Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Does Not Mean Gluten Free? Did You Know...


meatslayer

Recommended Posts

meatslayer Newbie

To be labeled Gluten free the FDA standard is less than 20 ppm. At that level, those with a gluten allergy will not have a reaction. However it becomes a little grayer when you are talking about Celiac. For this reason, the FDA (USA) and the CFIA (Canada) are currently reviewing the standard.

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

You guys know that? Anyone have any more info? 20ppm is a very small amount (tiny) To most here I would think that a Gluten free label means Gluten free, but not so. I wonder at what PPM it effects a Celiac? Anyone know?

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

meatslayer Newbie

Meatslayer,

It is different for everyone. Everyone's body reacts differently. That is why there are so many different symptoms. We don't all have the same symptoms either.

Jackay

Very true indeed, thanks for pointing that out.

sandsurfgirl Collaborator

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny, but... you never know. Celiac can present with so many symptoms, so you eat that stuff with 20ppm and you get a sinus infection. Is it due to celiac or just a sinus infection? I was told by a doc who is pretty knowledgable that it's very hard to truly be gluten free because it's just everywhere.

Jestgar Rising Star

Yet another complication to the mystery that is celiac. 20ppm is really really really tiny,

unless you eat 40 of them.....

DougE Rookie

Another complication for us celiacs with no appreciable symptoms. How do we know when we ate too much gluten?

tarnalberry Community Regular

Most studies suggest that 20ppm in moderate amounts of most foods won't cause damage to a celiac's intestines (or elevate antibody levels detectably).

Nothing, medically speaking, is true for everyone, of course.

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

At this point the U.S. has no official gluten-free standard, although 20 ppm is definitely being considered. 20 ppm probably has little to no apparent effect on most people with celiac, but some definitely react. As for having zero percent gluten, no test can determine that, although it can go a good bit lower than 20.

richard

psawyer Proficient

And *some* testable (0 is NOT testable) limit has to be set if there is going to be a industrial use for the term.

What Tiffany said, as usual, is right on the money. :)

kareng Grand Master

unless you eat 40 of them.....

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

  • 2 weeks later...
bittykitty Rookie

I understand what Tiffany said. There has to be a number, something to measure. We then have to be sure we don't eat "40" like Jess said. We will have to be vigilant to what a serving is per the packaging, not what we would usually eat. I know that what I think is a serving of cereal in my bowl is usually closer to 2. I think this problem has come up with transfat as less then 1 unit of fat per serving is considered 0. But everyone usually eats 4 "servings" thus getting 2 units of fat & it isn't really transfat free. Maybe I'll just eat Puppy's gluten-free dog food - it looks like a really balanced diet.

Sometimes this is why it's wise to just avoid processed foods, no matter what the label says.I've reacted to a lot of stuff that proudly screamed"gluten free"on the package.You really don't know who handled it,where it was manufactured, and until federal guidelines become a little stricter, it's easy for companies to cut corners and still be in that gray area.Yeah, we all like convenience foods(hell in America it is a way of life),but you have to make the choice as to whether or not taking the chance is worth it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Insomnia help

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      47

      My journey is it gluten or fiber?

    3. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,361
    • Most Online (within 30 mins)
      7,748

    Xpedit73
    Newest Member
    Xpedit73
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I do believe that people are under so much pressure up have a sleeping  pattern ,  with working and how households work these days , but in reality there is no wrong or right at to sleep , I believe your neighbour showed this with such a long life , I do exactly the same  at night many times so I hope I live into my nineties also , I have found one thing in life your body knows what's best so good to listen to wat it needs however unconventional that maybe 🤗
    • knitty kitty
      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.