Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Help About Terrible Nausea


jmengert

Recommended Posts

jmengert Enthusiast

Hi, all, this is my first post. First, I just want to say thank you--reading through all of your posts makes me feel not so alone...so thank you SO much.

Here's my story: I was diagnosed with IBS at 20, after several years of "weird" stomach issues (occasional nausea and diarrhea). I was put on Levbid and felt 100% better. 5 years later, I started feeling just awful this past September--constant diarrhea and nausea, which led to weight loss (I'm 5'5 and I now weigh 100 pounds because the nausea is so bad--not good). In November I was diagnosed with celiac disease through the blood test. I'm a very anal person, so I've been very strict with the diet since. Started feeling A LOT better, but still no weight gain, but now the past week I'm nauseous 24/7...any ideas on what it could be? I have an appointment with my GI in two weeks (earliest I could see him) and an appointment with an allergist in a week (maybe it's new food allergies? though I'm barely eating anything due to nausea and I STILL feel bad!).

Thanks for any input or help you can provide!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest spruette

I suffered from nausia for nine years so I know what you are going through. {{Comfort Hug}}

The best bet I guess would be to see those doctors, but in the meantime, maybe ask your doctor for some Compazine to ease the nausia until you see them. It comes in pill or suppository form. I have taken it for nine years, which is NOT a suggestion. I can't wait to stop taking it. But it does help. It has a generic form which is just as good called prochloraperizine.

I know how terrible nausia is. I avoided eating when I was 20-21 because it was so bad that I went down to 98 pounds and I was 5'5. Just the mere thought of food would set me off. But compazine helped immensily.

I hope you feel better! ;)

jmengert Enthusiast

Thank you so much for your reply; I can't believe you've been nauseous for nine years--I'm so sorry. I've been dealing with severe nausea for a week, and I'm already super depressed and upset, so I can't even imagine nine years.

I'm a big chicken about taking new drugs because my stomach is so sensitive--do you have any side effects on Compazine? Thanks for suggesting it! It's nice to know that there's something out there that will help with this nauseousness.

Guest spruette

So is mine. ;) My tummy is so sensitive to medication but Compazine had no side effects with me, minus a little drowsiness the first couple of times I took it, but believe me, it wasn't bad compared to nausia that I get. Compazine is about the strongest anti-nausia drug you will find. At least that's what my educated doctors tell me. It wipes it out. Believe me. It will probably also help with the diareah becuase it has a small constipatant factor with it. Not enough to block you up completely though. I used to call Compazine my best friend. But now I have been on it so long, I am wanting to be completely drug free. If only the nausia would completely leave so that I could do that. Hope you feel better soon! Keep me posted with what happens. :)

jknnej Collaborator

This might be a stupid question for the writer of this post so please pardon if you are a male (I didn't catch your gender)...but if you are indeed female have you ruled out pregnancy?

I'm sure you have if you're a woman but I just wanted to check. When I feel sick that's the first thing my doctor/friends ask me.

jmengert Enthusiast

Actually, I get this question a lot whenever I go through these bouts of nausea; nope, not caused by pregnancy.

KaitiUSA Enthusiast

Is the nausea all the time or mainly after you eat?

If it is when you eat try taking enzymes before, during, and after your meal it helps alot with digestion and absorption of food and the level of nausea that I get now is 10 times better.

:) Hope you all feel better


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

The nausea is pretty much all the time, though it is worse after I eat. I'm seeing my gastroenterologist in a week, so I'll have to ask him about the digestive enzymes--it sounds like they do wonders for some people. Thanks for the input!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      117

      Gluten Free Coffee

    2. - Peace lily commented on Scott Adams's article in Winter 2026 Issue
      12

      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

    3. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Insomnia help

    4. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    5. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,232
    • Most Online (within 30 mins)
      7,748

    Melvin McDowell
    Newest Member
    Melvin McDowell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Peace lily
      Well this is what happen to me . I was still having a little problem with constapation and stomach problems and I’m the only one in the kitchen . I started looking into coffees and it seem like the flavors were the ones to avoid I use k pods.well that wasn’t it I just used breakest blend . Then I found out it was the caramel syrup I was using in my coffee.torino . I never thought that but you have to look at everything. peace lily
    • hjayne19
      Hi @knitty kitty just covering back to this topic. I appreciate everyone’s help. Dairy was definitely adding to some of my issues but I wanted to ask about histamine. When I was working with my dietician I mentioned I got a stuffy nose when I was eating strawberries which I had just noticed one day in particular. Once I looked more into this I realized that histamine peaks at night and can cause insomnia exactly as I had been describing before. Working with her I realized while I wasn’t eating a lot of high histamine foods, I was eating a lot of histamine triggering or releasing like bananas (I was having several a day) and strawberries. Also some nights are worse than others but I also discovered meat sitting out even for a day can increase in histamines especially salmon which I eat quite a lot of even though I thought I was getting it fresh. Just wanted to know your thoughts and I’m just curious how this ties into celiac and leaky gut. 
    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.