Testing Results

[Lisa]

I use rubbing alcohol and water mixture. I might be a bit anal with this, oh well. I wipe my cell phone off when I get home and will wipe off the counter tops on occasion just for good measure. Hey when you are hyper sensitive to this gluten deal, what the heck.

Alcohol might take care of some germs, but won't do much for gluten.

[dilettantesteph]

Alcohol might take care of some germs, but won't do much for gluten.

He is just talking about solubilizing it. It is soluble in alcohol.

[confused]

Yes, but you failed to mention what your results were. Twice

Im thinking it is positve, that is why he wont tell me. lol

paula

[Mike M]

Im thinking it is positve, that is why he wont tell me. lol

paula

Paula, you are such a good thinker!

I have lots more to add to this list of negative for gluten at the time of testing. List includes pet food (dog and cat-tell you right up front, it is not a big list on the dog and cat food, I have tested so many and the results have not been good) and a lot of things like Benadryl more toothpaste, Pamprin, things like this. Too all of the readers, Shall I post them or am I wasting your and my time? All the best, Mike

To the Wine drinkers, I have found a gluten free wine. Tested negative every time. I have tested many batches and it has never been positive. Passes the human test too! Never got sick. I will need to call them before posting this info as they are on the smaller scale.

[Lisa]

Paula, you are such a good thinker!

To the Wine drinkers, I have found a gluten free wine.

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Wine is derived from grape and considered safe for Celiacs to consume.

[Mike M]

https://www.celiac.com/articles/222/1/Glute...ages/Page1.html

Wine is derived from grape and considered safe for Celiacs to consume.

Well, it just isn't like that. Just like it is not for gluten free beer. There is a serious cross contamination issue with booze. Some may never notice it and may not react and this is another subject of controversy (how much is too much?) The old thought process is no longer valid in my opinion and it is out of control. This view is not looking at the entire picture from a manufacturing stand point. I will pay you to go and pick out a wine that is commercially produced and send it off to the lab of your choice for gluten testing to show you and others what is going on. I am convinced that countless gluten intolerant/Celiac folks are really doing themselves harm on a daily basis with these thoughts that are passed along with absolutely no evidence to back up the statements that are made like you just did. I do think it is for the most part, meant with no harm and the fact that nobody wants to give up something they enjoy. So, they choose to bury their head in the sand so to speak and say I don't want to know. Just my opinion. Let me know I am very serious. Mike

[dilettantesteph]

Well, it just isn't like that. Just like it is not for gluten free beer. There is a serious cross contamination issue with booze. Some may never notice it and may not react and this is another subject of controversy (how much is too much?) The old thought process is no longer valid in my opinion and it is out of control. This view is not looking at the entire picture from a manufacturing stand point. I will pay you to go and pick out a wine that is commercially produced and send it off to the lab of your choice for gluten testing to show you and others what is going on. I am convinced that countless gluten intolerant/Celiac folks are really doing themselves harm on a daily basis with these thoughts that are passed along with absolutely no evidence to back up the statements that are made like you just did. I do think it is for the most part, meant with no harm and the fact that nobody wants to give up something they enjoy. So, they choose to bury their head in the sand so to speak and say I don't want to know. Just my opinion. Let me know I am very serious. Mike

It has been established that different celiacs have different thresholds for the amount of gluten that will cause them to have a reaction. It likely that items that you can't tolerate are well tolerated by other celiacs.

On the other hand, there have been posts here from people who still have flattened villi and positive blood test results after thinking that they are on a completely gluten free diet for extended periods. I know that cross contamination is a big issue based on my reactions and those of my son. It wasn't until I became aware of this issue that I started having periods of good health. The person who made me aware was a nutritionist that specializes in celiac disease.

It very hard when each new item you try which would appear to be gluten free from label reading and checking online can make you sick for a week or more. I wish I could afford to do those tests myself. Maybe I will be able to do some in the future.

For now I am really interested in your results. You have been getting so much flack on this board, maybe you would like to e-mail me. I am at gmail.

[Lisa]

MikeM,

I think that you are doing this gluten free community a very grave disservice by generating fear among the newly diagnosed. The gluten free diet is complex enough without you further complicating it with doubt, innuendo and unsubstantiated claims.

Publishing a listing or product(s), that have been tested in a professional, controlled environment, under the US governmental standards, that you claim to be dangerous to those with Celiac or gluten intolerance, is down right irresponsible.

What is your agenda here? What background do you have to make such claims? Aside from your experiments with the gluten test strips (which as been posted to be unreliable) what research have you done? Where are you support links to substantiate your claims regarding the gluten status of a product?

[Mike M]

MikeM,

I think that you are doing this gluten free community a very grave disservice by generating fear among the newly diagnosed. The gluten free diet is complex enough without you further complicating it with doubt, innuendo and unsubstantiated claims.

Publishing a listing or product(s), that have been tested in a professional, controlled environment, under the US governmental standards, that you claim to be dangerous to those with Celiac or gluten intolerance, is down right irresponsible.

With all due respect to any member that posts here, I find you and your gluten free test strips to be full of bologna.

What is your agenda here? What background do you have to make such claims? Aside from your experiments with the gluten test strips (which as been posted to be unreliable) what research have you done? Where are you support links to substantiate your claims regarding the gluten status of a product?

Do you need wine or beer to survive in this life? Of course not. This is generating fear? Of course not. Yes, the gluten free lifestyle is very complex. And folks like you that spread it's ok because I read it somewhere and here is the link, no that is fear. My agenda? To help others understand that there is a problem with gluten in places it should not be. You troll these boards ready to pounce. Please put me on ignore if there such a thing. All the best, and the offer still stands Mike

[Lisa]

Do you need wine or beer to survive in this life? Of course not. This is generating fear? Of course not. Yes, the gluten free lifestyle is very complex. And folks like you that spread it's ok because I read it somewhere and here is the link, no that is fear. My agenda? To help others understand that there is a problem with gluten in places it should not be. You troll these boards ready to bounce. Please put me on ignore if there such a thing. All the best, and the offer still stands Mike

Again...What is your agenda here? What background do you have to make such claims? Aside from your experiments with the gluten test strips (which as been posted to be unreliable) what research have you done? Where are you support links to substantiate your claims regarding the gluten status of a product?

[Mike M]

Again...What is your agenda here? What background do you have to make such claims? Aside from your experiments with the gluten test strips (which as been posted to be unreliable) what research have you done? Where are you support links to substantiate your claims regarding the gluten status of a product?

Please put me on ignore. I will continue to post the truth.

[happygirl]

Moderators can't ignore anyone.

[Rachel--24]

With all due respect to any member that posts here, I find you and your gluten free test strips to be full of bologna.

With all due respect can we please refrain from personal attacks?? Some people are clearly interested in what Mike has come up with in his tests...he was ASKED to provide a list. Everyone wondered why he wouldnt put up a list....and now there is a problem with him doing this?

In my opinion its perfectly rerasonable to question the vaildity of the tests. Its fine if you think the tests are bogus....noone is being forced to purchase them. For the most part it looks like people dont want to spend that much money on them....they are too expensive right now and not very practical. I think thats why people were wanting to know the results of Mike's testing....because they cant afford to do it themselves...at least that was my understanding as I read these posts.

I think we should keep our opinions about a particular person off of the board. We've had enough topics that have gone south recently.....lets try to remain civil in this thread. Some people are still interested and I'm sure they dont want the thread to disappear.

Nobody likes to be insulted. I think we can all share our thoughts/opinions about the gluten free test strips without getting personal.

[Lisa]

Please put me on ignore. I will continue to post the truth.

I am asking you nicely to post support information regarding your claims. Support your "truth" with facts.

[lizard00]

Moderators can't ignore anyone.

IF we did, we would not be fulfilling our responsibility.

I don't think the question is unreasonable. What proof do you have, other than your testing strips, to prove such a claim?

[ShayFL]

I agree that "proof" is invaluable. I could have just said, I bought the strips and they didnt work. But I know that this board has standards, so I carried out my experiment with proof that I had bought the strips and done the testing correctly (pictures included).

Nothing wrong with providing proof. It helps.

[dilettantesteph]

MikeM,

I think that you are doing this gluten free community a very grave disservice by generating fear among the newly diagnosed. The gluten free diet is complex enough without you further complicating it with doubt, innuendo and unsubstantiated claims.

Publishing a listing or product(s), that have been tested in a professional, controlled environment, under the US governmental standards, that you claim to be dangerous to those with Celiac or gluten intolerance, is down right irresponsible.

What is your agenda here? What background do you have to make such claims? Aside from your experiments with the gluten test strips (which as been posted to be unreliable) what research have you done? Where are you support links to substantiate your claims regarding the gluten status of a product?

I beg to differ. Many items marked gluten free have made me sick. I have checked on this site and found that many of them have made others sick too. It took a lot of suffering on my part and my sons part before I started understanding about cross contamination. The person who first opened my eyes to gluten presence in some items that are marked as gluten free was a nutritionist for Wegmans. It is a grocery chain that helps a lot of celiacs with great service and labelling. Certainly she wouldn't have made those claims without some basis. It would have been very helpful if I had known about it earlier on. MIke M. is only reporting results of his tests. He isn't making any claims beyond that. He was requested to provide these results.

[Lisa]

I understand your concerns about cross contamination. It is a concern for all of us.

I would not/do not put my health or my families in the hands of stangers when I have not confirmed that information elsewhere.

[Mike M]

I beg to differ. Many items marked gluten free have made me sick. I have checked on this site and found that many of them have made others sick too. It took a lot of suffering on my part and my sons part before I started understanding about cross contamination. The person who first opened my eyes to gluten presence in some items that are marked as gluten free was a nutritionist for Wegmans. It is a grocery chain that helps a lot of celiacs with great service and labelling. Certainly she wouldn't have made those claims without some basis. It would have been very helpful if I had known about it earlier on. MIke M. is only reporting results of his tests. He isn't making any claims beyond that. He was requested to provide these results.

It is becoming painfully clear that this is a subject that is not going to happen without heated debate. I had a remarkable recovery for the first 3 months gluten free and felt so good I was ready to go out and embrace the new lifestyle. I will tell you straight up, I came to web sites like this one and got "safe food" information that this is good and that is bad so on and so forth. So off I headed to the health food store and loaded the truck with gluten-free products . Within a month I was right back to square one and sicker than a dog. Went back to the GI and blood work showed no improvement. I was dumb founded. I said I don't get it, I am gluten free to the max! So I made a phone call to a lab and talked to them about my situation. They gave me the scoop about just because it is marked gluten-free doesn't mean it is. I don't want one person to have to go through this if I can help in some way..It pains me greatly to come on this web site almost daily and see so many suffering and hear posters post it is OK to eat this or that. I know better and a lot of us do. I will be the first to admit that gluten in my opinion gets the blame and sometimes it has nothing to do with certain issues they may be having. It is just that gluten is rampant in the food industry. I could post independent lab results until my fingers bleed. It will not convince a particular group of posters. I agree, perhaps we need to take this in another direction. I just hate to leave someone out by going off of the board. Any ideas? All the best, Mike

[Lisa]

Carry on Mike. I'm signing off.

[dilettantesteph]

It is becoming painfully clear that this is a subject that is not going to happen without heated debate. I had a remarkable recovery for the first 3 months gluten free and felt so good I was ready to go out and embrace the new lifestyle. I will tell you straight up, I came to web sites like this one and got "safe food" information that this is good and that is bad so on and so forth. So off I headed to the health food store and loaded the truck with gluten-free products . Within a month I was right back to square one and sicker than a dog. Went back to the GI and blood work showed no improvement. I was dumb founded. I said I don't get it, I am gluten free to the max! So I made a phone call to a lab and talked to them about my situation. They gave me the scoop about just because it is marked gluten-free doesn't mean it is. I don't want one person to have to go through this if I can help in some way..It pains me greatly to come on this web site almost daily and see so many suffering and hear posters post it is OK to eat this or that. I know better and a lot of us do. I will be the first to admit that gluten in my opinion gets the blame and sometimes it has nothing to do with certain issues they may be having. It is just that gluten is rampant in the food industry. I could post independent lab results until my fingers bleed. It will not convince a particular group of posters. I agree, perhaps we need to take this in another direction. I just hate to leave someone out by going off of the board. Any ideas? All the best, Mike

e-mail me at gmail

[April in KC]

Thanks for sharing what you have, Mike. Thanks for doing the experiment, Shay. I can think of a number of reasons why products could test one way or another, or people could get sick or not. I still find the information useful...it's more information than what I currently have available. More info is always good, in my opinion.

Anyone following this thread should check out the recent Chicago Tribune article that outed Welshire Farms dino bites for containing gluten. When cross contamination is an issue, the amounts can vary from batch to batch. One batch can be "under" - another can be "over."

The point Mike made earlier about a company potentially changing its ingredients without stating so is a real possibility. It's fraud, but it's a real possibility. I also belong to the peanut/tree nut allergy community, and our community was in an uproar last year about a number of big-name olive oil companies that were caught marketing soy and tree nut oils as olive oil.

Open Original Shared Link Also covered on NPR and New York Times.

Scary, scary.

[Fiddle-Faddle]

I am only now discovering this thread, and think it's very interesting.

I'm especially interested that Kikkoman soy sauce--which the manufacturer claims is gluten-free due to the fermentation process-- tested negative. I wonder if Rice Dream milk--which the manufacturer claims is gluten-free--would test negative or positive?

One difference is that although Kikkoman does not put "gluten-free" on its label, according to them, the level of gluten is so low, it doesn't show up on ANY test, whereas Rice Dream does put gluten-free on their label, but says that the level of gluten is under 200 ppm (which is easily a level that can cause both reactions and damage).

Come to think of it, it's nice that Kikkoman DOESN'T slap its products with a gluten-free label. I'm still annoyed that Rice Dream does.

I'm very curious! Obviously, it would be really nice if most if not all of us could deal with fragmented gluten with no damage--but who wants to be a guinea pig?? How on earth would anybody prove that fragmented gluten (like that in soy sauce) is safe?

[Gemini]

Well, it just isn't like that. Just like it is not for gluten free beer. There is a serious cross contamination issue with booze. Some may never notice it and may not react and this is another subject of controversy (how much is too much?) The old thought process is no longer valid in my opinion and it is out of control. This view is not looking at the entire picture from a manufacturing stand point. I will pay you to go and pick out a wine that is commercially produced and send it off to the lab of your choice for gluten testing to show you and others what is going on. I am convinced that countless gluten intolerant/Celiac folks are really doing themselves harm on a daily basis with these thoughts that are passed along with absolutely no evidence to back up the statements that are made like you just did. I do think it is for the most part, meant with no harm and the fact that nobody wants to give up something they enjoy. So, they choose to bury their head in the sand so to speak and say I don't want to know. Just my opinion. Let me know I am very serious. Mike

I applaud your experiments on this, Mike, but I have to admit, I am not a believer at all. I drink red wine daily and was end stage, ready for a feeding tube Celiac.

I also use some, but limited amounts, of certified gluten free food and have NEVER had one reaction and my blood work has been awesome. I couldn't possibly be ingesting gluten in any larger amounts than what a fly could handle because, quite simply, I would know. It really is that simple for me so I wonder how you can claim that a large amount of supposedly gluten-free food is not? No one would get better and the gluten-free food out there would not sell if it made people sick to such a degree.

Sounds like you have something else going on and maybe are mistaking it for a gluten reaction? I am in no way trying to be mean to you but if this were true, I would be hospitalized by now.

[Fiddle-Faddle]

I applaud your experiments on this, Mike, but I have to admit, I am not a believer at all. I drink red wine daily and was end stage, ready for a feeding tube Celiac.

I also use some, but limited amounts, of certified gluten free food and have NEVER had one reaction and my blood work has been awesome. I couldn't possibly be ingesting gluten in any larger amounts than what a fly could handle because, quite simply, I would know. It really is that simple for me so I wonder how you can claim that a large amount of supposedly gluten-free food is not? No one would get better and the gluten-free food out there would not sell if it made people sick to such a degree.

Sounds like you have something else going on and maybe are mistaking it for a gluten reaction? I am in no way trying to be mean to you but if this were true, I would be hospitalized by now.

Isn't it possible that the amounts of gluten in these foods varies? Perhaps what Mike has been testing just happens to be from a batch that has more than usual? (All right, maybe it's a stretch, but it's possible, right?)