Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Reply....anyone At All Who Has An Answer!


lindelxox

Recommended Posts

lindelxox Newbie

I am 13 years of age and i'm a celiac/gluten intolerant and i get THE WORST cramps and THE WORST bloating and the other day, someone was rather horrible to me nd they came up to me and asked ''When's the baby due?" i hate it! :angry: does ANYONE have any solutions to beat the Nausea?and the cramps.....besides pain killers and Wheat packs (they are like hot water bottles only with wheat instead of with water)..AND i would be SOOOO greatful for ANY AT ALL responses...i dont care who's it from BUT if you are providing me with false hope i'll be not too happy!! :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Are you sure you're 100% gluten-free?

If you are 100% gluten-free, I would consider that you might have a candida/yeast problem. There are many threads here regarding candida. Basically, you would need to cut out sugar and simple carbs (white bread, white rice, white sugar) and take probiotics to rebuild intestinal flora.

Sweetfudge Community Regular

i'm sorry hon. people can be so mean. i used to get asked that a lot when i was first diagnosed. i agree with carla, in that you ought to take a look at what else it could be. i worked with my doctor, and was able to eliminate dairy, and am now in the process of avoiding soy. my bloating has gone down, but the cramps are still here, if not quite in full force. i hope you can find a solution ;)

lindelxox Newbie
i'm sorry hon. people can be so mean. i used to get asked that a lot when i was first diagnosed. i agree with carla, in that you ought to take a look at what else it could be. i worked with my doctor, and was able to eliminate dairy, and am now in the process of avoiding soy. my bloating has gone down, but the cramps are still here, if not quite in full force. i hope you can find a solution ;)

thanx honey!!

MELINE Enthusiast

Hello

sorry to read that you have nausea / bloating problems..

1)if you are completely gluten free I agree with the candida issue

2)if you are not, check your cosmetics and keep in mind that even the smallest trace of gluten can make you sick

3) my bloating was ALL because of lactose intolerance.

4) my nausea was ALL because of malabsorption. I used to eat HUGE amounts, lose weight, m body and my breath had the worse odour and my stool too, and it was because my villi could not properly help me digest the food. Also my hair kept falling.

Now everything is gone, but it took me 1 year. You didn't tell us when you started the diet. You must give yourself the time to get better.

One thing not to cure the nausea but just to make you feel better is camomile. It worked great for me.

Meline

mindwiped Rookie

Just me, I'd get rid of the wheat pack...it's WHEAT! Every time you jiggle it, it's shedding microscopic bits of gluten everywhere you lay it. It's in your microwave (I'm assuming that's how you heat it up), and all over your hands from touching it. You can make the same thing with rice in a sock, (or travel pillowcase, just no zipper) and then it can't gluten you.

ravenwoodglass Mentor
Just me, I'd get rid of the wheat pack...it's WHEAT! Every time you jiggle it, it's shedding microscopic bits of gluten everywhere you lay it. It's in your microwave (I'm assuming that's how you heat it up), and all over your hands from touching it. You can make the same thing with rice in a sock, (or travel pillowcase, just no zipper) and then it can't gluten you.

That was my first thought also, reading about that wheat pack sent shudders through me. That is not something you want to be using. In addition to making one of rice in some areas you can find buckwheat pillows and heating pads, those are safe as buckwheat is not actually a wheat. Buckwheat cereal, cream of buckwheat, is also very soothing and if you like cream of wheat you will like cream of buckwheat. It is a nice easily digested food for when you are getting over a glutening. Do check everything you are coming into contact with, not just food but your shampoos, toiletries, makeup, lotions even pet foods should be gluten-free to avoid crosscontamination issues. Also be aware that some companies post copious lists of 'gluten free' items, Frito Lay is one example, however the issue of cross contamination is very high. If you are new to the diet the best way to go is with fresh (or frozen single ingredient) foods. Fresh veggies, fruits, nuts, meats etc are all going to be naturally gluten free and will help you heal with less risk of a gluten accident. After you have been feeling good for at least 2 weeks then add in some other processed and more risky stuff. It is easier to tell how sensitive you are if you go super strict in the beginning.

Other kids can be really nasty, and some don't outgrow it in adulthood. One comforting thought to keep in mind is that celiac is very common. The NIH estimates that there are 3 million of us, at least in the US. At present only about 100,000 are diagnosed. Those kids that are teasing you may be walking in your shoes at some point.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes, ditch the "wheat packs". Fill a large sock with white rice and heat in the microwave. Works great!

ang1e0251 Contributor

I'm so sorry you are feeling sick. I wondered if your food is being cooked in containers with utensils that are also being used for food that does have gluten. Cross contamination is tough on the tummy & the rest of your family may not understand what a problem it is for you. You need your own cooking pots, utensils, food prep area, toaster and storage for your food.

The diet takes time to get right and we have all had set backs. Don't listen to people who are cruel and ignorant about others. Your beauty shines and we can all see it here. We will talk to you anytime you need us. We care!

Fiddle-Faddle Community Regular

You don't need to ditch the wheat pack if it's BUCKWHEAT (which most, but not all, of that sort of heating packs are). Buckwheat is gluten-free.

I agree with the candida issue possibility, but think that lactose intolerance or a dairy allergy is more likely, and I would rule that out first.

Rule it out by going dairy-free for a while (:(), then adding LACTOSE-FREE milk back in. If you react to it, then it's a DAIRY problem, not a lactose problem But if you don't react to it, you can probably manage dairy by using lactase pill(which are a replacement for the lactase you are supposed to be producing--read instructions carefully!).

happygirl Collaborator

You may want to talk to your parents about taking you to the doctor and having you evaluated to see if your Celiac antibodies (bloodwork) have dropped to normal limits. If they haven't, your body hasn't healed or is still getting gluten, and that may be the explanation for your symptoms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.