Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Depressed, Hungry, & Pain Back

NE Mom

Recommended Posts

NE Mom Apprentice
NE Mom
Posted

Dx'd with Fibro 2 years ago. Blood tests were negative for celiac. Positive results with diet.

I went gluten-free the week before Christmas. My brain fog was gone immediately and shortly thereafter the exhaustion and joint pain went away as well. I felt great and thought I was on the right path. This last week it seems like all the symptoms have returned. My legs have been killing me and my head feels foggy again. The last two days the fatigue has returned.

I've been really careful and can't figure out where I'm getting the gluten. I haven't changed my makeup or shampoo yet. Is it possible that they didn't bother me at first but now I'm getting more sensitive to any gluten?

I feel horrible again and now I'm depressed because I thought I found the answer. I've been to scared to do a full blown gluten challenge and now that I'm feeling bad I'm not sure I could base the negative results on gluten.

I'm trying to remove white sugar from my diet-could I be going through withdrawals from the sugar addiction?

I don't know what to do next? Any thoughts or helpful ideas??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lynayah Enthusiast
Lynayah
Posted

Dx'd with Fibro 2 years ago. Blood tests were negative for celiac. Positive results with diet.

I went gluten-free the week before Christmas. My brain fog was gone immediately and shortly thereafter the exhaustion and joint pain went away as well. I felt great and thought I was on the right path. This last week it seems like all the symptoms have returned. My legs have been killing me and my head feels foggy again. The last two days the fatigue has returned.

I've been really careful and can't figure out where I'm getting the gluten. I haven't changed my makeup or shampoo yet. Is it possible that they didn't bother me at first but now I'm getting more sensitive to any gluten?

I feel horrible again and now I'm depressed because I thought I found the answer. I've been to scared to do a full blown gluten challenge and now that I'm feeling bad I'm not sure I could base the negative results on gluten.

I'm trying to remove white sugar from my diet-could I be going through withdrawals from the sugar addiction?

I don't know what to do next? Any thoughts or helpful ideas??

Gluten is everywhere, and it takes some time to get to the other side of it. You are not alone.

When I get glutened, my pain is much the same as yours -- horrible.

I'm still in the processes, trying to figure it all out.

Things as simple as using a face cream that has gluten without knowing it, and then touching something with your fingers that goes into your mouth (for me it was a piece of banana), or putting your hands into your mouth (for me it was licking a finger to help turn a page), can cause a reaction.

For weeks, I was using the same can opener as my family -- wrong!

Licking an envelope can really cause damage (you probably already know this), but so can handling the glued area of an envelope and not washing your hands.

The list goes on and on and on, including a pet eating food with gluten . . . who then licks you.

Bottom line is to check everything. I know you know this already, and I knew it, too, but even though I knew it, it is amazing how easily things can happen.

At my work, we have a toaster in the kitchen. CRUMBS ARE EVERYWHERE. When I make something for myself, I clean the counter then put paper towel down on my work space.

This week, I watched as a co-worker moved my silverware off of the paper towel and onto the counter so she could make space for herself -- she didn't realize, of course, what she was doing.

If I had not been right there, I never would have known, and if I had gotten glutened, I would have blamed it on what I ate or goodness knows what else.

My favorite story to date: I was working a fundraiser, cutting pie for a bake sale table. I was careful to put on surgical gloves to keep myself gluten free. As a dear friend left the fundraiser, she blew me a kiss . . . and -- you guessed it -- I blew her a kiss back. GLUTENED!!!!! Augh.

It's CRAZY out there trying to manage it all. Really nuts, especially for those of us who are very sensitive. Hang in there.

jackay Enthusiast
jackay
Posted

You could be getting glutened but I wouldn't rule out the sugar withdrawal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748
    Jenny0384
    Newest Member
    Jenny0384
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      Tamale ingredients

      By Scott Adams · Posted

      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Headaches / Migraines and Hypoglycaemia

      By Sarah Grace · Posted

      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.