Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Take D3 In Large Doses?

kareng

By kareng
in Related Issues & Disorders

Recommended Posts

kareng Grand Master
kareng
Posted

Hope this is the right place to put this. My vitamin D is really low. What a surprise :) Has anyone taking the D3 50,000 units once a week? It didn't come with any info on side effects or proper way to take. Did find out its gluten-free. thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I take one Rx vitamin D2 50,0000 iu capsule weekly and have for a little over a year. My endocrinologist prescribed it after my labs showed I was deficient. My gyn doctor is very gung ho on everyone taking vitamin D and suggested I stay on it year round. My last vitamin D test showed it was 54. He wants it no lower than 50 but 70 would be ideal for him. Most literature suggests that D3 is better absorbed and has been an interest of heated debate since some evidence suggested that D2 was equivilant to D3. I'm not here to debate this at all. I am doing well on my Rx and it is more cost effective for me. On the other hand my husband is taking Nature Made vitamin D3 4,000 iu/day. He has not had his level checked, but I suggested it to him since he seems to get moody and depressed in the winter. I think it has had a very positive effect for him.

kareng Grand Master
kareng
Posted
  • Author

I take rx D2 50,0000 iu's weekly and have for a little over a year. My endocrinologist prescribed it after my labs showed I was deficient. My gyn doctor is very gung ho on everyone taking vitamin D and suggested I stay on it year round. My last vitamin D test showed it was 54. He wants it no lower than 50 but 70 would be ideal for him. Most literature suggests that D3 is better absorbed and has been an interest of heated debate since some evidence suggested that D2 was equivilant to D3. I'm not here to debate this at all. I am doing well on my rx and it is more cost effective for me. On the other hand my husband is taking Nature Made vitamin D3 4,000 iu/day. He has not had his level checked, but I suggested it to him since he seems to get moody and depressed in the winter. I think it has had a very positive effect for him.

Do you need to take with food? Without food? I got no instructions. Am currently taking big doses of iron 2 times a day that have lots of instructions & restrictions. Take 6 hours of my day - can't eat or drink other than water 1 hour before & 2 after.

Any side effects? Thanks

Roda Rising Star
Roda
Posted

Do you need to take with food? Without food? I got no instructions. Am currently taking big doses of iron 2 times a day that have lots of instructions & restrictions. Take 6 hours of my day - can't eat or drink other than water 1 hour before & 2 after.

Any side effects? Thanks

I take it usually anytime between morning and early afternoon. Tuesday is my day I take it. I have not noticed any adverse effects from it at all. About 6 weeks after starting it I noticed a great deal more energy and better moods including pms. I'm suposed to be taking two slowFe iron pills a day, but have not in several months. I have to really make sure I don't take it within a certain time frame from my thyroid meds and I take one of them twice a day. I work 3rd so I would need to take it when I am sleeping, and I'm not waking up for that. I am going to start taking it again on my days off since I alternate working 4 on/3 off one week and 3 on/4 off the next. At least it will be better than nothing.

mushroom Proficient
mushroom
Posted

I initially took it once a month (the 50,000) until my rheumatologist said I needed to take it once a week to fill the tank and another doc said the same. I took it for about three months once a week, and retest showed my tank was overflowing, so cut back to once a month with daily 2,000 IU. No side effects, no particular time I take it, but oh, what a ddfference!!

kareng Grand Master
kareng
Posted
  • Author

Thanks everyone. I guess Tuesdays will be my day too.

Wolicki Enthusiast
Wolicki
Posted

I took 50,000IU three times a week for 4 months. My levels are normal now, and my secondary hyperparathyroidism is gone too :D Now I take 4000 IU daily.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kstarr Newbie
kstarr
Posted

My doctor suggested taking Vitamin D with Vitamin C for better absorption.

kareng Grand Master
kareng
Posted
  • Author

My doctor suggested taking Vitamin D with Vitamin C for better absorption.

Good thought as I need to make sure I get some for my iron, too. Do you think a margarita has enough vitamin C? ;)

georgie Enthusiast
georgie
Posted

I take 100,000IU once a month. On the full moon so I remember :lol: It brought my levels up nicely and they are about 80 now.

bluebonnet Explorer
bluebonnet
Posted

my mom took d3 at 50,000 3x week and now once a week. she felt better and noticed a major difference as time went on! she was very nervous about taking such a large step out dose but didn't have any problems at all.

celiacmom2 Rookie
celiacmom2
Posted

I am currently taking 5000IU as my levels were at 6 about 3 months ago, I take one a day per docs orders. I was afraid to take it at first because I was on Warfarin too...my doc didn't think it should interact. So my D levels are now at 52... he wants me between 25-70 according to what they told me on the phone.

I am also taking 1 to 2 irons(Solgars brand) a day and need to take probably 3 because my last tests last week said my iron didn't go up any (at 19). My absortion rate went from 5 to 4 and my hemoglobin went up from 9 to 11.6...so my doc was happy about my vitamin D level and hemoglobin and told me to take a vitamin C with the iron...or try a different one with vitamin C in it...try anything to make it go up. So I bought C crystals to add to my water(neat thing I found). You could also eat high vitamin C foods with it, just no milk type product.

What I have found because of my frustration with the iron levels not going up after reading quite a few sites is that iron binds with milk products, fiber, coffee has tannins that block it, colas also block it and teas have something in them too...oh and chocolate. I am wondering too if sugary products inhibit the absorption too. :( So I am trying to be free of all those blockers until my iron comes up. Hopefully this helps someone. :)

kimis Collaborator
kimis
Posted

my endo wants me to take 1000iu per day, but it hurt my insides. I wish I could take sups without any problems, but they always mess with me. My daughter and fiance can take anything without problems, they are so lucky!

jerseyangel Proficient
jerseyangel
Posted

my endo wants me to take 1000iu per day, but it hurt my insides. I wish I could take sups without any problems, but they always mess with me. My daughter and fiance can take anything without problems, they are so lucky!

My internist also told me to take 1000iu / day. I have terrible problems with most suppliments, but have had no issues with Kirkman Labs Hypoallergenic Vitamin D. I also take their Hypoallergenic Everyday Multi.

Open Original Shared Link

celiacmom2 Rookie
celiacmom2
Posted

I forgot that I came across an article about vitamin D3 and that it is fat soluble so I drank a little bit of milk with it or take it with my cereal in the mornings. So you need to take it with something that has fat in it.(As far as my understanding). I forgot to post this on my earlier post.

kareng Grand Master
kareng
Posted
  • Author

I am also taking 1 to 2 irons(Solgars brand) a day and need to take probably 3 because my last tests last week said my iron didn't go up any (at 19). My absortion rate went from 5 to 4 and my hemoglobin went up from 9 to 11.6...so my doc was happy about my vitamin D level and hemoglobin and told me to take a vitamin C with the iron...or try a different one with vitamin C in it...try anything to make it go up. So I bought C crystals to add to my water(neat thing I found). You could also eat high vitamin C foods with it, just no milk type product.

What I have found because of my frustration with the iron levels not going up after reading quite a few sites is that iron binds with milk products, fiber, coffee has tannins that block it, colas also block it and teas have something in them too...oh and chocolate. I am wondering too if sugary products inhibit the absorption too. :( So I am trying to be free of all those blockers until my iron comes up. Hopefully this helps someone. :)

My iron comes with very specific instructions & my levels went up quickly. No food, drink, vitamin or medication except water 1 hour before you take it & 2 hours after you take it. It will bind with other things & not be absorbed & can mess up the other things. If it bothers your stomach, a small piece of banana or fruit seems to be OK.

kimis Collaborator
kimis
Posted

My internist also told me to take 1000iu / day. I have terrible problems with most suppliments, but have had no issues with Kirkman Labs Hypoallergenic Vitamin D. I also take their Hypoallergenic Everyday Multi.

Open Original Shared Link

Thanks Patti! I'm checking it out right now.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748
    Majesticrb
    Newest Member
    Majesticrb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.