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Another Celiac Patient Joining The Group! Labs Came Out Positive


TiredofTums

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TiredofTums Rookie

:( Hi friends! I was on the forum last week and the week before suspecting Celiac after my doctor I went to see because of getting sick alot with my intestines and he ordered labs and I am scheduled tomorrow for an Endoscopy and Colonoscopy. He wanted to check for Celiac.

My labs were positive! And he did confirm Celiac Disease. I ordered the grocery shopping guide and am glad I did. It will be very helpful in helping me get well again. I was hoping I wouldn't have to have the other two tests but because of my age and cancer running in my family, he still wants to check me out really good. I got some major damage and have been this way for years never knowing it was Celiac. And have been a very sick female! 27 years I have suffered with this mess and went from doctor to doctor complaining. Now it is official! I have Celiac!

Thank-you so much for helping me! Now I have to learn all about this disease and how to control it by stopping all glutens!

Another thank-you to Lisa for getting me in the forum and telling me all about Celiac! My sister took her son in yesterday because he has been sick for two years now. Poor boy has been vomiting for 3 weeks and gets headaches all the time. Plus he has other things going on. We are just about positive he too has Celiac. Then my mother to is having the same problems. She has been sick for alot longer than me!

Thanks to Lisa for guiding me in the right path! Those labs came in handy and now I am officially a Celiac Patient!

This site really gave me alot of help and I appreciate everybody that took the time to help me!

God bless!

Linda That Is Tired Of Tums


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ravenwoodglass Mentor

I am so glad you finally know and can start healing. I hope things improve quickly for you.

ShayFL Enthusiast

What a relief!! And not that I hope other family members of yours have it, but if they do, you can ALL get healthy together. :) And eat at each others houses without worry. There are blessings along with the curse. May you find them all!

Lisa Mentor

Linda,

Welcome to the Club! ;)

I am so glad you found the right path toward recovery. The theme around here and nationwide is "Celiacs Helping Celiacs", so pay it forward and reach out to others. Your family looks like a great place to start. :)

You have exciting days ahead, full of recovery and good health. I'd be willing to bet you will be seeing improvement in your other issues and your diagnosis of Lupus may be reversed.

Best of health to you and looking forward to seeing you here!

happygirl Collaborator

Congratulations, Linda! I'm happy you have finally found your much needed answers. A great Christmas blessing.

ang1e0251 Contributor

Congrats on your diagnosis. It's a great relief to put a name to your seemingly disjointed problems and finally have an action plan. I was so relieved and grateful. I know you are on an exciting journey to improved health. Have a healthy holiday and New Year!!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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