Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About Nuts


Skylark

Recommended Posts

Skylark Collaborator

I've gotten really confused about nuts. I'm pretty sure I'm not allergic/intolerant to tree nuts or peanuts. I can eat Larabars, Kind bars, gluten-free baked goods and mixes with nuts, peanut butter, and Blue Diamond almonds all I like.

When I buy containers of mixed nuts or cashews at Costco or the grocery store though, I sometimes get run-down and sick. I got sick a month ago and I think I narrowed it down to some Planter's dry-roasted peanuts but it's hard to be sure because the reaction was delayed. Kraft says nothing about processing Planter's on equipment used for wheat, which is even more confusing. I've also had occasional trouble with the Nature Valley Nut Crunch bars, which again have no gluten ingredients and say nothing about wheat on the equipment.

I keep reading bits and snippets on forums about processors dusting conveyor belts with flour or wheat starch to absorb nut oils. This would explain my problems but I can't find any authoritative information to confirm it. I'm wondering if that's how gluten sneaks into the General Mills and Kraft products and I'm to the point where I'm afraid to buy nuts that aren't in the shell or from a brand like Blue Diamond that makes reasonable attempts to clean their lines.

Is the processing info true? How widespread is gluten cross-contamination on commercial nut products? Are there safe brands other than Blue Diamond (and is Blue Diamond reliably safe)?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RideAllWays Enthusiast

I have a hard time finding packaged nuts sometimes that don't say "may contain wheat", but I don't know about them dusting the lines.

Juliebove Rising Star

I quit buying nuts at Costco because of the warnings. I can't remember now if it was a "may contain" or "run on shared lines". I don't know about the Planters.

psawyer Proficient

I have been at this for ten years. I have never found credible evidence for this claim of dusting lines with wheat flour. Wheat flour is sticky! You would not use it as an anti-stick agent. When these agents are used (which is not common), they are cellulose, typically a byproduct of the pulp and paper business--in other words, derived from trees.

Lines dusted with wheat flour is a myth, in my opinion.

Roda Rising Star

I've also had occasional trouble with the Nature Valley Nut Crunch bars, which again have no gluten ingredients and say nothing about wheat on the equipment.

This stuck out at me. Nature Valley makes no claims about being gluten free. Commercially grown oats are contaminated with wheat. Try gluten free granola or oats and see if that makes a difference. But then there is those of us who react to pure oats too which is appx 10-15% of celiacs I think. I eat blue diamond products all the time and do fine with that brand.

RideAllWays Enthusiast

I have been at this for ten years. I have never found credible evidence for this claim of dusting lines with wheat flour. Wheat flour is sticky! You would not use it as an anti-stick agent. When these agents are used (which is not common), they are cellulose, typically a byproduct of the pulp and paper business--in other words, derived from trees.

Lines dusted with wheat flour is a myth, in my opinion.

I do agree that it is most likely a myth that the lines are dusted, but I do have a hard time finding packaged nuts where the package doesn't read "may contain wheat" and I never eat out of the bulk bins..which nuts do you eat?

Skylark Collaborator

Thanks Peter. I was trying to figure out why I couldn't find any real information about flour or starch on production lines. It's hard to separate urban myths sometimes. I was wondering about gluten because I just can't make sense of the reaction otherwise. I've eaten nuts all my life with no signs of allergy or sensitivity.

The Nature Valley nut bars I'm talking about have no oats or grains, and no wheat on the allergy information. I don't know how carefully General Mills was managing CC on the Nature Valley lines. I reacted to them a little unpredictably, and finally stopped buying them. I might try again now that they're labeling them gluten-free.

The other thing that gives me trouble are jars of Kirkland brand mixed nuts or cashews. They should be fine as they're just nuts and salt. Weird huh? I think all the nuts in the Kirkland mixes show up in my Larabars and Kind bars and I have no trouble. It's possible I was getting other foods at Costco that caused problems. I know I can't eat the supposedly gluten-free taquitos. Or maybe I'm back to my idea that too many cashews is a bad idea for me. A tree nut allergy should be more "all or none" though.

The Planters Dry Roasted Peanut reaction was just bizarre. I eat peanut butter all the time, and yet that jar of peanuts gave me stomach aches and asthma. No wheat allergy information or gluten on the label and Kraft doesn't give any indication that they would be significantly cross-contaminated. You can see why I'm grasping at straws here. I have no idea what happened, but I can live just fine without Planters.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

I cannot eat the Blue Diamond nuts. I eat planters frequently (just plain) with no issue and I'm fairly sensitive to CC. However, that said, I'm quite intolerant of refined corn. Corn-starch, corn-syrup, high-fructose corn syrup, etc. So many of the 'flavoured' nuts I cannot eat at all. I also can't eat some brands of nuts for no apparent reason (like Blue Diamond). I don't know why, the only thing I can think of is that while their facility may be gluten-free, there is CC somewhere else along the way before they get the nuts into the facility.

Remember there is an entire transportation, bagging, harvesting, and processing system outside of just the actual wholesale manufacturer.

oceangirl Collaborator

Hi,

I am insanely sensitive to cc (which I learned the hard way because at first I thought it was ridiculous to imagine- Karma can stink....) and eat Planter's South Beach diet mix almost daily and have for years. If there were gluten, I would be reacting for sure. Over 5 years in, I eat VERY few processed foods but this is one I trust.

My two cents... good luck.

lisa

gary'sgirl Explorer

I cannot eat the Blue Diamond nuts. I eat planters frequently (just plain) with no issue and I'm fairly sensitive to CC. However, that said, I'm quite intolerant of refined corn. Corn-starch, corn-syrup, high-fructose corn syrup, etc. So many of the 'flavoured' nuts I cannot eat at all. I also can't eat some brands of nuts for no apparent reason (like Blue Diamond). I don't know why, the only thing I can think of is that while their facility may be gluten-free, there is CC somewhere else along the way before they get the nuts into the facility.

Remember there is an entire transportation, bagging, harvesting, and processing system outside of just the actual wholesale manufacturer.

Hey, I just thought I would mention that as of a month ago the Blue Diamond facility was not gluten free (I guess they could have changed since then, but I doubt it). I called them and asked specifics and was told that they clean their equipment very well, but their Wasabi flavored nuts contain gluten and are produced on the same lines as all the other nuts that they process. I was a bit disappointed by this, because they seem to advertise that they are completely safe. After drilling them a bit (nicely of course B) ), I got the rep to confirm that they could not guarantee that there was no CC.

primresp Rookie

Hey, I just thought I would mention that as of a month ago the Blue Diamond facility was not gluten free (I guess they could have changed since then, but I doubt it). I called them and asked specifics and was told that they clean their equipment very well, but their Wasabi flavored nuts contain gluten and are produced on the same lines as all the other nuts that they process. I was a bit disappointed by this, because they seem to advertise that they are completely safe. After drilling them a bit (nicely of course B) ), I got the rep to confirm that they could not guarantee that there was no CC.

For what it's worth, I spent hours online researching nuts I could eat (I've got other allergies in addition to gluten), and found nutsonline.com

They are certified gluten-free nuts (and other stuff, too). Their nuts are processed in dedicated gluten-free facility, which is important to me. However, their nuts are on shared lines with dairy, egg, and soy (I believe), which are some of my other allergens. But it's the gluten that most concerns me, so at least I know I'm not getting glutened with their nuts. I soak and rinse the heck out of the nuts to (hopefully) reduce the other allergens, if they are present.

primresp Rookie

I just received a detailed response from Trader Joe's regarding their nuts. Please note that in addition to gluten, I am allergic to soy, dairy, and egg, which are the other allergens they are referring to below.

Hope this helps someone!

Our Trader Joe's Raw Almonds are made on shared equipment with wheat,

milk, peanuts, tree nuts and soy.

Our TJ'S California Walnut Halves and Pieces do not have any of your

allergins in the same facility.

Our TJ'S Organic Thompson Raisins also do not have any of your allergins

in the same facility.

Our TJ'S Raw Sunflower Seeds also do not have any of your allergins in

the same facility.

Our TJ'S Raw Pepitas are made on shared equipment with peanuts, tree

nuts and soy.

Our TJ'S Raw Pecan Halves do not have any of your allergins in the same

facility.

Skylark Collaborator

Thanks for all the info! I'll check out nutsonline and print out the Trader Joe's lists.

I might have figured out the Planters. Dried yeast is an ingredient in the dry roasting flavor and yeast is on a lot of celiac "don't eat" lists unless because the culture medium can contain wheat. If that's yet another urban legend there's still MSG to wonder about, which has nothing to do with gluten but has never been a good thing for me to eat in quantity. I'll just buy plain peanuts next time!

I don't like being this sensitive. :blink: It was much easier when I didn't react to trace amounts of gluten.

Blue Diamond's website says they clean shared lines between batches under GMP. That probably means I'm playing roulette with them. (Wanders off to check nutsonline...)

buffettbride Enthusiast

Many of Costco's nut products have the, "produced on equipment with wheat..." statement on it, so I avoid those products from Costco. I think the Costco trail mix and mixed nuts packets both have that warning if memory serves me correctly. I've seen similar statements on Planters, so I avoid those. (Although, no troubles from the Spanish/Redskin sea salt ones by Planters at all).

The Nut Crunch baffles me. My ubersensitive Celiac eats those with no trouble at all.

  • 2 weeks later...
MartialArtist Apprentice

Many of Costco's nut products have the, "produced on equipment with wheat..." statement on it, so I avoid those products from Costco.

I was SOOOO ticked off today when I read that line on my individual bag of cashews from a Kirkland's box I bought at Costco. I thought I had been SO careful when shopping to make sure I was buying a simple product w/no wheat and no cross-contamination possibility, but the warning on the box itself is printed inside an offset white square with black letters (while the rest of the ingredient stuff was on the black box with white letters) and I guess I stopped reading when I got to the end of what appeared to be the ingredient list and allergy warnings. But I saw in on the bag after I opened it and I was so mad, I went ahead and ate that one bag (the rest will be for my kids and husband and friends, I guess b/c it's not worth the risk to me -- especially when I may have no recognizable digestive symptoms and still be hurting myself). So far, no problems, but as I've said, my digestive symptoms seem to be mild at best, so that doesn't necessarily anything. Probably shouldn't have eaten them anyway but I didn't want to waste them and was just so IRRITATED about it. I think the text was actually "packed on equipment that also packages products containing... wheat..." -- not even processed, just packed, but WHY???!?!?!?!?!?!?!

Grr...

  • 2 weeks later...
benchwarmer Newbie

Has anyone here who is REALLY sensitive to CC tried the Nutsonline.com nuts yet? I have been searching EVERYWHERE for nuts free of cross-contamination and these were the only ones I could find, but I'm still afraid to order and try them because I've gotten glutened by other nuts so many times before.

If someone who has already tried them can report back with the results of their own experiment then that would be super helpful. Thanks!

conniebky Collaborator

nuts confuse me too.

  • 7 months later...
DawnRochelle Newbie

I've gotten really confused about nuts. I'm pretty sure I'm not allergic/intolerant to tree nuts or peanuts. I can eat Larabars, Kind bars, gluten-free baked goods and mixes with nuts, peanut butter, and Blue Diamond almonds all I like.

When I buy containers of mixed nuts or cashews at Costco or the grocery store though, I sometimes get run-down and sick. I got sick a month ago and I think I narrowed it down to some Planter's dry-roasted peanuts but it's hard to be sure because the reaction was delayed. Kraft says nothing about processing Planter's on equipment used for wheat, which is even more confusing. I've also had occasional trouble with the Nature Valley Nut Crunch bars, which again have no gluten ingredients and say nothing about wheat on the equipment.

I keep reading bits and snippets on forums about processors dusting conveyor belts with flour or wheat starch to absorb nut oils. This would explain my problems but I can't find any authoritative information to confirm it. I'm wondering if that's how gluten sneaks into the General Mills and Kraft products and I'm to the point where I'm afraid to buy nuts that aren't in the shell or from a brand like Blue Diamond that makes reasonable attempts to clean their lines.

Is the processing info true? How widespread is gluten cross-contamination on commercial nut products? Are there safe brands other than Blue Diamond (and is Blue Diamond reliably safe)?

I know this is an old post, but I too, suspect that I'm getting cc from the Kirkland brand nuts. I was recently diagnosed gluten intolerant with severe malabsorption, so am currently on the elimination diet to find other sensitivities. I eat a lot of nuts. Mainly, because I've recognized that grains bother me, so need another source of protein etc.. So, I 'm on this diet and still feeling crummy when I happened to glance at the Costco allergen label, and I see the bad news..wheat, soy, milk. etc. Ahhhhhh!! I've been Gluten-free Casein-free for weeks..uh...I thought. Anyway, glad I found out now. That was yesterday. I feel markedly better today.

Coincidence? We'll see. It's hard for me to get my mind around the cc issue, I'm I that sensitive? Oh well, I'll carry on and find what works and what doesn't, as we all have to.

dilettantesteph Collaborator

I eat a lot of nuts, and I shell them myself to be safe. Recently I seem to be reacting even to them. I don't know if it is just nuts. I don't react to macadamia which I get from a place which only deals in them. The other nuts I get from nutsonline which sell lots of things. Maybe though separate lines, it isn't a separate facility and that is enough for me as I am very sensitive. Maybe stuff on the outside gets transferred to the inside of the nuts during my shelling them. I'm going to try washing after shelling to see if that does it. If not, I guess I'll have to give up all nuts except macs.

Skylark Collaborator

I got really sick a couple months ago and the only thing I ate that was unusual were some Trader Joe's shelled macadamias. I can usually eat them. It's so confusing. The bag did have a "shared facilities" label but the only ingredients were macadamia nuts and salt.

  • 2 years later...
AmyNColorado Apprentice

I'm bringing this post back to light because I'm wondering what brands of nuts are safe?!?!? I am having all kinds of problems with eating nuts lately and I love them...they fuel my mtn bike rides etc when I make my own trail mixes and well I'm probably just addicted.

I've tried the Target Archer Farms mixed nuts...no allergy information that should indicate a wheat cc and still seem to have a problem.

The bags of almonds from Costco, the roasted peanuts from Costco...both labels should be safe. I can't eat Kirkland brand mixed nuts already discovered that.

 

What about whole foods or sprouts bulk products...not just nuts but any of those including veggie chips. Anyone have experience with these? 

 

Thanks!!!!

WinterSong Community Regular

Really - has anyone found a brand of nuts that are safe? I've reacted to Trader Joe's in the past. There was one brand that I bought at the grocery store, and it's label listed off other allergens. Just to be safe, I called the company and they said that it is not gluten free. Then why wasn't it listed with the other allergens?!?!?! 

 

I need 1/2 cup almonds for my Christmas cookies this year. I may have to order from nuts dot com and buy a whole pound if I can't find a small bag to buy locally. :(

Jason-1 Newbie

Hi Winter Song, 

Check with your local stores. There are a lot of nut companies that use gluten with their nuts or process nuts in a place that processes gluten. A "Safe" brand, which I use in my products is Mariani. Also, Diamond of California Culinary Nuts are gluten free, but their other products are not gluten free . 

If you're buying nuts in a store, check the back of the bags for warnings such as "Produced in the a factory that processes gluten". It generally means that they are using the same machines for processing gluten and other products, but it could also mean that gluten is processed in the same facility, but not on that machine. But, if they are using the same machine for gluten and gluten-free they have to clean the machine thoroughly each time they change because to be gluten free by government standards say that to be gluten free the product has to have less than 20 Ppm (parts per million) of gluten.

 

Hope this helps!

Jason

 

 

Really - has anyone found a brand of nuts that are safe? I've reacted to Trader Joe's in the past. There was one brand that I bought at the grocery store, and it's label listed off other allergens. Just to be safe, I called the company and they said that it is not gluten free. Then why wasn't it listed with the other allergens?!?!?! 

 

I need 1/2 cup almonds for my Christmas cookies this year. I may have to order from nuts dot com and buy a whole pound if I can't find a small bag to buy locally. :(

WinterSong Community Regular

Hi Winter Song, 

Check with your local stores. There are a lot of nut companies that use gluten with their nuts or process nuts in a place that processes gluten. A "Safe" brand, which I use in my products is Mariani. Also, Diamond of California Culinary Nuts are gluten free, but their other products are not gluten free . 

If you're buying nuts in a store, check the back of the bags for warnings such as "Produced in the a factory that processes gluten". It generally means that they are using the same machines for processing gluten and other products, but it could also mean that gluten is processed in the same facility, but not on that machine. But, if they are using the same machine for gluten and gluten-free they have to clean the machine thoroughly each time they change because to be gluten free by government standards say that to be gluten free the product has to have less than 20 Ppm (parts per million) of gluten.

 

Hope this helps!

Jason

Hi Jason,

 

Actually, I've been gluten free for two and a half years, so I know about reading labels. 

 

This specific product I found said something to the extent of "Produced on the same equipment as peanuts, other tree nuts, and soy". It said nothing about wheat, so some would think that it is "safe". However, when I called the company they told me that it is not gluten free. The package didn't list wheat as an issue. So how can we trust food from labels alone?

 

And I must correct you on your statements about government standards. Yes, the FDA has said that anything labeled gluten free is required to be tested under 20 ppm. HOWEVER, that ruling just passed, and the companies still have quite a lot of time to test their products and update their labels. You cannot shop today for products labeled "gluten free" expecting everything to test under 20 ppm. The industry isn't there yet. Anyone attempting to make a gluten free product can put "gluten free" on their packaging without regard to CC or testing. And I've never seen a package of nuts in stores labeled "gluten free" anyway.

 

It seems like you assume that any products made on shared equipment is safe because you assume that all companies follow good cleaning practices? I wouldn't trust that. It takes very little to not clean shared equipment properly if the staff is not educated or the proper precautions are not set up. I would only trust it if it is certified gluten free. 

 

This is why I asked if anyone knows of a safe company. You don't always know from the labels alone.

 

Now I'm curious - have you specifically contacted the two companies you mentioned to talk with them about possible CC issues and if so, what precautions they take in order to assure their products are gluten free? I cannot find that information on either of their websites. 

Jason-1 Newbie

That is true, there is a year time to do so.

The two companies I mentioned I have been in contact with. If you like I can send your their contact info and you can contact them yourself. I use nuts primarily in my products and having family and friends who are allergic to gluten has pushed me to double check with every manufacturer I use to make sure.

Also, foods being shared with the same machines as gluten aren't 100% safe from gluten getting onto the gluten free product, but the companies are suppose to take every measure possible to reduce it. I do stay away from products like that and go for products that are gluten free and then check with the manufacturer to make sure.

Hi Jason,

Actually, I've been gluten free for two and a half years, so I know about reading labels.

This specific product I found said something to the extent of "Produced on the same equipment as peanuts, other tree nuts, and soy". It said nothing about wheat, so some would think that it is "safe". However, when I called the company they told me that it is not gluten free. The package didn't list wheat as an issue. So how can we trust food from labels alone?

And I must correct you on your statements about government standards. Yes, the FDA has said that anything labeled gluten free is required to be tested under 20 ppm. HOWEVER, that ruling just passed, and the companies still have quite a lot of time to test their products and update their labels. You cannot shop today for products labeled "gluten free" expecting everything to test under 20 ppm. The industry isn't there yet. Anyone attempting to make a gluten free product can put "gluten free" on their packaging without regard to CC or testing. And I've never seen a package of nuts in stores labeled "gluten free" anyway.

It seems like you assume that any products made on shared equipment is safe because you assume that all companies follow good cleaning practices? I wouldn't trust that. It takes very little to not clean shared equipment properly if the staff is not educated or the proper precautions are not set up. I would only trust it if it is certified gluten free.

This is why I asked if anyone knows of a safe company. You don't always know from the labels alone.

Now I'm curious - have you specifically contacted the two companies you mentioned to talk with them about possible CC issues and if so, what precautions they take in order to assure their products are gluten free? I cannot find that information on either of their websites.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748

    DottieLyn
    Newest Member
    DottieLyn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.