. :)

There is also another gluten-intolerant person at my church. We watch out for each other at some of the gatherings, which at my church tend to involve food!

It will be nice to have someone to share a "safe" lunch with!

Judyin Philly Enthusiast
Judyin Philly
Posted
Judy, yep we were both home today, I am finally feeling better tonight but John is still sick but he said he is going to work tomorrow....

We had snow all day but now it is supposed to change over to ice....how about at your place.

you must be behind us.

Amanda.........it is a skating rink here.........and now the sleet is coming again.

amazing.

glad i got my son's valentine box off early today hope he gets it by thrus.

please take care of yourselves........if it's ice........stay home...........please.

glad your feeling a little better.

this virus must be awful

my chiro got it fri and canceled my apt ..........first time in 12 years she's taken off....

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author
you must be behind us.

Amanda.........it is a skating rink here.........and now the sleet is coming again.

amazing.

glad i got my son's valentine box off early today hope he gets it by thrus.

please take care of yourselves........if it's ice........stay home...........please.

glad your feeling a little better.

this virus must be awful

my chiro got it fri and canceled my apt ..........first time in 12 years she's taken off....

It was so bad. I have not been sick like that in a long time. I was so sick at work yesterday my coworkers offered to take me home.

I will probably go to work late tomorrow in anything.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. CatS
      - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

      Thank you! It’s very easy to make seedy crackers. They are much more nutritious than commercial gluten free bread,
    2. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve. thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poo...
    3. Wheatwacked
      - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      My son was diagnosed when he was weaned in 1976 after several endoscopies. Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree. Whether an endoscopy is positive or negative is irrelevant. That may happen even with endoscopy. Pick your doctors with that in mind. In the end...
    4. RMJ
      - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1. Genetic testing. Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With...
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      here are the lab ranges. Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,803
    • Most Online (within 30 mins)
      7,748
    MaryAlice
    Newest Member
    MaryAlice
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.