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How To Cope With The Stomach And Intestinal Pain.


SergeTrigger

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SergeTrigger Newbie

Hello,

I have been recently diagnosed with Celiac's Disease, before I went to get medical help my stomach and intestines really hurt, they use to make weird draining sounds and my stomach made wave like motions. I couldnt absorb anything and I would vomit everyday because of the pain. My small intestines were inflamed and constricted in 100's of places. After spending a week in the hospital I am now able to eat gluten-free foods. But Im always so tired and I cant do my school work. Im a college student. My intestines still hurt even when easy foods pass thru it. Does anyone have any good tips on getting rid of this pain fast. I fell so behind in my work :[.


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YoloGx Rookie

Recently I stumbled upon the specific carbohydrate diet (scd). It really might help you to heal more quickly. It is making a huge dif. for me. Its particularly good for someone in a crisis such as yourself.

Basically it means going off all grains and anything mucilaginous as well as complex carbohydrates and sugars. The good news is that with home made 24 hour yogurt and/or cabbage your gut gets populated by much needed microorganisms--esp. acidophilus in a form that is easy to ingest. Its important apparently to also avoid FOS and Bifidus--which you often get with pro-biotic capsules.

This diet is more strict than just the gluten free diet, but if you are in pain it could quickly reverse your condition; as a result you could actually end up having a larger compliment of things to eat without adverse effect. For instance I couldn't eat any fruit previous to this scd diet but now can with relative abandon. Ditto with certain cheeses as well as honey. Sugar however is still a no no since its too complex molecularly for me and others like me to digest very well at all.

You may or may not need to stay on a diet such as this for a while, but in the meantime it could really help.

You can look it up on the Internet, and/or get the book: Elaine Gottschall's "Stop the Vicious Cycle." There is a scd thread here on celiac.com originally started by Ali. You might want to look it up!

ang1e0251 Contributor

That's really good advice. I was still having intestinal pain until I really restricted the alternate grains. I was surprised how much better I felt. Since you've had more serious problems than I, the SCD might be a good way for you to get everything calmed down. Cabbage really is very good for digestion, I used to eat a small amount of sauerkraut every day to help. Of course, it didn't completely work as I was still eating gluten.

goatmilkpower Newbie

Hi,

My heart really goes out to you. I too am a college student and have really struggled these past few years to get through school. I went on an elimination diet that's similar to the SCD a few months ago and am truly feeling a whole lot better than I was, if not 100% yet. What's been best to relieve the pain for me has been a hot water bottle over my tummy- it helps move everything along and sort of dull the hurting. I really hope you start to feel better soon, I know how frustrating and difficult it can all be. Feel free to contact me with any other questions- I know it's especially hard to manage Celiac while a student- especially when most college students can be so carefree with health issues.

Best

Gfresh404 Enthusiast
Hello,

I have been recently diagnosed with Celiac's Disease, before I went to get medical help my stomach and intestines really hurt, they use to make weird draining sounds and my stomach made wave like motions. I couldnt absorb anything and I would vomit everyday because of the pain. My small intestines were inflamed and constricted in 100's of places. After spending a week in the hospital I am now able to eat gluten-free foods. But Im always so tired and I cant do my school work. Im a college student. My intestines still hurt even when easy foods pass thru it. Does anyone have any good tips on getting rid of this pain fast. I fell so behind in my work :[.

Man do I know exactly what you're going through. I missed nearly a month of classes because I did not know I was gluten intolerant (all the tests for celiac disease were coming up as negative). And this all happened to me freshmen year. It IS a lot to deal with, but it's certainly not impossible. For better or for worse I seem to be a pill popper or an herb junky if you will. I can't stop searching for that "one" pill that will cure me and just make the pain/fatigue go away. Well I can't say that I have found "the pill" but I have found a couple that are pretty darn close. First off, definitely get a good probiotic. I take Acidophilus Pearls by Enzymatic Therapy, they're cheap and am very pleased with them. Secondly, try to get a good multivitamin. If you can afford it, definitely spend the extra cash for a food based one. I take New Chapter's Every Man's One Daily. Food based vitamins are said to be more easily absorbed and assimilated than synthetic vitamins. Thirdly, consider taking some anti-inflammatory herbs. I just started taking slippery elm bark and it really helps to calm and sooth the intestines. Here is a short article on it:

Slippery elm has a soothing, calming effect on inflamed and damaged gut lining. It is used widely for a range of gastrointestinal disorders. This soothing action can be attributed to its antioxidant action in the gut which has been proven in a number of clinical studies, some on inflammatory bowel disease patients where severe inflammation is present12,13. In addition, slippery elm provides mucilage which coats and protects the intestinal lining from toxins and pathogenic organisms.

Taken from: Open Original Shared Link

Aloe, Milk Thistle, Deglycyrrhizinated Licorice, and Echinacea are also very powerful, calming, and soothing anti-inflammatories that you could try.

Lastly, I would recommend cutting out all grains for a while. The only grain I would even try to consume is white rice. That is still the only grain I am eating and I have been gluten free for almost 9 months. Try to get most of your carbs from fruits and vegetables, I eat a lot of potatoes. I'd also recommend staying away from any type on insoluble fiber, this can cause the intestines to spasm since it technically is just a very rough laxative. (Slippery elm actually does contain insoluble fiber but it does not seem to bother me that much.)

I would have also told you to try the SCD but when your in college it is nearly impossible imo. You just do not want to put that much effort into eating.

You could also try Glutamine, but definitely do your own research and form your own opinion about its safety. It has caused some strange side effects in myself.

For now, I would try to stick with the top four recommendations. Feel free to PM me any further questions.

I know it is tough but things will only get better in time, just keep reminding yourself of that fact. Good luck!

YoloGx Rookie

I agree with GFResh--try the slippery elm, marshmallow root and probiotics first, however if the herbs etc. don't work, or don't work enough, then consider going off grains, and if that isn't enough try the SCD. No matter what however I would also suggest making your own 24 hour home made yogurt and/or fermented cabbage if you can. The probiotics from home made fermented foods like that seem to be the best.

blueshift Apprentice
Hello,

I have been recently diagnosed with Celiac's Disease, before I went to get medical help my stomach and intestines really hurt, they use to make weird draining sounds and my stomach made wave like motions. I couldnt absorb anything and I would vomit everyday because of the pain. My small intestines were inflamed and constricted in 100's of places. After spending a week in the hospital I am now able to eat gluten-free foods. But Im always so tired and I cant do my school work. Im a college student. My intestines still hurt even when easy foods pass thru it. Does anyone have any good tips on getting rid of this pain fast. I fell so behind in my work :[.

It depends upon what you are eating for a gluten-free diet. Everyone makes mistakes at first and I had to realize that I have to control my own cooking. No energy implies that your food is too much processed although some of that isn't all bad.

Do you get constipation or diarrea? That can make a big difference in what you eat. I have found that adding flax meal and flax seed to my diet is of great help. I get constipation die to two bowel obstruction surgeries leaving scar tissue thoughout my colon. If I had diarrea I would add something like bananas and honey to the diet to slow things down. I have found that cooking vegetables properly is of great help. I stir fry hard vegetables like cauliflower (cut into slices like a loaf of bread)

in olive oil and cover it, uncovering only to stir, for five minutes before adding zucchini for the last five minutes. You want to stir/steam it.

When I eat the cauliflower raw with zucchini I add Daddy Sam's Slop It On Barbeque Sawce. It tastes better than any sauce on the market and has no fat but enough sugar to slow down the rumbles. I eat a lot of East Indian food because a lot of it has no gluten or wheat. Throw away any prejudices you might have. The number of cuisines in East India that have no curry exceeds the number of days in your life multiplied by 3. Many people there make it a goal to go 63 years without eating the same meal twice. Tandoor chicken has everything backed off the map and the tecture of their potatoes and bell pepper dishes made me ask them about cooking techniques.

My energy level is just great and yours will be as well when you experiment on your own. Your body is not the same as everyone's on this message board. Good luck!


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ben-s Newbie

there are a number of alternatives outside of the commercial market with medicines, vitamins etc, with herbs, teas etc, that i am only beginning to look into myself

this thread is a good source for me just as much as the original poster, but i can tell you that even plain peppermint tea off the shelf (as long as it doesn't have any additives, flavorings, colorings etc) gives me great relief for stomach comfort

only because it wasn't mentioned in this thread, Ginseng Tea is another option to consider which has a number of different uses for headaches, digestion, fatigue, athritis relief, asthma relief, reducing the effect of Crohn's, stomach ulcers and others

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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