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Gluten Intolerance And Psoriasis


karangel

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karangel Newbie

Hi everyone, I am brand new to this site !

My husband has had severe psoriasis for 6 years now, and now it is slowly killing him.

He has tried almost every drug out there for it, and nothing seems to work, and he is bedridden, and getting weaker and weaker.

Frustrated with the medical profession, I began researching Celiac Disease and gluten intolerance,

and discovered that my hubby has many of the symptoms.

So, to make a long story short, I had a talk with him and he is willing to try anything at this point.

He is now on Day 10 of a gluten-free diet.

I am praying that this may be the answer.

I will post any interesting developments !


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mushroom Proficient
Hi everyone, I am brand new to this site !

My husband has had severe psoriasis for 6 years now, and now it is slowly killing him.

He has tried almost every drug out there for it, and nothing seems to work, and he is bedridden, and getting weaker and weaker.

Frustrated with the medical profession, I began researching Celiac Disease and gluten intolerance,

and discovered that my hubby has many of the symptoms.

So, to make a long story short, I had a talk with him and he is willing to try anything at this point.

He is now on Day 10 of a gluten-free diet.

I am praying that this may be the answer.

I will post any interesting developments !

Hi, Karangel, and welcome to the forum.

I do so feel for your husband, psoriasis is a miserable disease. Does he have it alone or in combination with rheumatoid arthritis? Has he seen a rheumatologist, since this is an autoimmune disease as you seem to be aware? I tried all the standard medications and nothing, including I am sorry to say a gluten free diet, ever worked for my psoriasis until I was put on a TNF inhibitor (Humira, but there are others). If he hasn't been this route it is worth trying. You will see my history in my signature block. There are others here who have had their psoriasis improve with a gluten free diet, I believe. I hope your husband is one of those. Please keep us informed.

Jestgar Rising Star

Hi Karangel

My psoriasis didn't respond to gluten-free, but it did respond to corn free. I did some reading on the internet, and it seems that for some people, food is a trigger, for others, not.

The only way to find out is by eliminating foods.

Good luck. I hope you find something that helps.

karangel Newbie
Hi, Karangel, and welcome to the forum.

I do so feel for your husband, psoriasis is a miserable disease. Does he have it alone or in combination with rheumatoid arthritis? Has he seen a rheumatologist, since this is an autoimmune disease as you seem to be aware? I tried all the standard medications and nothing, including I am sorry to say a gluten free diet, ever worked for my psoriasis until I was put on a TNF inhibitor (Humira, but there are others). If he hasn't been this route it is worth trying. You will see my history in my signature block. There are others here who have had their psoriasis improve with a gluten free diet, I believe. I hope your husband is one of those. Please keep us informed.

Hi, and thanks for your reply ! My husband is currently on Humira, since May/09. We're not seeing any big improvement yet, but perhaps in time . And yes, he has psoriatic arthritis as well. He has been unable to see a Rheumy so far, because of the shortage here of them. He does have a good Dermatologist however, and will be seeing him this coming week, so I am anxious to hear what he has to say.

karangel Newbie
Hi Karangel

My psoriasis didn't respond to gluten-free, but it did respond to corn free. I did some reading on the internet, and it seems that for some people, food is a trigger, for others, not.

The only way to find out is by eliminating foods.

Good luck. I hope you find something that helps.

Thanks Jestgar,

Yes, it appears that for some people, some foods are triggers. The hard part is figuring out which ones !! That's why we are trying gluten-free, but as I understand, it may take months before we even notice a difference, right ??

mushroom Proficient
Hi, and thanks for your reply ! My husband is currently on Humira, since May/09. We're not seeing any big improvement yet, but perhaps in time . And yes, he has psoriatic arthritis as well. He has been unable to see a Rheumy so far, because of the shortage here of them. He does have a good Dermatologist however, and will be seeing him this coming week, so I am anxious to hear what he has to say.

It took several months for the Humira to have an effect on my psoriasis. My arthritis improved almost immediately, but it was three to four months before I noticed an improvement in my psoriasis. I still have some on my heels which has been there for 18 months which is just starting to go away, so you do have to be patient. Also, I have had to stop the Humira a couple of times because of secondary infections and once to promote healing on a wound. I found the creams, ointments, lotions, potions, to be pretty ineffective against psoriasis. They may prevent you from climbing the walls, but they don't make any of the lesions go away, in my experience. Still, I guess keeping you off the walls counts for something :lol:

YoloGx Rookie

Hi Karangel,

I noticed you just added me as a friend. Good to meet you so to speak! I coulnd't send you a personal note however due to your not having chosen that feature. You might want to tweak it sometime. So am sending my message through this thread.

I checked out your posts and see your husband has psoriasis. What worked for me ultimately besides going entirely gluten free (soaps, supplements, everything) has been to go on a grain free diet similar to a specific carbohydrate diet. I eat a lot of summer and winter squash instead of grains for carbohydrates. Yams and sweet potatoes seem to be too sweet plus I also have trouble tolerating potatoes. I also stay off anything that stimulates my immune system like coffee or caffeine tea or chocolate. I use carob with stevia instead if I want something chocolaty.

This new rather radical diet really helped with the last bit of weird skin though I still have a little in my ears. That however seems to be going away and stays away as long as I stay off fructose or any other type of sugars as well. The only fruit I tolerate are lemons which I make into lemon aide with stevia powder. The smallest bit of fruit or other sugars seems to set it off. Seems I still am combating candida overgrowth and this new diet doesn't feed it. I feel so much younger and better as a result...plus my skin looks great! Hope this helps!

Detox tea also helps like dandelion or dandelion caps on occasion to clean out the liver which in turn affects the skin.

Bea


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txplowgirl Enthusiast

Karangel,

Check out the macobiotic diet, kind of like gluten free but a little differnt. I had good friend who had what your husband has about as bad if not worse, She tried gluten free but didn't quite help. She seen improvement in 4 days. By two weeks she was out of bed after 1 month she was able to go swimming. Her skin condition completely disappeard within that month. Hope this helps Vicky

Hi everyone, I am brand new to this site !

My husband has had severe psoriasis for 6 years now, and now it is slowly killing him.

He has tried almost every drug out there for it, and nothing seems to work, and he is bedridden, and getting weaker and weaker.

Frustrated with the medical profession, I began researching Celiac Disease and gluten intolerance,

and discovered that my hubby has many of the symptoms.

So, to make a long story short, I had a talk with him and he is willing to try anything at this point.

He is now on Day 10 of a gluten-free diet.

I am praying that this may be the answer.

I will post any interesting developments !

nasalady Contributor

Hi Karangel,

I saw that you added me as a friend, so I've reciprocated! :)

My husband is also having serious skin issues (dermatitis herpetiformis plus possible psoriasis and eczema), although he is not nearly as ill as your hubby. I'm sorry to hear that your husband has suffered through so much!

We are all gluten free now, and my husband is slowly getting better. We've heard that it can take up to two years for all issues to resolve themselves on the gluten free diet.

I will keep you both in my prayers!

JoAnn

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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