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- Jmartes71 commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease4Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)
Thankyou I did reach out to a dietitian from this website and since popular there's a bit of a wait at first, My appointment I believe is in June on zoom.Going in to see pcp about medication im having a reaction from, told neurologist and she said its a common affect so need to ck and see if thsts through case this afternoon. This nightmare could easily been...- 1
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- Scott Adams commented on Scott Adams's article in Product Labeling Regulations2
FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease
You’re raising a very real and very well-documented problem, and you’re absolutely right to be frustrated. Medication labeling is a major blind spot for people with celiac disease, because unlike food, drug manufacturers are not required to clearly disclose the source of binders, fillers, or excipients—even when they may be derived from wheat. That puts ...- celiac disease
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By Wheatwacked · Posted
Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks. Even at 8000 I felt no noticeable difference. Then after a few days at 10000 it hit Whoa, sunshine in a bottle. celiac disease causes malabsorption of dietary D and you've poor UV access. It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml. Another two years to get to 80. 70 to 100 ng/ml seems to be the body's natural upper homeostasis based on lifeguard studies. Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it. Monitor with PTH and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt. Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality. The RDA is 150 to 1100 mcg. In Japan the safe upper level is set at 3000 mcg. Start with one drop 50 mcg to test for adverse response and build up. I found 600 mcg (12 drops) a day is helping repair my body. Iodine is necessary to healing. 90% of daily iodine intake is excreted in urine. A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day. The thyroid TSH test will not show iodine deficiency unless it is really bad. -
By xxnonamexx · Posted
I don't know if I am getting sufficient Omega Threes. I read about phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks -
If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue. I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO. while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.
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By knitty kitty · Posted
@catnapt, Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract. They can stimulate IgG antibody production as your blood test shows. Even beans have lectins. You've simply eaten too many lectins and irritated your digestive tract. You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/ -
By knitty kitty · Posted
I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since. Tryptophan and Vitamin A help heal the intestines as well as improves skin health. I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset. So I'm healing the outside as well as the inside. I take one 1000 mg Tryptophan before bedtime. With the Thiamine HCl, take 100 mg to start. If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement. Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended. If you've been thiamine insufficient for a while, you do notice a big difference. It's like the start of a NASCAR race: Zoom, Zoom, turn it up! This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine. I took 1000 mg all at once without food. It kicked in beautifully, but I got a tummy ache, so take with food. I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing. So cool. You may feel worse for a couple days as your body adjusts to having sufficient thiamine. Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough. Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement. You can reach a plateau, so stay there for several days, then try bumping it up again. If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD. It's like being your own lab rat. LoL Yes, take one Benfotiamine at breakfast and one at lunch. Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well. I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals. You may want to add in some zinc. I take Thorne Zinc 30 mg at breakfast at the beginning of the meal. Are you getting sufficient Omega Threes? Our brains are made up mostly of fat. Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that. Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful. @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes. He's also had dramatic health improvement by supplementing thiamine. You're doing great! Thank you for sharing your journey with us. This path will smooth out. Keep going!
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