Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Woman Lives On Toilet - Ap News

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

Lisa Mentor
Lisa
Posted

Open Original Shared Link

Perhaps she has undiagnosed Celiac. This is just bizzare. :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ksymonds84 Enthusiast
ksymonds84
Posted
Open Original Shared Link

Perhaps she has undiagnosed Celiac. This is just bizzare. :blink:

That's nuts! Also, no personal hygene during that 2 years!

lizard00 Enthusiast
lizard00
Posted

That has to be one of the strangest things I've ever read or heard of... WOW! :huh:

jerseyangel Proficient
jerseyangel
Posted

I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

blueeyedmanda Community Regular
blueeyedmanda
Posted

we heard this on the radio on the way to work this morning and we were thinking the same thing....why wait 2 years to call anyone for help.

~alex~ Explorer
~alex~
Posted

Wow, this is bizarre :o! Hard to even comprehend. I certainly hope she is able to get the mental help she requires and maybe a gluten-free diet as well. It's hard to understand why the boyfriend wouldn't have reached out for help earlier but I guess I don't know what his circumstances are either. Maybe he could benefit from contact with a mental health professional as well; sounds like he was somewhat out of touch with reality. Very sad story all around.

Mom23boys Contributor
Mom23boys
Posted
I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

Hubby and I were talking about this this morning. We were trying to figure out exactly HOW you would tell someone that your friend would not get off the toilet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


debmidge Rising Star
debmidge
Posted

The only thing I can think of is that when he said to others "She's always in the bathroom." They felt he was just saying what every guy says and he was exaggerating.

ravenwoodglass Mentor
ravenwoodglass
Posted

That story is so sad. I do hope they both get the help they need and that they don't do something cruel like charge him with something....well unless she was chained to the sink.

confused Community Regular
confused
Posted

The paper here today said they were thinking about charging him, it is so sad. Im guessing they had two bathrooms and he used the other one since she was stuck on the toilet.

Hubby and I were talking about this today and he said he would of called for help after an week if i refused to leave the bathroom.

paula

imsohungry Collaborator
imsohungry
Posted

Huh...

I suppose it's really not that different than any other form of Agoraphobia other than her location.

She chose the bathroom, others choose the living room, bedroom, kitchen, or simply the entire house.

Think for example of the 5:00 news. We occasionally see stories of a person who lived for years never leaving his/her home. The home is often filled with feces, bags of trash, etc. and often, no one is aware of the problem until the person dies in the home. Sad, but true. These examples, of course, are extremes. The manifistations of this disorder exist on a continuum.

Hopefully she and her boyfriend will both get the help they need. -Julie

flourgirl Apprentice
flourgirl
Posted

It's my understanding that both of them struggled with mental health/capacity issues. What I find so very sad is that apparently there isn't anyone there for them to care, help or even notice what a bizarre situation they were living with! They can't charge the boyfriend with negligence if he has not the capacity to understand right from wrong, or strange from normal, at least I hope not. We are praying that they get the help they need from somewhere. I would imagine the she will be wheelchair bound; there can't be any muscle tone. I wonder, too about the nerve and circulation damage! Poor people!!

gfp Enthusiast
gfp
Posted
I can understand the depression and the fear--what I can't understand is how the boyfriend let it go so long before he called for help.

Well I guess when she say's 'maybe tomorrow' he's more worried about possibly traumatising her and forcing the issue.

I know its a long time but she was presumably pretty depressed and it can be very hard to choose the moment to 'betray' that person's trust.

Retrospectively with 20/20 hindsight he probably knows he should have done it earlier but when exactly is a difficult question ?

1 Week ? 1 month ?

Having lived with someone manically depressed I know its very hard to make that betrayal ... (as they see it) .. at some point you have to decide for them they are not fit to make the descision about calling in help but in the end it has two outcomes .. they may be committed for their own safety (and involuntary pscychiatric treatment is hardly the most effective and can push them over the edge) or they might come round.

I had to walk away from my ex ... I took the step of informing her parents (which she will never forgive me for) but as someone told me here (no names) she has to make that descision to get help by herself or die.

This guy will get a lot of flack for being put into an impossible situation ... which I'm sure he now realises he could have handled better but after 1 month he had no idea it would go on for 2 years...

imsohungry Collaborator
imsohungry
Posted

Very well stated flourgirl!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.