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Soy/gluten Intolerant People, I Have A Question


RacerRex9727

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RacerRex9727 Rookie

For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?


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txplowgirl Enthusiast

I have a soy allergy and Yes, I get the same symptoms when I get glutened.

mushroom Proficient
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction presents as a bright red rash and extreme itching.

seashele2 Newbie

My soy and gluten reactions are similar, but different. My reactions to being glutened are usually delayed. My reaction to soy are more immediate, usually within the hour of consumption. As far as what the symptoms are for me, both exposures cause nausea, intestinal cramping and bloating, and usually diarrhea (more so with soy).

A gluten exposure will take the body (villi) weeks to recover from. For me, a soy reaction is usually cleared within 24 hours.

Michelle

Western Washington State

I am gluten/soy/dairy/beef-free

Daughter is gluten/corn/dairy-free

ravenwoodglass Mentor

My reactions to soy are much different than my reactions to gluten. Soy binds me up really bad but I don't get the same neuro effects and arthritic pain that I get from gluten. Soy also makes me feel like my intestines are swollen but doesn't give me the bloat and gas that I get from gluten. Gluten also makes my ataxia worse, makes my hair fall out and once I get D, about 3 days after contact, I then have 3 days of GI bleeding and pass clots. That doesn't happen with the soy. The soy reaction also passes fairly quickly with gluten I am sick for up to 3 weeks.

darlindeb25 Collaborator

Soy causes the symptoms I used to get with gluten...stomach cramping, diarrhea, and I am sick for at least 3 weeks...gluten now is mostly neurological symptoms, yet my tummy isn't right for 3 weeks to 4 months.

sylviaann Apprentice
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

You may be actually reacting to MSG (found in all soy products) and other foods (whole foods) that contain naturally occuring glutamates. I recently discovered this through researching for info and reviewing my food/medication/cosmetics diary. MSG and aspartate (artifiicial sweeteners) are both strong excitotoxins to the brain and can cause GI and neuro problems/symptoms. After almost three years of suffering from myoclonus, I have recently made this discovery. Gluten (gluten grains), Dairy, corn, and soy have the higest level of glutamic acid.

"Whole Foods" containing high levels (which triggered my myoclonus) include: Shrimp and shellfish, Parmesan cheese (and many cheeses), mushrooms, tomatoes, Boar's head deli meats, Boar's head hot dogs, many chicken broths that contain yeast extract, products containing hydrolyzed vegetable or soy proteins or hydrolyzed "anything". Most nuts (cashews are the worst), most beans (but not all), gelatin found in capsules, ice cream and some gluten-free flours...and commerically produced gluten-free bread! Most toothpastes and tooth whiteners contain artificial sweeteners. I reacted severely to Aquafresh White trays two weeks ago. Many cosmetic products also contain glutamates. I am currently investigating my Garnier hair color because I see one ingredient that could be a strong possibility. There are so many products containing hidden Glutamates but it is well worth considering as you may find a substantial improvement in symptoms if you make a "connection" with this.

Sylvia ann


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Jestgar Rising Star
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My gluten reactions are annoying, my soy reactions are more extreme.

ksymonds84 Enthusiast

Soy gets me faster than gluten with acne around my mouth and jaw line. I do recover within a day with soy but takes me a few days with gluten (fog and tiredness).

Korwyn Explorer
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

My soy reaction is worse and more immediate than my gluten reaction. For me soy even small amounts of soy trigger within about an hour stomach cramps, then within 3-4 hours anxiety and insomnia, and hot flashes. Larger amounts of soy trigger moderate myoclonus and panic attacks in addition. It takes me about 1 to 2 weeks to recover from soy reaction. The anxiety and insomnia are the last things to go.

no-more-muffins Apprentice

My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day.

My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.

bluejeangirl Contributor
For those of you that are soy and gluten intolerant (including Celiac disease) like me, I have a question. Does soy cause you to have reactions as severe as gluten reactions? Or are they just annoying and nowhere near as bad as getting a gluten reaction?

I have the same problems with soy as Sylvia Ann has. If you take foods high in glutamates like soy and then process it, the glutamates are freed. If your sensitive to MSG (many people are and don't know it) you'll react to soy. Free Glutamates causes neurons or receptor cells to fire sometimes to the point of death. We have alot of these cells lining our digestive tract, along our heart, and across the brain or BBB.

Processed soy will in turn give me headaches, stomach distress and at night I'll wake up because my heart is beating like crazy in my chest. Then insomnia will follow. Not fun.

Gail

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    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
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      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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