Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have Bad Reactions To Quinoa?


GlutenFreeManna

Recommended Posts

psawyer Proficient

You don't need to soak it for hours. There is a naturally occurring coating of saponin, which needs to be rinsed off. Some quinoa you can buy is already free of the saponin and can be used out of the package. Bob's Red Mill is one of those. If you leave the saponin on, the stuff will have a bitter taste, and may cause a reaction. Saponin is a natural protection against insects and herbivores.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Saponin is a natural protection against insects and herbivores.

Saponin must be the lectin content in quinoa which does me in. I don't think you can soak it off???? Well, maybe a little bit, like kidney beans, but it doesn't all come off for those who are extremely sensitive to it.

  • 3 weeks later...
gfquestion Newbie

I am on a gluten-free diet for almost 5 months and still have problems with many foods, including grains in general. I have pain and bloating when I eat a bowl of grain which may feel almost as a reaction for gluten. I discovered I can eat only a small amount of grain (the safe ones of course) because of the high content of fiber. I decided to wait until my gut heals before. I just eat safe veggies and proteins (no spices etc) and I feel much better now.

Maybe you should wait with grains until your gut heals? B)

I get the same thing with grains, including corn. I just yesterday realized that my problem is with all starches though, including beans and rice. Is this the same for you? I am thinking I will need to limit my carb consumption to only monosaccharides--- the kind we can easily digest.

rdunbar Explorer

I phased quinoa out completely 3 months ago, and my guts felt better immediatly. I don't think it was causing symtoms other than hurting my tummy.I found out that is a gut irritant and can damage the villi of your intestine, although it does this in a very different manner than gluten which is autoimmune, not ideal when you are trying to heal up your gut.

It could be that you are also reacting to gluten cross contamination present in the corn in the pasta too. Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

psawyer Proficient

Corn on the cob fresh may be fine, but processed corn almost always is contaminated with gluten; they use the same machinery to harvest it , and it's intermingled in industrial storage and shipping, ect...

Can you provide a source for this allegation, please. Oats and wheat are similar, and often have overlap, but corn? I've been on the gluten-free diet for more than ten years, and this is a new one to me.

  • 2 weeks later...
Marz Enthusiast

It appears that Quinoa doesn't agree with me either :( I've always rinsed it well - scrubbed the seeds between my fingers and rinsed until clear, as well as rinsing after cooking. It was pure quinoa so no cc with wheat, and there were definitely no wheat-like particles amongst the quinoa seeds.

Was fine the first week of eating it, had a break of a week or two from eating it, and now every time I eat it I get severe runs the next day. It's almost identical to my chicken/egg intolerance, except much more severe. I can't see anything else I can blame it on, so unfortunately looks like I need to find a different cereal for breakfast... again...

The reaction was different to a glutening, so I don't think the reaction has anything to do with celiac, it's just an intolerance of some sort, maybe trace amounts of that saponin substance my body is reacting to. Oh well...

Marilyn R Community Regular

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I had a horrific reaction to quinoa purchased in bulk from a health food store a month after going gluten-free. I rinsed it well and steamed it in a rice steamer. Had it for dinner and made a salad with the leftovers for lunch the next day. I loved it but my body HATED it and beat me up severely for a week. (CC could have been a factor, but not with that severe of a reaction.) It will take a long, long time before I'm ready to try it again if it is an ingredient in something, and I'll probably never try it in it's whole form again. I've been fine with sesasme seed anything, so I don't think seed is the problem. And coconut has been fine, which is in the grass family. (Ok with lemongrass too.) I think it's a plant protein issue, but don't have anything to scientifically substantiate it, just wondering out loud, so to speak. :unsure:

Quinoa is high in lectins, a plant protein (gliadin is a lectin).

WheatChef Apprentice

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

mushroom Proficient

Quinoa and millet both have a high lectin content (non gliadin) and can cause problems for folks sensitive to lectins.

jester Rookie

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

Marilyn R Community Regular

Quinoa was one of the grains tested in that study that showed millet was frequently unsafe. None of the quinoa forms registered any gliadin. It's totally possible to have reactions to many other compounds besides gluten but quinoa does not have gluten. This is not to say that your particular source (especially anything out of a bulk bin!) is safe from cross contamination, it just means that quinoa by itself does not contain gliadin. It is so very far away from wheat on the taxonomical charts it might as well be an animal.

Wheatcheaf, I appreciate your input, but know that my reaction from quinoa was not CC. The reaction was severe. I think the protein is a problem, and appreciate the positive responses from others.

Marilyn R Community Regular

Oops, meant to add this. Good luck Jester! If indeed your problem is with gluten, life will be so much better once you know what ails you...YAY! Life will be a little more complicated, but still SO much better.

  • 4 weeks later...
eatingganesh Newbie

Thank you Mari and RunnerMom for your replies. Yes, this reaction was worse than any glutening I have had. RunnerMom I will not be quick to try Amaranth, if that is the case. I have not tried chia flour yet, but I will remember it for later. I think I'm going to stick to mostly steamed veggies and safe meats for now. I guess I need to let my stomach heal more.

And thank you for posting the thread. I love quinoa and ate a whole bunch last night, didn't get any cramps or pain, but was alarmed to awake with diarrhea and see the quinoa floating about undigested.

I have always had pretty severe grass allergies, though... so I guess I'm not surprised, but darn - one more thing to avoid.

  • 1 year later...
astrologer50 Rookie

I tried chia seeds, just a teaspoon and washed it down with juiced carrots and got pain in my stomach which lasted for ages. I know they are a superfood and love to use. How do you desensitise your body. Has anyone else had a reaction to white chia seeds?? :(

I have had CRAZY bad reactions to quinoa! Worse than gluten: I get immediate stabbing pain in my stomache, sweaty with chills, 'D', etc. It's weird because I could eat it at first then all of a sudden, one day I had a violent reaction to it. I bought amaranth as a replacement and the same thing happened! After that I read online that both are in a similar class of grasses (I think -someone correct me if I am wrong b/c I looked a couple years ago). Anyway, I stay away from both now, which is a bummer b/c they are a nutritious alternative to wheat and lower glycemic index than rice flours. Now I have found Chia flour and Chia seeds and I use this instead. It's super healthy, higher in Omega 3s than flax seed, more digestable, high in fiber...all the stuff WE need. Check it out. :)

  • 9 months later...
kwylee Apprentice

As my system has become much more discerning over the past 2+ years of strict adherence to this way of eating, I have found that I cannot tolerate quinoa, among other non gluten/non dairy/non soy foods I used to eat with no problem before. I've come to realize it's just the way I am now. C'est la vie!

1desperateladysaved Proficient

I haven't had my tests done yet, and this is probably going to sound ridiculous, but at this point I really hope I have celiac. The more I read (especially here) the more I see myself. Everything I read I'm jumping in my chair going YES! YES! That's me! Sad, isn't it?

I was looking up quinoa because I had it for the first time last night - felt crummy but I'd felt crummy all day. Then today I had a big bowl of leftover quinoa for lunch and within half an hour I had to lie down. I felt so horrible, weak, unfocused, like I had a bowling ball in my stomach and was going to vomit. I had to just lie in bed for an hour before I felt okay to get back up.

I've never had such an obvious reaction to anything before, and I'm hoping maybe it wasn't actually FROM the quinoa because I really, REALLY liked it, but it looks that way, doesn't it?

You are not happy to have a gluten problem, but to know at last about the problem you do have! It can be helped and it is real!

shadowicewolf Proficient

I don't eat straight quinoa. I normally eat it in my pasta that is mixed with corn. I normally have that once a week or so and sometimes if i eat to much i get that feeling but its probably because i over ate.

Celiac Mindwarp Community Regular

I tried quinoa twice, and I might just as well have tipped it straight down the toilet, given how quickly it went through me. Shame, I loved the taste and texture.

Corn does sound the other possible culprit (or both, you gotta love celiac). I am just starting to admit I am going to have to eliminate it.

Happy healing x

Pegleg84 Collaborator

FYI: I started another thread (linked to this one) on this topic here:

Some new relevant info coming out there, I hope.

Something to do with lectin (which is also in milk, grains, nightshades, etc)

Would be good to have a comprehensive thread/guide to the quinoa challenged.

  • 1 year later...
Starving Amy Rookie

Late to the party but quinoa messes me up. Gluten is still up for debate, though I am pretty sure. Quinoa shuts my intestines down causing joint pains and back pains, though. I want to shrink down in size and beat quinoa's butt. I was reading the outer "husk" or whatever, the outer covering will perforate intentional walls the same way gluten does. I have no idea why it's as popular as it is. My reaction to quinoa is almost worse than gluten. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.