Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In Crystal Light!


kellylynn

Recommended Posts

kellylynn Rookie

I've felt awful the last day and a half. I've been gluten free for a month and a half and felt much better at first and was starting to be a little skeptical as to how strict I needed to be, but now I know!

The only thing I had yesterday that I hadn't read every ingredient on was a packet of Crystal Light. So went I went back to look at it, I had two boxes. One box clearly labeled gluten-free and the other (the one I drank yesterday) was not labeled gluten-free and maltodextrin was the only ingredient difference between the two boxes.

I just can't believe this! For one, that I feel this bad (bloated intestines, exhausted, twitching eye, etc.) and, two, that there is gluten in crystal light!

Just thought I'd put the warning out there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Maltodextrin is gluten free:

Open Original Shared Link

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

MaryJones2 Enthusiast

Kraft clearly labels any gluten so if the maltodextrin had gluten it would be listed. It might be worth contacting the company though and clarifying the label differences.

Open Original Shared Link

ravenwoodglass Mentor

For some of us the gluten reaction is delayed. Look at not just what you had right before you got ill but also for the 3 days before. It can sometimes be very hard to figure out what 'got' us especially early on.

elonwy Enthusiast

Also keep in mind that artificial sweeteners can cause issues for people with GI problems. I know that they give me terrible stomach cramps and D.

kellylynn Rookie

A representative from Kraft called to assure me that they disclose all sources of gluten and require their suppliers to do the same. I thanked her for their commitment to taking gluten seriously.

I'm still not sure what made me sick....

  • 2 years later...
Okie Kei Bug Newbie

I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...

Just because you react to a product does not mean the company is lying about gluten. There are plenty of things to disagree with you artificial sugar, colors, flavors, etc. I have a son who does not have Celiac but Crystal LIght gives him stomach pain & bloating. We suspect the sweetener.

mbrookes Community Regular

Kareng makes a good point. Once we identify gluten as the culprit, many of us blame everything on gluten. Sometimes other things I eat or drink "disagree" with me. That certainly does not mean they contain gluten.

  • 5 years later...
Susie Rogowski Newbie

Hi! I'm Susie, and I just joined - although I've been a lurker since 2004. I do not have Celiac's, but I am intolerant to gluten. So, with the warm weather upon us, I started back to drinking my Crystal Light lemonade, mixed with Lipton's decaf lemon iced tea mix. About two weeks ago I started to notice a heaviness/fullness in my stomach in the afternoon. It got to the point that it progressed to lasting16+ hours before I got a clue. I thought it was from the huge amounts of watermelon that I can put away. So, for two days, I didn't eat the watermelon, but had my Crystal Light/Lipton's mix.  I admit, I got lazy. If I had read that both mixes had maltodextrin in them, I never would have purchased them because I always thought that it contained gluten. For years. I never had a problem with these mixes. So my problem could be the artificial sweetener, or the guar gum, because I am allergic to some gums. All I know is that I can't let my guard down.

Ennis-TX Grand Master
32 minutes ago, Susie Rogowski said:

Hi! I'm Susie, and I just joined - although I've been a lurker since 2004. I do not have Celiac's, but I am intolerant to gluten. So, with the warm weather upon us, I started back to drinking my Crystal Light lemonade, mixed with Lipton's decaf lemon iced tea mix. About two weeks ago I started to notice a heaviness/fullness in my stomach in the afternoon. It got to the point that it progressed to lasting16+ hours before I got a clue. I thought it was from the huge amounts of watermelon that I can put away. So, for two days, I didn't eat the watermelon, but had my Crystal Light/Lipton's mix.  I admit, I got lazy. If I had read that both mixes had maltodextrin in them, I never would have purchased them because I always thought that it contained gluten. For years. I never had a problem with these mixes. So my problem could be the artificial sweetener, or the guar gum, because I am allergic to some gums. All I know is that I can't let my guard down.

I react to the Aspartame, and Acesulfame Potassium in them. I turn into Mr. Hyde with them. Something in them makes me super aggressive and angery all the time snapping at people. Very similar to how gluten used to effect me. As a alternative try using lemon juice, and a sweetener that is not known to have mental effects on people, I love Sweet Drops stevia flavors, and I constantly use Monk Fruit Sweetener in stuff, along with the sugar free simple syrups from NuNaturals. I somethings use that liquid splenda in the little squirt bottles seems to work alright with no issues.

rehh05 Apprentice

I used to drink Crystal Light all the time too. And I couldn't figure out why I was sooo achy and tired and sore all the time. It said gluten free so I wasn't worried about gluten too much, but then I started having constant head aches... and thought about the sweetener. So I stopped everything with aspartame... the only artificial sweetener I allow now is a small amount of Stevia.  Guess what.. aches and soreness and headaches are muuuuuuch better. Much more energy too. Seems I can't tolerate artificial sweeteners... so no more soda or diet soda for me... I did find a Stevia sweetened lemonade that I use once in a while but not often. 

Ennis-TX Grand Master
7 minutes ago, rehh05 said:

I used to drink Crystal Light all the time too. And I couldn't figure out why I was sooo achy and tired and sore all the time. It said gluten free so I wasn't worried about gluten too much, but then I started having constant head aches... and thought about the sweetener. So I stopped everything with aspartame... the only artificial sweetener I allow now is a small amount of Stevia.  Guess what.. aches and soreness and headaches are muuuuuuch better. Much more energy too. Seems I can't tolerate artificial sweeteners... so no more soda or diet soda for me... I did find a Stevia sweetened lemonade that I use once in a while but not often. 

Make your own soda with SweetDrops and sparkling mineral water, or they make one called Zevia which is a soda free of all coloring, and artificial sweeteners they sweeten it with steiva.

Open Original Shared Link

Open Original Shared Link

Victoria1234 Experienced

Aspartame makes me angry and nasty towards others. I feel very uncomfortable in my own skin. Haven't touched it on purpose in years. Accidentally had some in a yogurt I grabbed at the grocery store on sale a few months ago. Tasted a bit off but it was my last yogurt and had nothing else to eat.  Didn't realize it had aspartame till I pulled it out of recycling, and I was out of sorts for a full day.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - CatS commented on Scott Adams's article in Winter 2026 Issue
      5

      Are Gluten-Free Processed Foods Making You Sick? (+Video)

    2. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    3. - Wheatwacked replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - RMJ replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    5. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,801
    • Most Online (within 30 mins)
      7,748

    b r i t t a n y. g r i f f
    Newest Member
    b r i t t a n y. g r i f f
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.