Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling All Casein Free


Green12

Recommended Posts

Green12 Enthusiast

I was just curious how strict everyone is when it comes to products that state "may contain traces of dairy"??

I am making a cake for someone who is both gluten-free and casein free and I usually use Pamela's Chocolate Cake Mix, but it does have this statement on the package so I am a little hesitant to use it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

If it is for myself I wouldn't worry about it, but I feel it isn't fair to make the decision to disregard that warning on behalf of others. It might be best if you get a different brand of cake mix.

MaryJones2 Enthusiast

I personally wouldn't use something with that label. Traces of casein affect me just as much as traces of gluten so I am just as careful with dairy contamination.

MySuicidalTurtle Enthusiast

I never eat things that may contain traces of casein. I think your friend would appreciate you using another brand until you talk about how they feel. That way the trust they have in you isn't broken.

Redsd Newbie
I never eat things that may contain traces of casein. I think your friend would appreciate you using another brand until you talk about how they feel. That way the trust they have in you isn't broken.

Think about it this way, how might a "trace" of LSD affect someone? My doctor says minute doses are still doses.

confusedks Enthusiast

I have never bothered to worry about the traces of dairy or soy. I feel that dairy isn't like gluten--it doesn't contaminate a whole factory like something like flour would.

That is just me though. It is ultimately up to the person's level of comfort. (I also never had severe reactions to dairy, not at all like gluten.)

jerseyangel Proficient

Hi Julie,

I avoid "may contain traces of dairy", but will use "made in same facility". But that's just me--everyone reacts differently and avoids things for different reasons.

In this case, I would call my friend and ask--if it were the other way around, I would appreciate being asked :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I would not because even a trace can make me sick.

MaryJones2 Enthusiast
I have never bothered to worry about the traces of dairy or soy. I feel that dairy isn't like gluten--it doesn't contaminate a whole factory like something like flour would.

That is just me though. It is ultimately up to the person's level of comfort. (I also never had severe reactions to dairy, not at all like gluten.)

Dairy and soy contamination are just as bad and painful as a gluten reaction for me so it is really a personal choice. Dairy and soy can contaminate equipment much in the same way as gluten and can affect those who are highly sensative. There are several gluten-free products that I can not tolerate because they are made on the same lines as dairy or soy products. I am truly envious of those who aren't affected by CC. It would make my life much easier.

Joni63 Collaborator

Hi Julie,

I think I would either call the person and ask them, or just use a brand that is definately casein free depending on the situation.

I think being as careful as you possibly can is your best bet.

Green12 Enthusiast

Thanks everyone for your feedback :)

I wasn't sure what to do before I posted my question and then it became so clear after you all shared your perspectives and now it seems so obvious. I love when that happens :lol:

Even though it's suppose to be a suprise it's too much of a risk to gamble with someone else's health. I will be using another mix that I know if cf.

MaryJones2 Enthusiast

Namaste and Cause You're Special (made with cf margarine) are good CF brands.

Green12 Enthusiast
Namaste and Cause You're Special (made with cf margarine) are good CF brands.

Namaste is what I had in mind to use, thanks :)

tarnalberry Community Regular

definitely the sort of thing to ask on. I care to different degrees on casein than gluten, for instance, and would be more annoyed at someone making a insufficiently conservative decision for me. (when in doubt, though, and you can't ask, go with the lowest common denominator - or the most conservative option.)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,243
    • Most Online (within 30 mins)
      7,748

    Maya Baum
    Newest Member
    Maya Baum
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.