Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone's Reaction To Gluten Changed Over Time?


2ofus2kids2dogs

Recommended Posts

2ofus2kids2dogs Apprentice

Hi everyone. I have been gluten-free for 2-1/2 years. Since being off gluten, I have had very distinctive reactions when I have accidentally ingested gluten. At first, it would happen almost exactly 12 hours from ingestion. I would have severe stomach pain for 6 hours, with severe nausea and some vomiting. At the end of the 6 hours, it was over and done. I would feel a little strange for a few days afterwards. Then, about 6 months ago, it changed to 24 hours after ingestion of gluten accidentally. (Every time I have gotten gluttened has been from eating out or eating at someone elses house). But, the symptoms were still the same.

Over the last 3-4 weeks, I have been havign some stomach issues. Off and on mild stomach pain and frequent bowel movements, but not diarrhea and poor appetite. It dawned on me today that I have eaten out 4 times in the past month or so, eaten at church once and eaten at a friend's house once, and have not been gluttened. Then, I started wondering if these "different" digestive symptoms were actually gluten reactions.

Has this happened to anyone else? Have you had certain symptoms for a period of time and then had your reaction change to something else?

Thanks for your input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Melissa,

I am almost three years in as well and I think this is happening to me, too, although I'm not certain and I'm too terrified of gluten to deliberately ingest it and test my theory. Others will post but I think I've read others remarking on the same thing.

lisa

ang1e0251 Contributor

It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

2ofus2kids2dogs Apprentice
It makes sense to me that as your intestine heals it's reaction will also be some different. When you started to react back before you were sick enough to be dx'd, maybe it was like this.

Thanks to you both for posting. I know what you mean about being too scared to ingest it on purpose. You know, these recent symptoms do remind me of what I was feeling before diagnosis. Although, it was all the time, because I was eating gluten all the time.

I appreciate your responses. I really do think that is what is going on. I ate out late Sunday afternoon and my symptoms started about 12 hours later. Yesterday, I just felt off all day and my stomach was a mess. Today, though, I feel pretty much back to normal. This has happened 3-4 times over the past month, but always just for a short period of time and no one else in my family has had any stomach symptoms. I think I'm going to try to start recording when it happens and see if I can find a pattern.

Thanks for your help.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. 0

      Celiac Friendly Sports Camps - Academy Camps - Virtual Open House

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.