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Celiac Disease And Other Illnesses


twe0708

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twe0708 Community Regular

What major health issues have you been diagnosed with since being diagnosed with Celiac Disease?


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Lgood22573 Rookie

Hashimoto's disease (autoimmune thyroiditis) was my first, Celiac my second.

bluebonnet Explorer

hypothyroid first, celiac years later. :(

MamaMeagan Apprentice

Well I have not been officialy diagnosed. I had a stroke and a positive ANA test, but nothing found.

tarnalberry Community Regular

Since celiac?

Fibromyalgia/restless leg (and it wasn't just diagnosed after I went gluten free, it started after that).

Everything else - asthma, vulvar vestibulitis, chronic migraines, hypermobility - was before celiac, some long enough before that I am certain they are not related (and I'm actually sure that none of the others are related - for me - because the gluten free diet didn't change them in any way.

Reba32 Rookie

since celiac diagnosis, I've also been told I'm vitimin D deficient and have high cholesterol. Both easily manageable with diet and supplements. I'm quite certain the cholesterol was elevated because of the gluten challenge and will go back down to normal levels the longer I'm gluten free.

sandsurfgirl Collaborator

Hypothyroism

Asthma

Chronic sinusitis

Then celiac. Hoping the others will get better or go away now that I'm gluten free.


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jerseyangel Proficient

Microscopic colitis, endometriosis, adenomyosis, hypertension, TMJ, chronic allergic rhinitis.

GG-GFree Newbie

I have been healthy my entire life and started having stomach pains this August (2009). I went to my Primary care doctor who thought maybe it was gastritis and prescribed me protonix. But the stomach ache didnt clear up so my Doc sent me to a GI who tested for celiac disease. Blood work came back postive, so an endoscopy was done which appeared normal but my biopsies came back postive for Celiac Disease [/b]and Eosinophilic Esophagits[/b]. This December I also developed Raynauds[/b]-which is a symptom associated with autoimmune disorders-when I am really cold my toes turn pale and go numb untill I warm them up. I'm only 26 and went from having nothing wrong with me to having three chronic conditons. My doctors have told me that often once someone develops an autoimune disorder they are more prone to develop another. So, know I am nervous that I might develop another condition in the future. While this is frustrating I do find myself fortunate that for the most part I actually feel pretty good, and am glad that my conditoins can be controlled though diet changes so I don't need to take long term medications.

Chrisco Apprentice

Endometriosis

Adenomyosis

Chronic Gastritis

Restless Leg Syndrome

Gall Bladder Disease (Had Gallbladder Removed)

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    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
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