Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exhausted After Gluten?


tkm831

Recommended Posts

tkm831 Rookie

I was wondering if anyone experiences sever exhaustion after ingesting gluten? It seems like within a half an hour or so from the time I ate I can barely keep my eyes open. I don't usually intentionally eat something with gluten but the one time recently I did this happened. So when this happened after eating other meals that I "thought" were gluten free it got me thinking. I don't have the "typical" symptoms so I thought this might be a telltale sign for me to know when I have accidentally ingested it. Any help would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JillianLindsay Enthusiast

H yes! Fatigue is my absolute worst glutened symptom. My GI symptoms aren't too bad, but the fatigue is just debilitating. I feel like I'm trying to wade through water or have weights attached to me, my body just feels so heavy.

I was wondering if anyone experiences sever exhaustion after ingesting gluten? It seems like within a half an hour or so from the time I ate I can barely keep my eyes open. I don't usually intentionally eat something with gluten but the one time recently I did this happened. So when this happened after eating other meals that I "thought" were gluten free it got me thinking. I don't have the "typical" symptoms so I thought this might be a telltale sign for me to know when I have accidentally ingested it. Any help would be appreciated.
tkm831 Rookie

Does it happen to you shortly after eating it like me? Thank you so much for you response it really helps to know this is not all in my head and now I can be even more careful.

hannahp57 Contributor

i get the fatigue too! its starts about hlaf an hour to an hour after and lasts for DAYS. the lest time i got glutened it was on a monday...and i started working that friday and my head was still foggy from exhaustion. you definitely are not alone!

Ahorsesoul Enthusiast

Very common side effect that is often overlooked as pertaining to eating gluten.

jerseyangel Proficient

Yes--fatigue is a common reaction. Everyone's reactions and reaction times are different--I tend to feel absolutely exhausted the next day and for another day or two after accidental cross contamination. My reflexes are slower, and I'm a bit more clumsy.

ravenwoodglass Mentor

Me too, unfortunately for me it continues for up to three weeks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



amandabear20 Rookie

Fatigue/exhaustion is something i get almost immediately also. It lasts for 3 to 5 days. All this week I've been so tired and sleeping in really late when im normally up by 9:30, 10 at the latest. Monday I was glutened, and Im just now starting to feel normal again, still moody though. but the exhaustion is getting better. Waves of nausea still come and go. Im just glad I didn't get the sever symptoms. Hope it gets better for you!

NorthernElf Enthusiast

Usually the extreme fatigue is the first sign of glutening for me too. Within 15-30 minutes of eating something I shouldn't have I pretty much just want to curl up in a ball and sleep - and want everyone to leave me alone. I get very miserable !! Often a headache comes in as well, and then the stomach cramps. There have been times when I don't realize I glutened myself until hours afterwards - then I look back and realize ugh ! I think it's stupid I feel so bad and don't make the connection ! That's when I start looking at ingredients or brands on the internet to find the culprit...

I live a very active lifestyle & that seems to help pull me out of it. It doesn't last for days for me, usually just hours or until the next day, where coffee and a bit of activity help to snap me out of it. The stomach issues definitely last longer, so can the headaches. Generally, if I find myself needing tylenol and it doesn't have much effect I KNOW I got glutened. Unfortunately, only advil can really kill those headaches...for a couple of hours...but its pretty hard on the stomach too so I usually am stuck with tylenol and watch the clock for the next dose !

linuxprincess Rookie

I get the fatigue, but it usually comes within the next few days for me. I have a frantic rash for two days that subsides into the exhaustion and inability to stay out of bed. haha

I think most people have a slight form of this they refer to as 'brain fog' when they are glutened. Just like all they varied symptoms of Celiac's, some individuals have a more severe reaction than others, like yourself.

angieInCA Apprentice

fatigue and brain fog are biggies for me as well, along with deep muscle pain, shooting pain in arms and tingling and itching (DH). Starts within an hour and can last 3 or 4 days for me.

brigala Explorer
fatigue and brain fog are biggies for me as well, along with deep muscle pain, shooting pain

Me too. You can find a list of my pre-gluten-free diagnoses in my sig, and the WORST of it was the fatigue.

My first symptoms of accidental gluten are GI-based, severely exacerbated by dairy intake. If I know I've been slightly glutened once and can stay off dairy for a week or so, I can sometimes avoid acute symptoms all together; but that only goes so far.

A couple weeks ago my naturopath prescribed two supplements to help with my asthma. She read the back of one bottle out loud to me to make sure it was OK; I stupidly assumed she had looked at both bottles. A simple oversight on her part, and sheer stupidity on mine. I was on both for a week, wondering why I was feeling lousy even while avoiding dairy, before I read the back of the other bottle. Of course, it contained wheat as a key ingredient. My best friend laughed at me when I told her, because she knows how compulsive I normally am about reading labels on everything.

Anyway, the fatigue and pain started just before I found out about the wheat in the supplement. That was after about a week of chronic glutening I didn't realize I was getting. I've been off the supplement for a week now and I'm not feeling much better yet. I don't know how long it's going to take me to recover. I slept until noon today and couldn't keep my eyes open after 4. Slept until 7, fixed dinner for the family, and I'm back in bed with the laptop now and it's barely 10. I thought I was having hot flashes, too, which would be a new symptom, but hubby just realized the AC had been turned off. ;-)

I haven't had more than occasional single-incident glutenings since I went gluten-free a couple years back, so this is new territory for me as far as recovery. :( Usually, one glutening, one major bout of D with cramps, and if I avoid dairy for a week I'm ok if I can avoid a repeat.

For what it's worth, my sister says her major gluten symptoms are brain fog. In hindsight, I suspect gluten may have been at the root of her severe learning disabilities; if she'd been diagnosed as a young child she might even be normal. But there's no way to get back 40 years lost to chronic brain fog. :(

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.