New Diagnostic Screening Tool (homekit)

[jeanbean]

I just happened to come across this website where for $50 you order your own test. Sounds like it might be something new for those who are thinking about getting tested. If this has already been posted, then I apologize (i did a search but nothing came up.)

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[gfmolly]

Has anyone done this test?

[nora-n]

we have had this ttg-IgA home test for a few years here in Scandinavia and the UK and possibly other places.

The website says the Canadian version will soon have, but it is not clear, a test for IgA deficiency included (which is much better. Here all labs automatically run the total IgA at the same time, this is why tests at the doctor's office are better than this home test)

I believe labs in canada or the U.S. do not automatically run the total IgA, but here they always do.

so the test kit with the total IGA test included might be better in that case.

One needs to know that celiac is still possible if this test is negative, as a lot of celiacs never test positive on a blood test. There has been a lot of discussion here on the forums (not on this here forum) about the test kit or the web site not stressing that enough.

Ours is about 37 dollars.

nora

norway

[ShayFL]

I did one like it about a year ago. There are other manufacturers of this test. Mine cam up NEG. But a following blood draw shows me at the very bottom of the IgA range. I just dont make much of that antibody. I tested POS 6 months ago using IgG and POS with Enterolab.

[dally099]

i have ordered a couple of kits, one for myself and one for 3 of my kids as the fourth was allready tested and is negatvie, this unfortunately means for me im back to a glutenous diet, ugh! i have never managed to test positive as i was gluten free for months when the doc finally tested me. i would like some kind of formal diagnosis though for my taxes. im am going to timmies for a donut, though, but ugh the itchies and D have allready come back, had the rash on my back allready to, oh well only for a couple of weeks than back to rice for me! ill give my thoughts on the test when i get them, im pleased that they dont cost a fortune!

[nora-n]

If you itch and have a rash from gluten, you may have DH, Dermatitis Herpatiformis.

Ifyou get a biopsy done properly, you can get a diagnosis, and that means you are celiac.

Many DH patienst do not have the villi damage, or the genes, but they still are diagnosed officially as celiacs and must avoid gluten totally.

The biopsy must be done on a spot where you never have had the rash, as the IgA ther wise is used up. Also, it must be done during an outbreak.

In DH, there is a different antibody invovled, it is Ttg3 as opposed to ttg2 in celiac.

ttg6 is involvede in glutan ataxia, by the way.

I have not heard of rutine tests for ttg3 or ttg6.

noa

[dally099]

yup i have deffenitely figured i have dh as well as gut symptoms, not feeling great today allready, pretty neusous in the morning and my guts arent to happy with this,but i would like to be properly diagnosed, we have other programs up here that you qualify for if you have the diagnosis. still gonna eat some donuts though!

[nora-n]

It might be much easier and quicker to get a DH diagnosis, maybe.

If one gets a DH diagnosis, one is automatically considered celiac, and put on a gluten-free diet.

Here they get the same benefits as celiacs with a positive gut biopsy.

Some DH patients never get the typical gut damage to get jsut a celliac diagnosis, that is why they accept the DH diagnosis alone. But they always send DH patients for a gut biopsy but they keep their diagnosis in spite of negative gut biopsies.

nora

[dally099]

one kid down and 2 more to go, my 2 girls so far are negative, just the boy and the baby to test!