Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ridin' The Storm Out


dksart

Recommended Posts

dksart Apprentice

We are staying, but I'm nervous, even though we now live north of I-12 on the northshore of New Orleans which didn't flood for Katrina.

We used to live in lower St. Bernard Parish (well below sea level) When we evacuated for Katrina, I had just been diagnosed with Celiac and couldn't have prepared for the months we would have to spend away from home without any Gluten-free food. We were happy to have whatever mac 'n cheez or spongy white bread the Red Cross had to give that day. Just try asking for gluten-free MRE's. :rolleyes:

Anyone else here going through this huge scary storm? Evacuating or staying put?

I lost everything once, I don't know how I could take that again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I am in PA but I am watching the hurricane coverage....wow is all I can say. Please stay safe, it looks like a bigger storm than Katrina. When is it supposed to hit?

Lisa Mentor

I hope that all of our members in the Gulf Region remain safe from Gustav. Hitting at a Category 4 (more than Katrina) the storm serge will overtop the levies. Storms like these can move one heck of a lot of water.

I've been through a Category 2 direct hit and it is truly is terrifying. I can't fathom a Cat 4.

dksard, be safe!! (and please consider leaving)

blueeyedmanda Community Regular

I second what Lisa said, please consider leaving. I see all the interstates have been changed so all lanes flow the same direction.....I know leaving your home and belongings cannot be easy...I have never been through something like this.

ohsotired Enthusiast

Oh please be careful!! I too, wish you would evacuate, but can imagine how hard that must be to leave everything behind. I just want you to be safe!

ShayFL Enthusiast

The majority of hurricanes hit either Florida or Texas. I have lived in FL my whole life and I have lived through quite a few. But make no bones about it, if a Cat. 3 or higher is heading my way, I am leaving. I've got my family and everything else is just "STUFF".

Be safe.

neesee Apprentice

dksart, I sure wish you would reconsider. You and your loved ones are far more important than any possessions you might need to leave behind. Things can be replaced, people can't.

I'll keep you and all the hurricane area in my prayers.

neesee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

They are under manditory evacuation, so I hope she's outta there.

psawyer Proficient

I'm not sure how far inland the mandatory evacuation zone stretches. If she is north of I-12, then she is at least five miles inland from the north shore of Lake Ponchartrain.

Thinking about you, dksart. Be safe.

blueeyedmanda Community Regular

We keep watching it on Tv. I hope she is safe, whatever choice she made.

Judyin Philly Enthusiast

I too am watching out for you

I have 2 dear friends there and have been on the phone with them today

I has mandatory evacuation so has taken the 2 vacation trailers on pecan island and moving then far north.

One is staying on a hill in Layfette

i hope you are gone by now.

if not let us know ok?

be safe.

Judy

dksart Apprentice

Wow, thanks so much for everyone's concern and especially the good thoughts.

We are north of I-12, west of I-59 and are not under mandatory evacuation. Our area is the only section of the parish not ordered to leave. We moved here after the storm because of the safety factor. This neighborhood was one of the only not to flood in south-east Louisiana for Katrina.

We're definitely not staying because of any possessions. If there was only one thing I learned from Katrina, it's that "stuff" is just "stuff."

The latest forecast seems much better for us, we are hardly even in the cone of error. Our daughter is in college in Lafayette, she is staying and that is what is making me nervous now. She's prepared, but just not with me.

I'll keep y'all informed, tried to earlier, but the internet keeps going out.

Jenny (AZ via TX) Enthusiast

dkasart,

I've been thinking of you and truly hope this storm misses you. I have many relatives in the NO area and most have evacuated. Please be careful.

ravenwoodglass Mentor

Thinking of you and the others who have stayed to ride it out. I rode out 2 hurricanes when I lived down south, couldn't have left if I wanted to. It can be really scarey how much power mother nature has. I rode one out in a trailer. We cleared the bedroom leaving only the mattress and then brought in one from another room and 'hid' between them during the worst. Most likely the stupidest thing I ever did as I had never lived in a trailer and didn't realize how fragile they are. We were really lucky and I will never forget that night.

Please stay safe and let us know how you are doing when you are able.

dksart Apprentice

Lots of rain is all, so far. The power keeps going out, so I'm posting quickly.

It seems to have moved a bit closer east than they were predicting last night. Not the best news. :( My sensitive belly is not taking this well.

It may be a while before I can update y'all. Thanks again and please keep up the positive thoughts, we need them right now!

dandelionmom Enthusiast

Keeping you in my thoughts! Stay safe!

Judyin Philly Enthusiast

Keep safe.

thanks for letting us know where you actually are

i printed a map so i can keep tabs on my freinds down there.

One is in Lafayette where your daughter is

Judy

blueeyedmanda Community Regular

Thanks for the update- keep us informed when you can. :)

oceangirl Collaborator

Just a "hello" and "keep safe" from Maine. I've lived through many Nor'easters, one that destroyed my childhood home in 1976, and many other ocean storms. I am in awe and have huge respect for Mother nature! I LOVE New Orleans and hope all will be well, well, well for you and all there!

Anxious to hear!

lisa

Judyin Philly Enthusiast

Dkstart

sure hope we hear from you soon!

Trusting your ok but maybe w/o electricity

wishing you the best.

Judy

lovegrov Collaborator

My parents fled Thibodaux, La., which was in or close to the eye, to Memphis, Tenn. Thanks goodness the winds slowed, but it will probably be the end of the week before they can return and find out about their house.

richard

dksart Apprentice

We made it OK! It was scary for a bit, the giant pine trees in the woods behind my house were bending sideways at one point, but most of the worst stuff missed us. Now the rains have passed, but some local lakes are topping over due to the excessive amount of rainfall..... not the storm surge like they were predicting.

We just got power back, it has been out since around noon Monday. Water just came back, too, but it is only trickling out. No sewage for a while, which is not the best thing for this Celiac and her nervous stomach. I think the backup generator was damaged there somehow.

All of the roads around us will be closed through tomorrow or so, so my parents will likely be here a while. They want to go home to check out any damage in St. Bernard. Looks like they will be OK, though.

blueeyedmanda Community Regular

Good to hear from you!!! Glad to hear you are safe, that is nice!!!!

dksart Apprentice

I just heard that people are trying to return from wherever they evacuated to (all roads in to New Orleans, Jefferson and St.Tammany are closed) which is causing severe bottle-necking on I-10. Police are turning everyone around until further notice. Plus, here are no gas stations open and many of these people have driven a long way to try to get back home.

Also, we got power back here, but not the rest of our parish. Some areas are expected to take up to two weeks before they get electricity. We are lucky because we live so close to the NOAA radar station and the airport, those were some of the first places they wanted to restore power to. I cooked spaghetti on my propane BBQ pit last night!

Unfortunately, still no sewage. They are saying we can't flush until they say so. :(

Our daughter, in Lafayette, got her power back last night and never lost water or sewage at all. They did get a lot of wind damage in the area, but none to her apartment complex.

ShayFL Enthusiast

Glad to hear you are safe albeit "not flushing". :o

We went through that for a spell. Bathroom consisted of a roll of toilet paper and a shovel. Luckily we have a very big and private back yard. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,890
    • Most Online (within 30 mins)
      7,748

    Kathryn sealey
    Newest Member
    Kathryn sealey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
    • trents
      A classic case of more than one medical problem going on at a time. We often forget that can happen. Are you concerned about your weight loss? Is your current weight too thin for your height, gender and general build?
×
×
  • Create New...