Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wahoo! :) :) :)


Emme999

Recommended Posts

Emme999 Enthusiast

Hey guess what?? There was a cancellation and now I get to have my endoscopy tomorrow morning rather than next Thursday! Wahoo!! Now I can get off gluten and be happy!!! Yay!!!

I just wanted to tell all of you this cool stuff :) I am so happy :D

I don't have to gluten binge anymore! I can start taking care of myself! Yay!!!

I love you guys!!!

- Michelle :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Yay...good luck! :D. We love you, too :lol:;)

KaitiUSA Enthusiast

That's awesome!!! Good luck and keep us all posted. We all love ya 2 :D

flagbabyds Collaborator

Good Luck! We love you muchly, and even if the test comes back negative, you know that you have to do gluten free anyway! :)

stef-the-kicking-cuty Enthusiast

Yipie! Good luck from me, too. We all love you! :lol:

Canadian Karen Community Regular

Me too! Good luck and let us know how it goes.......

Luv ya too! :D

Karen

Emme999 Enthusiast

Thank you all so much :)

Please send me healing/happy vibes around 8:45 a.m. mountain time ;) That's when I'll be having the procedure done and I will probably need them!

No wait! Don't send them too me until after about 9:30a.m. mountain time - we don't want to screw up the biopsy labs ;) Go ahead and send me nasty intestinal vibes earlier so that we can get a definitive diagnosis!

I talked to a gastroenterologist tonight and he said that (with my symptoms) he would be really surprised if my villi don't present celiac disease. I hope that he's right - just because I want this waiting game to end. That will absolutely suck if they tell me I don't have it after I am so sure that I do!

Those crazy villi. I wonder what's left of them..?

I will let you all know as soon as I find out!

You are wonderful, wonderful, wonderful people. I'm so glad I've had the chance to see that such fabulous people are out there :)

Wish me luck!

- Michelle :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Okay! Right now it's...about 5 your time, so I'll make sure not to think anything until about 11:30 ET... LOL...no good intestinal vibes before, though.

Good luck! Just not intestinal yet :lol:

Emme999 Enthusiast

Hi guys,

I am home and it went really well. Thanks for any positive vibes you may have sent me.

It was completely painless and effortless and now it's over and I can go gluten-free! Yay!

Life is wonderful :)

Now I am going to go and pass out in my bed. I'm so so so sleepy! -_-

Thank you again for all of the sweet thoughts you wrote and sent me. I love you all very much :)

- Michelle :wub:

mommida Enthusiast

I'm glad to know everything went well. Welcome to the gluten free club.

Laura

celiac3270 Collaborator

Congratulations :D. Now add to your signature: gluten-free since May 11, 2005! ;)

Emme999 Enthusiast

Good idea! Thanks celiac3270 ;)

Guest nini

glad to hear it went well and you are home and resting. I hope you start feeling better very soon!

egardner Newbie

Hey guys- how do I make my signature? On my posts, ya know, where it says how long I've been gluten-free? Sorry-I'm a little computer retarded. Thx- EG

KaitiUSA Enthusiast

Go up to my controls and then hit edit signature and type what you want :D

Canadian Karen Community Regular

Michelle,

So glad you are home and it is over with and now you can start a whole new phase of your life!

Get some rest now!

Karen

stef-the-kicking-cuty Enthusiast

Hi Michelle,

I'm glad it went so well, too :) . As soon as you get the results you have to tell us...

Emme999 Enthusiast

Hey I just found the outpatient papers that they sent home with my parents (nice that they told me about 'em, eh? <_< ) !

Findings:

- The examined esophagus was normal (yay!)

- The entire examined stomach was normal (yay!)

- Diffuse moderately erythematous and atrophic mucosa without active bleeding and with no stigmata of bleeding was found in the 2nd pare of the duodenum and in the 3rd part of the duodenum. Biopsies were taken with a cold forceps for histology.

Impression: Erythematous atrophic duodenopathy. Consistent with celiac sprue.

Recommendations: Await pathology results.

So, there we go - just waiting for the labs now.

- Michelle :wub:

celiac3270 Collaborator

Congratulations ;) sorta...I mean, while you'd be better off w/o celiac disease, at least this answers your questions :D

Emme999 Enthusiast

Thanks celiac3270 :)

Hey, I am having these really weird pains today. I feel like someone is pinching me *really hard* a little to the right of my belly button. Is this normal?

Am I gonna die??? :o

(If so, please sue the University of Utah hospital as fellow Celiac patients and use the money to get some research done)

(Then put lots of gluten-free flowers on my grave)

- Michelle :wub:

celiac3270 Collaborator

Waw, are you really scared? :( If so, contact a dr. You'll be fine and we're thinking of you ;)

plantime Contributor

Sorry, Michelle, I don't think you are going to die. I had the same kind of pains after my biopsy, I just figured it was because samples were "cut" out of my intestines. Try eating a soft, low-residue diet for a week. It helped me muchly to eat that way!

Emme999 Enthusiast

Nope I didn't die ;)

I think I must have some kind of special purpose in this life ... :wacko:

Thanks for caring ;)

- Michelle :wub:

Emme999 Enthusiast

Hey my doctor called me today to discuss the biopsy:

Him: "So, you were thinking that you had Celiac Sprue..?"

Me: Yes..

Him: "Well... You're right!"

Me: So how damaged are the villi?

Him: "They're flat."

So, anyway, he told me that his nurse will call me in the next couple of days to set up an appointment so that we can "talk about it for a long time" ;) Then he said, "But you probably already know a lot about it just from the internet, huh?"

I'm lucky I have such educated friends ;)

So - there we go. A definitive diagnosis. Not that I really questioned it, but now no one else can argue with me about it ;)

Thanks guys!!

- Michelle :wub:

ianm Apprentice

Now you can finally get on the road to good health.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.