Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Back To School Tonight... 10 Yrs Later


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

Well I am a bit nervous. I know I shouldn't be but I am. I am not nervous about school, I know I can do well and finally get that degree finished. What I am nervous about is that this is the first time since diagnosis, yep in almost 6 yrs, that I will be going anyplace after having food in my tummy during the day. I handled my constant D for years with meds and by not eating anything at all until I was home for the night even if I was working a split shift and didn't get home till 10pm or later. After diagnosis this habit developed into what seemed to be almost agoraphobia and then the last couple of years got even more restrictive till the only time I left the house was to go to the store. It hasn't been easy to fight, in fact I almost went the drug route but I have been fighting it on my own consiously for a few months now. I can now have breakfast or lunch and walk my dog without any anxiety but being by myself and able to get out of whereever I am has been a saving grace. I went to the school today and scoped stuff out so I would be comfy and know where everything is. I did chicken out and will wait till after class for dinner but I did have a late lunch. Wish me luck and calmness folks if you could.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh Ravenwood--I just know you're going to do fine, and I wish you all the luck and calmness in the world!! :D

I can relate to exactly what you are going through--I haven't reached a point yet where I feel comfortable with committing to anything where I have to be present on a regular basis--but you give me hope!

How exciting for you to be able to get your degree--I'm so happy for you :)

neesee Apprentice

Ravenwoodglass, Wishing you good luck and serenity.

I know what you're going through. You sound a lot like me. You'll be fine. ;)

neesee

Phyllis28 Apprentice

You'll do just fine. If it makes you feel more at ease, choose a seat by the door so you can leave and re-enter, if necessary, without disturbing the rest of the class.

If you have not already done so, you can might want to sign up with the disabiltity office since Celiac is covered by the ADA and they can put into place the accomodations you need. Possibly, leave during class (in case you get a teacher who objects) and arranging to take tests at a different time and location. If you wish to do this you will need to check with the schools disability office to find out what paperwork they need.

My son is registered with the Community College disability office (not for celiac) he attends (State of CA). All the students registered with the disabilty office get priority registration. I am not sure if this is the same is all states.

Schools are not gluten free enviorments so you may want to consider carrying along something like baby wipes to clean surfaces (desks, tables, chairs) that look suspect.

I am sure everything will go well for you.

ravenwoodglass Mentor

I made it. I did get there early so I could lay claim to a spot by the door. I will do that with tommorrows class also. It seems to me at times that the psychological trauma from the junk we deal with before diagnosis is even harder to heal than the body. If that makes sense.

I WILL get my life back. I WILL I WILL I WILL (stomping feet) :D And it will be better than before.

Today a class, perhaps next week a movie and maybe someday I will even date again.

Thanks for the good thoughts everyone.

Juliebove Rising Star

Sounds like you are doing better! I spent several years avoiding any food related things, for different reasons. I have diabetes and food allergies. I also have medical conditions that leave me disabled. I can go some places, but others are just too difficult for me to manage. I used to stay within 2 miles of my home, going only to the grocery or drugstore or Dr. I eventually got to the point where I could venture out further and do more things.

I currently own one box of Immodium and I should probably check the date on it to make sure it isn't expired! Can't remember the last time I used it. Before I knew about the food allergies, it was my best friend. Most days I took the maximum dose and sometimes even more.

jerseyangel Proficient
I made it. I did get there early so I could lay claim to a spot by the door. I will do that with tommorrows class also. It seems to me at times that the psychological trauma from the junk we deal with before diagnosis is even harder to heal than the body. If that makes sense.

I WILL get my life back. I WILL I WILL I WILL (stomping feet) :D And it will be better than before.

Today a class, perhaps next week a movie and maybe someday I will even date again.

Thanks for the good thoughts everyone.

:D:D:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Yeah for you! I understand a bit how you feel and what a victory it is. I've always had anxiety about certain things but it got worse after something I went through not long ago and I'm fighting my way back to normal one meeting/ outing at a time. A not so close friend observed accurately that I don't feel safe. Thank you for your honesty and willing to be vulnerable in sharing.

Lisa Mentor
I WILL get my life back. I WILL I WILL I WILL (stomping feet) :D

;):D

xxoo

blueeyedmanda Community Regular

Congrats on going to get your degree!!!! Don't worry everything will be fine :)

GFinDC Veteran

Congratulations Ravenwoodglass on making the world your oyster! :)

JNBunnie1 Community Regular
I made it. I did get there early so I could lay claim to a spot by the door. I will do that with tommorrows class also. It seems to me at times that the psychological trauma from the junk we deal with before diagnosis is even harder to heal than the body. If that makes sense.

I WILL get my life back. I WILL I WILL I WILL (stomping feet) :D And it will be better than before.

Today a class, perhaps next week a movie and maybe someday I will even date again.

Thanks for the good thoughts everyone.

I know EXACTLY how you feel and I think you ROCK!!!!!!

gfp Enthusiast

Well done and good luck.

I really would take Phyllis's advice onboard!

I think its generally polite in a lecture to say if you have to leave but .... there are certain limits. If you bring this up when you have time get it all sorted and above board then you can have the door seat reserved (officially but quietly and without fuss) and then if you need to leave you can just leave and the lecturer will know why and not ask embarassing questions.

Another bonus is you could get access to staff/disabled loo's.

kbtoyssni Contributor

Congrats on going back to school and good luck! I was one semester away from graduating from grad school when I had to drop out due to undiagnosed celiac. In the next year I figured out my diagnosis, my body healed, I got my life back on track and got a full-time job, then went back to grad school one class at a time while working. It took me four years to finish instead of the originally planned sixteen months, but as you can see from my avatar, I finally finished! Going back to school isn't easy, but when you finally do walk across that stage and get your diploma, it's about so much more than the degree. It's a symbol of a life back on track. Good luck and hang in there!

ravenwoodglass Mentor

Thanks for all the support and encouragement guys. I had gotten so restricted by the beginning of this year that I wondered more than once why I bothered still being on this earth. Even though my consious mind knows I am okay now and have nothing to worry about the subconcious would still kick in every time I tried to do anything. I wanted to do things with my family so bad and then it would get closeto time to go and the old tapes would play. It has been a struggle but I AM going to win it. Everytime I force myself to do something it gets a little easier.

I will be at the main campus tonight and am going early so I can check in with the Disability Office. Some proffessors have really strict rules on testing and absences and although I don't think I will have any issues it would be best to let them in on things. I did let my instructor know last night and she was really good. I didn't have to explain anything I just showed her the celiac tag on my key ring. It was nice not to have to explain.

I figured I would take a wet paper towel with me to my classes to wipe my desk with before I sit down. Most don't allow food in the class but better safe than sorry.

These last few months have been a lot of work. I didn't think the first day I forced myself to sit on the front porch that I would get this far. I still have a long way to go but I finally feel like perhaps there will be a productive life in from me after all.

Judyin Philly Enthusiast

yes you will get your life back

look how great your starting out

it's scary in the 'big world' out there I so agree but your doing it ;)

Everytime I force myself to do something it gets a little easier.

I will be at the main campus tonight and am going early so I can check in with the Disability Office.

I didn't have to explain anything I just showed her the celiac tag on my key ring. It was nice not to have to explain.

I figured I would take a wet paper towel with me to my classes to wipe my desk with before I sit down.

These last few months have been a lot of work. I didn't think the first day I forced myself to sit on the front porch that I would get this far.

I still have a long way to go but I finally feel like perhaps there will be a productive life in from me after all.

So many great points here.

CVS sells little packs of 'wipes' you can stick in your purse too

from the PORCH to the classroom to the BOARD ROOM..........YOU ROCK.

JUDY

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.