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I Need Help,thinking On Ordering Test Online.

driedupfish

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driedupfish Rookie
driedupfish
Posted

I went to the University of Chicago Celiac center annual free screening. My test result came back negative, however, I am still experiencing stomach discomfort from time to time. So I call them back to see if I can get another test, or a biopsy. They told me I should go to my primary doctor for another tests. I don't have a primary doctor, I call them a few times and doesn't seem like they want to give me another test. :(

What should I do? Does anyone know where I can get tested in the Chicago area?

I am thinking of ordering the test on directlabs, I order from this site before ( different tests), I don't think it's a scam.

Open Original Shared Link

Anyone know which test(s) I should order?

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lizard00 Enthusiast
lizard00
Posted

How do the tests work?

If you are able, I suggest finding a PCP to help you sort out any other issues you may be having, and run the full version of the celiac panel.

Besides, those tests still don't test for total IgA serum (IF they do, I didn't see where it was listed), and if you are IgA deficient you will be wasting your money. Which could be why you tested negative with the screening.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Another reason to see a PCP is because the "stomach discomfort" could be something else... an ulcer, too much stomach acid (or not enough), stomach cancer, etc...

What led you to seek testing for celiac disease? Is there more besides your stomach symptoms?

ShayFL Enthusiast
ShayFL
Posted

I agree with everyone. You should see a PCP.

But, with regard to directlabs. I have been using them for over 3 years. They do not list EVERY test they offer. You have to call for some. And now it doenst mean that the ones not listed are expensive. They just dont have a complete listing online.

I had a complete Celiac panel through them which included TOTAL IgA. Call them.

driedupfish Rookie
driedupfish
Posted
  • Author

Can someone suggest a physician. Doesn't seem like the one that I go to knows anything about Celiac. I live in the Chicago area by the way.

To shayFL, you mention that you had a complete celiac panel through directlabs. What is a complete celiac panel? Like what tests does it include?

Where else can I get a complete celiac panel?

  • 2 weeks later...
driedupfish Rookie
driedupfish
Posted
  • Author

Any one know of a GI in chicago that can run blood work?

Mother of Jibril Enthusiast
Mother of Jibril
Posted

A regular PCP can do the blood test. A GI would only be needed for an endoscopy.

A celiac panel should include anti-gliaden, EMA, TtG, and total IgA. The total IgA is very important... if the number is too low, you won't be able to get a positive test even if you do have celiac disease.

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missy'smom Collaborator
missy'smom
Posted

Chicago must have a celiac disease support group. You could call them and ask for recommendations. I got mine from our local support group members when I moved to this area. If they don't feel comfortable giving one in an official capacity over the phone, you could attend one of the meetings and just ask. People often do at ours.

Lisa Mentor
Lisa
Posted
Can someone suggest a physician. Doesn't seem like the one that I go to knows anything about Celiac. I live in the Chicago area by the way.

To shayFL, you mention that you had a complete celiac panel through directlabs. What is a complete celiac panel? Like what tests does it include?

Where else can I get a complete celiac panel?

This is the Serological Panel to request from a doctor. Any GP can order these tests.

Antigliadin antibodies (AGA) both IrA and IgG

Antiendomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

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