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Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?

farmwife67
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farmwife67 Explorer
farmwife67
Posted

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

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gary'sgirl Explorer
gary'sgirl
Posted

Yes. That is one of the few symptoms that has gone away for me since I started the gluten free diet. I hope that you really are done with Restless Leg Syndrome. It is quite frustrating to put up with.

tarnalberry Community Regular
tarnalberry
Posted

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Wolicki Enthusiast
Wolicki
Posted

Yes, thank God after about 4 months gluten free :P

Pac Apprentice
Pac
Posted

yes, and it went away quite soon, probably like a week after going gluten-free.

farmwife67 Explorer
farmwife67
Posted
  • Author

This is good news, I keep thinking this is too good to be true. I'm hoping it doesn't come back. It is neurological so it would make sense that it could improve. I am also taking B12 in hopes that will help too.

nyctexangal Rookie
nyctexangal
Posted

Mine is gone as long as I stay on all my vitamins, the B-12 helps the most. 7 weeks gluten free...

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Korwyn Explorer
Korwyn
Posted
  On 4/9/2010 at 1:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

My RLS improved, but didn't go completely away until I cut out all refined grains, starches, and sugars.

  • 1 month later...
Coolclimates Collaborator
Coolclimates
Posted

i've been on the gluten-free diet for 3 weeks now and my restless legs haven't gotten much better, hard to tell if there's much improvement at all. I have increased my Nuerontin to 600 mg per night and am taking 1.5 pills of Mirapex and 1 Clonazapan each night, so that's been helping. I'm hoping that this diet will help with the restless legs as well.

  • 3 weeks later...
Coolclimates Collaborator
Coolclimates
Posted

I feel like my restless legs have improved a bit, but can't figure out if it's that I'm taking sleeping pills or what. I also notice that RL is a very cyclical thing for me. The worst few nights that I have RL are right before my period.

Anyone else experience this?

conniebky Collaborator
conniebky
Posted

we call it "jimmy legs" and I had that about one week out of every month.

The week I stopped gluten I had it TERRIBLY! for about three nights but then it quit altogether.

Coolclimates Collaborator
Coolclimates
Posted

there seem to be less nights I have RL syndrome, although I notice if I do a a lot of spinning (I spin yarn, esp. at night) I'm more apt to get the RL. Mine don't bother me until early in the morning. I'm no a pretty high dose of Mirapex and Gabiprintin (Neurontin) and also take 1 Clonazapam per evening. Sorry about the bad spelling.

TrillumHunter Enthusiast
TrillumHunter
Posted

Nope, and my serum is well above the recommended level to treat it. When I had a sleep study, I moved my legs 30 times an hour on average. The only thing that quiets them is if I spend the day up and down stairs or a ladder. I would like it to stop, but I have balance issues already, so no neurotin for me.

  • 7 months later...
MsCurious Enthusiast
MsCurious
Posted
  On 4/9/2010 at 3:59 AM, tarnalberry said:

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Cypressmyst Explorer
Cypressmyst
Posted

Yes. My Restless Legs stopped sometime in the first month, my husbands stopped at about the three month mark so it is different for everyone.

I am continually amazed by how much better life is off of this poison. :D

Cheers!

  • 1 month later...
Lucydesi Rookie
Lucydesi
Posted

I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.

  • 2 weeks later...
GlutenFreeJess Newbie
GlutenFreeJess
Posted

Wow, I never really thought about it - but YES! My RLS virtually disappeared after going gluten free.

  • 3 weeks later...
Guest Selhi
Guest Selhi
Posted

Please get your Vitamin D, Calcium, ALP levels as Celiac patients are known to be deficient in Vit D and have Osteoporosis. Get these investigations or touch base with your family physician.

They can also cause restless Legs and cramps, I have suffered from these and now on regular Vit D supplements and Calcium.

Loey Rising Star
Loey
Posted
  On 4/9/2010 at 1:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Not for me. I take a medication called Ropinerole at night and a lower dose in the morning.

Loey

  • 7 years later...
Colby - Sydney Newbie
Colby - Sydney
Posted
  On 4/9/2010 at 1:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Expand Quote  

Hi Farmwife, 

 pretty sure mine is caused by gluten. I went to an expensive restaurant in Sydney recently where I live and all I had was one lobster and one chicken dish. No carbs, sugar or alcohol. My legs hurt for the first time in months. The lobster sauce was so tasty I drank it. My friend said it probably had gluten. All I had eaten that day was an omelette so i could narrow it down. I get it when I eat pizza from the bread I think. very irritating. I use to get it so bad for 3 months I was going to kill myself. Hope you find success. I never seem to get it from coffee but I do from alcohol and sugar I think. 

  • 4 weeks later...
Goofer Rookie
Goofer
Posted

Mine has not improved at all, but not got worse which is good.

  • 1 year later...
aceplayer Newbie
aceplayer
Posted

Restless leg and cramps went away for me when I went gluten free. Don't recall how long it took buy neither ever came back. My leg cramps were every night waking me from a dead sleep sometimes twice a night. It's been 4 years for me.

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