Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ridin' The Storm Out


dksart

Recommended Posts

dksart Apprentice

We are staying, but I'm nervous, even though we now live north of I-12 on the northshore of New Orleans which didn't flood for Katrina.

We used to live in lower St. Bernard Parish (well below sea level) When we evacuated for Katrina, I had just been diagnosed with Celiac and couldn't have prepared for the months we would have to spend away from home without any Gluten-free food. We were happy to have whatever mac 'n cheez or spongy white bread the Red Cross had to give that day. Just try asking for gluten-free MRE's. :rolleyes:

Anyone else here going through this huge scary storm? Evacuating or staying put?

I lost everything once, I don't know how I could take that again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I am in PA but I am watching the hurricane coverage....wow is all I can say. Please stay safe, it looks like a bigger storm than Katrina. When is it supposed to hit?

Lisa Mentor

I hope that all of our members in the Gulf Region remain safe from Gustav. Hitting at a Category 4 (more than Katrina) the storm serge will overtop the levies. Storms like these can move one heck of a lot of water.

I've been through a Category 2 direct hit and it is truly is terrifying. I can't fathom a Cat 4.

dksard, be safe!! (and please consider leaving)

blueeyedmanda Community Regular

I second what Lisa said, please consider leaving. I see all the interstates have been changed so all lanes flow the same direction.....I know leaving your home and belongings cannot be easy...I have never been through something like this.

ohsotired Enthusiast

Oh please be careful!! I too, wish you would evacuate, but can imagine how hard that must be to leave everything behind. I just want you to be safe!

ShayFL Enthusiast

The majority of hurricanes hit either Florida or Texas. I have lived in FL my whole life and I have lived through quite a few. But make no bones about it, if a Cat. 3 or higher is heading my way, I am leaving. I've got my family and everything else is just "STUFF".

Be safe.

neesee Apprentice

dksart, I sure wish you would reconsider. You and your loved ones are far more important than any possessions you might need to leave behind. Things can be replaced, people can't.

I'll keep you and all the hurricane area in my prayers.

neesee


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

They are under manditory evacuation, so I hope she's outta there.

psawyer Proficient

I'm not sure how far inland the mandatory evacuation zone stretches. If she is north of I-12, then she is at least five miles inland from the north shore of Lake Ponchartrain.

Thinking about you, dksart. Be safe.

blueeyedmanda Community Regular

We keep watching it on Tv. I hope she is safe, whatever choice she made.

Judyin Philly Enthusiast

I too am watching out for you

I have 2 dear friends there and have been on the phone with them today

I has mandatory evacuation so has taken the 2 vacation trailers on pecan island and moving then far north.

One is staying on a hill in Layfette

i hope you are gone by now.

if not let us know ok?

be safe.

Judy

dksart Apprentice

Wow, thanks so much for everyone's concern and especially the good thoughts.

We are north of I-12, west of I-59 and are not under mandatory evacuation. Our area is the only section of the parish not ordered to leave. We moved here after the storm because of the safety factor. This neighborhood was one of the only not to flood in south-east Louisiana for Katrina.

We're definitely not staying because of any possessions. If there was only one thing I learned from Katrina, it's that "stuff" is just "stuff."

The latest forecast seems much better for us, we are hardly even in the cone of error. Our daughter is in college in Lafayette, she is staying and that is what is making me nervous now. She's prepared, but just not with me.

I'll keep y'all informed, tried to earlier, but the internet keeps going out.

Jenny (AZ via TX) Enthusiast

dkasart,

I've been thinking of you and truly hope this storm misses you. I have many relatives in the NO area and most have evacuated. Please be careful.

ravenwoodglass Mentor

Thinking of you and the others who have stayed to ride it out. I rode out 2 hurricanes when I lived down south, couldn't have left if I wanted to. It can be really scarey how much power mother nature has. I rode one out in a trailer. We cleared the bedroom leaving only the mattress and then brought in one from another room and 'hid' between them during the worst. Most likely the stupidest thing I ever did as I had never lived in a trailer and didn't realize how fragile they are. We were really lucky and I will never forget that night.

Please stay safe and let us know how you are doing when you are able.

dksart Apprentice

Lots of rain is all, so far. The power keeps going out, so I'm posting quickly.

It seems to have moved a bit closer east than they were predicting last night. Not the best news. :( My sensitive belly is not taking this well.

It may be a while before I can update y'all. Thanks again and please keep up the positive thoughts, we need them right now!

dandelionmom Enthusiast

Keeping you in my thoughts! Stay safe!

Judyin Philly Enthusiast

Keep safe.

thanks for letting us know where you actually are

i printed a map so i can keep tabs on my freinds down there.

One is in Lafayette where your daughter is

Judy

blueeyedmanda Community Regular

Thanks for the update- keep us informed when you can. :)

oceangirl Collaborator

Just a "hello" and "keep safe" from Maine. I've lived through many Nor'easters, one that destroyed my childhood home in 1976, and many other ocean storms. I am in awe and have huge respect for Mother nature! I LOVE New Orleans and hope all will be well, well, well for you and all there!

Anxious to hear!

lisa

Judyin Philly Enthusiast

Dkstart

sure hope we hear from you soon!

Trusting your ok but maybe w/o electricity

wishing you the best.

Judy

lovegrov Collaborator

My parents fled Thibodaux, La., which was in or close to the eye, to Memphis, Tenn. Thanks goodness the winds slowed, but it will probably be the end of the week before they can return and find out about their house.

richard

dksart Apprentice

We made it OK! It was scary for a bit, the giant pine trees in the woods behind my house were bending sideways at one point, but most of the worst stuff missed us. Now the rains have passed, but some local lakes are topping over due to the excessive amount of rainfall..... not the storm surge like they were predicting.

We just got power back, it has been out since around noon Monday. Water just came back, too, but it is only trickling out. No sewage for a while, which is not the best thing for this Celiac and her nervous stomach. I think the backup generator was damaged there somehow.

All of the roads around us will be closed through tomorrow or so, so my parents will likely be here a while. They want to go home to check out any damage in St. Bernard. Looks like they will be OK, though.

blueeyedmanda Community Regular

Good to hear from you!!! Glad to hear you are safe, that is nice!!!!

dksart Apprentice

I just heard that people are trying to return from wherever they evacuated to (all roads in to New Orleans, Jefferson and St.Tammany are closed) which is causing severe bottle-necking on I-10. Police are turning everyone around until further notice. Plus, here are no gas stations open and many of these people have driven a long way to try to get back home.

Also, we got power back here, but not the rest of our parish. Some areas are expected to take up to two weeks before they get electricity. We are lucky because we live so close to the NOAA radar station and the airport, those were some of the first places they wanted to restore power to. I cooked spaghetti on my propane BBQ pit last night!

Unfortunately, still no sewage. They are saying we can't flush until they say so. :(

Our daughter, in Lafayette, got her power back last night and never lost water or sewage at all. They did get a lot of wind damage in the area, but none to her apartment complex.

ShayFL Enthusiast

Glad to hear you are safe albeit "not flushing". :o

We went through that for a spell. Bathroom consisted of a roll of toilet paper and a shovel. Luckily we have a very big and private back yard. ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,136
    • Most Online (within 30 mins)
      7,748

    Jamy
    Newest Member
    Jamy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.