Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone's Reaction To Gluten Changed Over Time?


2ofus2kids2dogs

Recommended Posts

2ofus2kids2dogs Apprentice

Hi everyone. I have been gluten-free for 2-1/2 years. Since being off gluten, I have had very distinctive reactions when I have accidentally ingested gluten. At first, it would happen almost exactly 12 hours from ingestion. I would have severe stomach pain for 6 hours, with severe nausea and some vomiting. At the end of the 6 hours, it was over and done. I would feel a little strange for a few days afterwards. Then, about 6 months ago, it changed to 24 hours after ingestion of gluten accidentally. (Every time I have gotten gluttened has been from eating out or eating at someone elses house). But, the symptoms were still the same.

Over the last 3-4 weeks, I have been havign some stomach issues. Off and on mild stomach pain and frequent bowel movements, but not diarrhea and poor appetite. It dawned on me today that I have eaten out 4 times in the past month or so, eaten at church once and eaten at a friend's house once, and have not been gluttened. Then, I started wondering if these "different" digestive symptoms were actually gluten reactions.

Has this happened to anyone else? Have you had certain symptoms for a period of time and then had your reaction change to something else?

Thanks for your input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Melissa,

I am almost three years in as well and I think this is happening to me, too, although I'm not certain and I'm too terrified of gluten to deliberately ingest it and test my theory. Others will post but I think I've read others remarking on the same thing.

lisa

ang1e0251 Contributor

It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

2ofus2kids2dogs Apprentice
It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

Thanks to you both for posting. I know what you mean about being too scared to ingest it on purpose. You know, these recent symptoms do remind me of what I was feeling before diagnosis. Although, it was all the time, because I was eating gluten all the time.

I appreciate your responses. I really do think that is what is going on. I ate out late Sunday afternoon and my symptoms started about 12 hours later. Yesterday, I just felt off all day and my stomach was a mess. Today, though, I feel pretty much back to normal. This has happened 3-4 times over the past month, but always just for a short period of time and no one else in my family has had any stomach symptoms. I think I'm going to try to start recording when it happens and see if I can find a pattern.

Thanks for your help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Inconclusive results

    2. - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Russ H replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,435
    • Most Online (within 30 mins)
      7,748

    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
    • deanna1ynne
      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
    • cristiana
      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
    • Scott Adams
      In the USA only wheat-based breads are fortified with certain vitamins, but not gluten-free breads, thus we typically encourage celiacs to take multivitamin supplements.
    • Russ H
      For people who can tolerate oats, Marks and Spencers sell a nice loaf:   https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.