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serenajane

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serenajane Apprentice
serenajane
Posted

Just found out today for sure that I have celiac sprue. any suggestions on how to find a way to ease into gluten free

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mommida Enthusiast
mommida
Posted

Cold turkey.

Clean out the kitchen of all the gluten and gluten contaminated stuff. i.e.peanut butter jar, jam, anything that has bread crumbs in it.

Don't go for any of the pre-made gluten free stuff at first. The taste and texture adjustment is easier after a few months. I like the gluten free pantry favorite sandwich bread mix. If you buy ready made bread toast or grill it.

Keep a food journal. It can help you track down hidden gluten or help you determine if you have any other food sensitivities or intolerances.

Find your favorite gluten fre snacks and junk food and keep your snacks on you at all times. It really sucks being hungry and having to hunt something gluten free down at first.

serenajane Apprentice
serenajane
Posted
  • Author

Cold turkey.

Clean out the kitchen of all the gluten and gluten contaminated stuff. i.e.peanut butter jar, jam, anything that has bread crumbs in it.

Don't go for any of the pre-made gluten free stuff at first. The taste and texture adjustment is easier after a few months. I like the gluten free pantry favorite sandwich bread mix. If you buy ready made bread toast or grill it.

Keep a food journal. It can help you track down hidden gluten or help you determine if you have any other food sensitivities or intolerances.

Find your favorite gluten fre snacks and junk food and keep your snacks on you at all times. It really sucks being hungry and having to hunt something gluten free down at first.

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

Nightingale8472 Rookie
Nightingale8472
Posted

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

I can't help you with the casseroles, and I know they say to stay away from the pre-packaged gluten free stuff, but I just have to recommend Pamela's cake mixes if you're having a sweets craving... better to find a good gluten-free treat than to lose your willpower and gluten yourself. I was totally craving cupcakes last night after wandering past one of those stupid cupcake specialty stores, and I went over to the Sprouts market and bought one of the Pamelas vanilla cake mixes. It was INCREDIBLE. So incredible that when I gave one to my dad he couldn't tell it was gluten-free. I couldn't tell it was gluten-free. It just tasted like CUPCAKE. I used the Duncan Hines frosting, since they confirm on their website that all their frosting is gluten-free. So yeah, this is one of the few gluten-free bready things that doesn't taste like a substitute (be very careful not to overcook or it gets overly chewy). Completely satisfied my cupcake craving. Take that, snooty specialty cupcake store!

Raleigh333 Newbie
Raleigh333
Posted

Hello,

Well welcome and congrats on your diagnosis. I was just officially diagnosed mid Jan. of this year after positive blood work results that and observable changes from my endoscopy last Friday. I feel like saying congrats just because of how many people don't know they have it. I was told I did not have it about 3 years ago after having positive blood work and a normal biopsy, so over the past few years i've been causing the damage and after getting a second opinion i'm finally told that yes, i do have Celiac's. It's difficult, and I ventured out to a restaurant today for the first time. I'm taking vitamins now and eating throughout the day and trying to eat more balanced meals. I try to plan my whole week of meals on the weekend and always try one or two more recipes at that time as well. I'm starting my own binder with the recipes that I do like from all of the recipe books.

Many recipe books have tables that show you how much of an alternate ingredient should be used in place of gluten ingredients. What type of ingredients are you looking for in the casserole? I have about 4 books I can look through to see the ingredients that are used. Xanthan or Guar gum are used a lot in what I see for use as thickeners in soups and sauces.

I'm a second year teacher and tutor after school twice a week. Mondays I bring all my food to school so it's not a bag every day that includes;-yogurt (not sure if i'm lactose intolerant yet-doesn't seem like it), certified gluten-free granola mix from whole foods, fresh salads for the beginning of the week and some frozen meals for the end of the week. Over the few weekends i've had i've made chicken cordon bleu, chili, veggie lasagna with rice lasagna...and i would freeze portions of that in containers and take them to school or have them for dinners as well. I've also enjoyed the 'Glutino' crackers, putting swiss or feta cheese with a tomato slice on top and broiling in the oven.

I hate the feeling of not knowing what to eat, and just in a month i've gotten much better at only taking 1 or 2 trips to the grocery store a week, and using the ingredients I buy in multiple recipes before they spoil...so I hope you develop your system and notice things getting easier as well. I made the 'monkey mix' that uses Chex cereal (may be good for the 5 year old-you can google "monkey mix' to see the recipe) and keep that in a sealed container if I need a quick snack. I'm not eating perfectly healthy, but I am eating more fruits and vegetables...and if having the snack to indulge in prevents me from tempting to cheat I feel like it's well worth it. Good luck! I'd love to share ideas.

Roda Rising Star
Roda
Posted

I was very hungry this morning looking high and low for anything gluten free to eat. It will take a while to get all the poison out of the cupboards but my husband is willing to do ths with me and my 5 year old son doesn't like much of anything already so adjusting him shouldn't be too crazy>

I need to find a cream soup recipe so i can make a few favorite casseroles. Any ideas?

I use health valley cream of mushroom, celerey and chicken. However they are not condensed so you may have to adjust the liquid.

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It looks like some of the labeling has changed since I bought it last. Call the company to be sure still. I'll send them an email and see what I can find out.

serenajane Apprentice
serenajane
Posted
  • Author

I use health valley cream of mushroom, celerey and chicken. However they are not condensed so you may have to adjust the liquid.

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

It looks like some of the labeling has changed since I bought it last. Call the company to be sure still. I'll send them an email and see what I can find out.

Thank you so much i usually add milk to thin the soups a bit any way and a little mayo will maybe thicken it if needed

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  • 2 weeks later...
GFreeMurphy Newbie
GFreeMurphy
Posted

I recently changed endocrinologists (diagnosed with hypothyroidism about 2 years ago) and had to go through many blood tests checking on vitamin deficiencies, thyroid levels, and other causes of my ongoing fatigue. When I went to my endocrinologist to go over my blood results, he notified me that I have high levels of anti-tissue transglutaminase antibodies and in result low levels of vitamin d and b-12. Now, I have a consultation with a doctor who's going to perform a endoscopy. Extremely nervous because I'm graduating high school in June and I don't know how the diet is going to fit in with college life. It will definitely be tough!

So, my question is, can anybody tell me about the procedure and what you went through?

Thanks a lot,

Murph

  • 1 year later...
relay Newbie
relay
Posted

I registered just to reply to you. I was on this site researching gluten free diet as I am trying it out to see if it will help me. Blood test is negative but doc says try the diet anyway.

Listen, don't sweat the endoscopy. No big deal at all. Worst part of it is the iv! Seriously. I have had it done four times over the last few years. The drugs they give you basically knock you out and before you know it you will wake up VERY comfortable in the recovery room. There is no pain or any discomfort at all.

As far as the diet goes, don't think that far in advance. You will get all worked up over it. Start with what you are going to eat today and tomorrow and work from there.

Good luck!

I recently changed endocrinologists (diagnosed with hypothyroidism about 2 years ago) and had to go through many blood tests checking on vitamin deficiencies, thyroid levels, and other causes of my ongoing fatigue. When I went to my endocrinologist to go over my blood results, he notified me that I have high levels of anti-tissue transglutaminase antibodies and in result low levels of vitamin d and b-12. Now, I have a consultation with a doctor who's going to perform a endoscopy. Extremely nervous because I'm graduating high school in June and I don't know how the diet is going to fit in with college life. It will definitely be tough!

So, my question is, can anybody tell me about the procedure and what you went through?

Thanks a lot,

Murph

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  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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