Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?


farmwife67

Recommended Posts

farmwife67 Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

Yes. That is one of the few symptoms that has gone away for me since I started the gluten free diet. I hope that you really are done with Restless Leg Syndrome. It is quite frustrating to put up with.

tarnalberry Community Regular

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Wolicki Enthusiast

Yes, thank God after about 4 months gluten free :P

Pac Apprentice

yes, and it went away quite soon, probably like a week after going gluten-free.

farmwife67 Explorer

This is good news, I keep thinking this is too good to be true. I'm hoping it doesn't come back. It is neurological so it would make sense that it could improve. I am also taking B12 in hopes that will help too.

nyctexangal Rookie

Mine is gone as long as I stay on all my vitamins, the B-12 helps the most. 7 weeks gluten free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

My RLS improved, but didn't go completely away until I cut out all refined grains, starches, and sugars.

  • 1 month later...
Coolclimates Collaborator

i've been on the gluten-free diet for 3 weeks now and my restless legs haven't gotten much better, hard to tell if there's much improvement at all. I have increased my Nuerontin to 600 mg per night and am taking 1.5 pills of Mirapex and 1 Clonazapan each night, so that's been helping. I'm hoping that this diet will help with the restless legs as well.

  • 3 weeks later...
Coolclimates Collaborator

I feel like my restless legs have improved a bit, but can't figure out if it's that I'm taking sleeping pills or what. I also notice that RL is a very cyclical thing for me. The worst few nights that I have RL are right before my period.

Anyone else experience this?

conniebky Collaborator

we call it "jimmy legs" and I had that about one week out of every month.

The week I stopped gluten I had it TERRIBLY! for about three nights but then it quit altogether.

Coolclimates Collaborator

there seem to be less nights I have RL syndrome, although I notice if I do a a lot of spinning (I spin yarn, esp. at night) I'm more apt to get the RL. Mine don't bother me until early in the morning. I'm no a pretty high dose of Mirapex and Gabiprintin (Neurontin) and also take 1 Clonazapam per evening. Sorry about the bad spelling.

TrillumHunter Enthusiast

Nope, and my serum is well above the recommended level to treat it. When I had a sleep study, I moved my legs 30 times an hour on average. The only thing that quiets them is if I spend the day up and down stairs or a ladder. I would like it to stop, but I have balance issues already, so no neurotin for me.

  • 7 months later...
MsCurious Enthusiast

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Cypressmyst Explorer

Yes. My Restless Legs stopped sometime in the first month, my husbands stopped at about the three month mark so it is different for everyone.

I am continually amazed by how much better life is off of this poison. :D

Cheers!

  • 1 month later...
Lucydesi Rookie

I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.

  • 2 weeks later...
GlutenFreeJess Newbie

Wow, I never really thought about it - but YES! My RLS virtually disappeared after going gluten free.

  • 3 weeks later...
Guest Selhi

Please get your Vitamin D, Calcium, ALP levels as Celiac patients are known to be deficient in Vit D and have Osteoporosis. Get these investigations or touch base with your family physician.

They can also cause restless Legs and cramps, I have suffered from these and now on regular Vit D supplements and Calcium.

Loey Rising Star

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Not for me. I take a medication called Ropinerole at night and a lower dose in the morning.

Loey

  • 7 years later...
Colby - Sydney Newbie
On 4/9/2010 at 11:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Hi Farmwife, 

 pretty sure mine is caused by gluten. I went to an expensive restaurant in Sydney recently where I live and all I had was one lobster and one chicken dish. No carbs, sugar or alcohol. My legs hurt for the first time in months. The lobster sauce was so tasty I drank it. My friend said it probably had gluten. All I had eaten that day was an omelette so i could narrow it down. I get it when I eat pizza from the bread I think. very irritating. I use to get it so bad for 3 months I was going to kill myself. Hope you find success. I never seem to get it from coffee but I do from alcohol and sugar I think. 

  • 4 weeks later...
Goofer Rookie

Mine has not improved at all, but not got worse which is good.

  • 1 year later...
aceplayer Newbie

Restless leg and cramps went away for me when I went gluten free. Don't recall how long it took buy neither ever came back. My leg cramps were every night waking me from a dead sleep sometimes twice a night. It's been 4 years for me.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.