Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Temperature

wschmucks

By wschmucks
in Coping with Celiac Disease

Recommended Posts

wschmucks Contributor
wschmucks
Posted

Hey guys,

I'm celiac 4 months, and not convinced thats my only problem. I have seem some improvments but not any drastic improvements since going gluten free. My major symtom is constipation, some weight loss, fatigue and a bunch of others. The Dr is running a bunch of tests on me and asked me to take my temperature twice daily and record.

Well the last 4 days when i get home from work my temperature is any where between 94.5-95.5. which is about 3 degrees too cold. I am not coming in from a cold enviornment and yes-- i do feel cold. In the morning it will be up to around 98 degrees, which is also kinds of concerning that there is such a large spred between morning and night (typically your body temp doesnt change more than a degree throughout the day). He is checking my thyroid, and adrenal galds-- anything else you can think of that might be causing this and also has constipation as a symptom?

BTW- the thermometer is new, and reads normal when other people use it :-)

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

I think your doctor is on the right track checking your thyroid and adrenal glands. Congratulations on finding one who seems to know what they're doing! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with the previous poster. For most folks the morning reading should be the lowest and that is a large difference. I hope they figure it out for you soon.

one more mile Contributor
one more mile
Posted

I am 45 but even as a kid my mom would have the school nurse send me home if my temperature was normal. Its funny how some would argue with her, but moms know. My thyroid went bad when I was 40. but when It was removed. Some sleep problems and depression I had been having since I was 30 went away.

Cheese blocks me up.

Crayons574 Contributor
Crayons574
Posted
Hey guys,

I'm celiac 4 months, and not convinced thats my only problem. I have seem some improvments but not any drastic improvements since going gluten free. My major symtom is constipation, some weight loss, fatigue and a bunch of others. The Dr is running a bunch of tests on me and asked me to take my temperature twice daily and record.

Well the last 4 days when i get home from work my temperature is any where between 94.5-95.5. which is about 3 degrees too cold. I am not coming in from a cold enviornment and yes-- i do feel cold. In the morning it will be up to around 98 degrees, which is also kinds of concerning that there is such a large spred between morning and night (typically your body temp doesnt change more than a degree throughout the day). He is checking my thyroid, and adrenal galds-- anything else you can think of that might be causing this and also has constipation as a symptom?

BTW- the thermometer is new, and reads normal when other people use it :-)

Thanks!

Hi there, a low thyroid (Hypothyroidism) can cause constipation and low body temperature. Celiac and thyroid problems often go hand in hand. So, it is good you are getting both your thyroid and your adrenal glands tested. Although, if your thyroid was low, it would not cause you to lose weight, like you mentioned, but will cause fatigue, constipation, low body temperature, feeling of being cold all the time, etc. Best of luck!

kellylynn Rookie
kellylynn
Posted

I was running temperatures lower at night than in the morning, sometimes as low as 94.9. I was put on Thyroid medication for low T3, but didn't start seeing temps that got above 97.0, until I went gluten-free. I still can't really get above 97.5 though.

Weight loss is actually a symptom of hyperthyroid though.

gabby Enthusiast
gabby
Posted

I had similar problems and eventually tracked it down to dairy. Along with your symptoms, I also get slightly purplish circles under my eyes plus an over-all general feeling of not feeling so great. If I stay away from dairy, the symptoms all go away.

Hope that helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Kids Folks Apprentice
The Kids Folks
Posted

Hi- Sorry, not sure about the temp, but if you are constipated watch if you are adding fiber to your diet. Benefiber contains wheat! We found this out with our son who has/had chronic constipation and wheat/gluten intolerance.

Good luck on figuring it out. And congrat's on finding a doctor who is willing to help solve the mystery!

wschmucks Contributor
wschmucks
Posted
  • Author

Thanks for the replies guys. I was vegan when this all started so I know it cant be dairy, and am currently on the SCD which limits a lot of fiber, and starch. I am prayyyying something comes up in my test results tomorrow. Yes-- my Dr is great, if anyone is in the San Francisco area please let me know and I will recommend you.

num1habsfan Rising Star
num1habsfan
Posted

I also agree with the thyroid thing. I had extremely low results for thyroid, and was always frozen and had that brainfog effect, major fatigue, etc. Since then I've been on Synthroid for the Hypothyroidism and it has been a big help! Let us know if you get it figured out =)

eringopaint Newbie
eringopaint
Posted

Glad to hear your Dr is checking your thyroid. I have hypothyroidism as a result of the celiac disease, and the low thyroid causes low body temps, fatigue, constipation, dry skin, spacey-ness, etc. Weight loss could be due to the celiac since weight loss is not associated with low thyroid.

If it is low thyroid work with your Dr to find the right level of synthroid... sometimes takes some tweaking to get it right.

Good luck - and let us know what happens.

erin

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    2. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    3. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    4. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
    5. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.