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Are These Celiac Symptoms?


Mirt

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Mirt Newbie

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?


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nu-to-no-glu Apprentice
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Yes, definitely sounds like it could be celiac, especially with your daughter having the same condition. I have both types of reactions...sometimes instant and sometimes within hours or days. If you search around on here, you'll see that everyone's reactions to gluten are very different and unique, even within families. I hope you find health and answers :)

runningcrazy Contributor
My daughter, age 22, was diagnosed with Dermatitis Herpetiformis :CELIAC CAN RUN IN A FAMILY nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, joint pain is a common symptomas well as stomach pain and "queasiness" after eating wheat products.this as well Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.gas is common

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.diarrhea is very common

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.vitamin deficiencys are very common among celiacs

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

Everyone is different, although im not confirmed celiac, i feel better of wheat and dairy.

My main problem was constipation. I was losing weight, about 20 lbs under weight(i am 13, 5'4.5, and i got down to 80lbs) I was having stomach pains, and low iron and daily headaches

Other people have diarrhea, weight gain, joint pain, some people have no symptoms at al! But you definately fit in with closer to the "standard" symptoms with diarrhea and joint pain. Gas and stomach pain as well. Vitamin D deficiency,is also very common.

redsidekick Apprentice

I think it would be worth it getting the celiac blood work. What you described (stomach issues after eating wheat) were the beginning of the symptoms for me. I didnt think anything of it until things got worse.

JillianLindsay Enthusiast

Everyone has very different symptoms, and you seem to be aware of the genetic component of celiac disease :) My DR recommended family members get tested at the silghtest symptom because celiac disease is highly genetic. Before making any diet changes it certainly doesn't hurt to get the blood test.

If I were to eat a pretzel I would probably have immediate stomach pains and upset stomach, then fatigue and brain fog for 3-4 days following.

Vitamin deficiency is also a symptom and it's worth getting checked out because of the health risks related to vitamin deficiencies.

Good luck,

Jillian

My daughter, age 22, was diagnosed with Dermatitis Herpetiformis nearly two years ago. Recently, I've begun to notice a significant amount of knee & elbow joint pain, as well as stomach pain and "queasiness" after eating wheat products. Earlier this week I thought I had a stomach bug, so I was eating primarily crackers and toast to go easy on my stomach, and they seemed to make the problem worse and I subsequently experienced amazing amounts of gas.

As a test, I ate no gluten for a day, then ate some pretzels that evening. I felt better until the pretzels, and within 15 minutes I had major diarrhea along with stomach pain and queasiness again.

I was also recently diagnosed with a significant Vitamin D deficiency even though I take twice the RDA daily.

I am trying to determine if these symptoms are indicative of Celiac disease. I talked with my daughter, and she does not have an immediate reaction to gluten intake like I seem to have had, so I am confused. Can anyone offer any advice on this?

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    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
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      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
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