Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Horrible Week


neesee

Recommended Posts

neesee Apprentice

I spent the past week in the hospital. I thought I had been glutened! It was acute sigmoid diverticulosis. The Drs. found it in the cat scan. I was in so much pain! I had IV antibotics for 7 days and now I'm on oral antibiotics at home. I don't think I'm out of the woods yet. I need a colonoscopy in 4 to six weeks to see how damaged I really am. The doggone surgeons kept hanging around talking about colostomys. Oh well such is life. One way or the other, I will survive.

On the plus side, when they decided I needed some solid food, the dietitions did a great job feeding me a perfect gluten-free diet. :D When they get a celiac patient, they run right out to the store and buy any specitality items they need. I was impressed.

My potassium is still low, and my iron is low too. I think they put potassium in my Iv 4 or 5 times as well as magnesium and phosphorous.

I'm pretty week and run down right now.

I hope everyone else had a better week. Remember to eat your fiber!

neesee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judyin Philly Enthusiast

Good Grief........what a week and horrible experience.

I hope your feeling better now.

It's wonderful to hear how they met your special gluten-free needs.

that's a new one for sure ;)

heal fast.

Judy

celiac-mommy Collaborator

I'm glad you're home and on the mend, lots more rest and a speedy recovery to you!!! :)

jerseyangel Proficient

Hi neesee--

What a week! Hope you recover quickly :)

neesee Apprentice

Awww.... thank you Judy and Celiac mommy.

I have to say, even though was really bad, I feel so loved! My family is the best! My little poodle babies too! I thought the were going to drown me with kisses when I got home :lol:

neesee

neesee Apprentice
Hi neesee--

What a week! Hope you recover quickly :)

Thank you Patti. I'm sure I will.

neesee

Phyllis28 Apprentice

Hope you feel better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I am glad you are now home and recovering. I know how painful an attack of diverticulitis can be and I hope you continue to improve and feel great soon.

Jestgar Rising Star
My little poodle babies too! I thought the were going to drown me with kisses when I got home :lol:

neesee

Aaawww, slobbery poodle kisses :wub:

I'm glad you came back to much love.

GFinDC Veteran

I hope you get better soon Neesee! My younger brother had a colostomy for a while. He had Crohns. It was intended to give his intestines a chance to heal and rest. I think it did because they undid the colostomy after a while and he was better. He was able to ride his bicycle back and forth to town 26 miles round trip after that. I like your advice to eat fiber. I try to remember to put a little psyllium husks in my food.

The anti-biotics might help. Here si a a link to an old story on BBC news about a theory that bacteria are involved with Crohn's. Not saying you have Crohn's of course, celiac si very different. I just thot it interesting that this MAP bacteria is present in some people with GI symptoms. Sorry, kind of off topic.

** 'Clear' bacteria link to Crohn's **

A US team has found the clearest evidence yet that Crohn's disease is caused by a type of bacteria.

< Open Original Shared Link >

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.