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My Little Curiosity Poll


conniebky

Gluten Reactions  

114 members have voted

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conniebky Collaborator

And if other, what's your other? :P


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jerseyangel Proficient

Looks like I was the first to vote! I voted 'both':)

conniebky Collaborator

Looks like I was the first to vote! I voted 'both':)

LOL I forgot to vote on my own poll! :P

polarbearscooby Explorer

I voted both :P

Roda Rising Star

I voted gi issues. I usually get heartburn, bloating and contipation.

knittingmonkey Newbie

I voted gi issues. I usually get heartburn, bloating and contipation.

I voted G.I. issues, but am not going to disclose them because they're quite embarrassing. :huh:

Korwyn Explorer

My other is neuro and psychological. Anxiety, black moods, insomnia are my primary psychological.


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Jencat Rookie

Both. I have GI issues and depression, anxiety and fatigue, body aches, numbness to extremities and brain fog.-Jen

  • 4 weeks later...
Coinkey Apprentice

Still discovering my reactions to gluten. I've only been free of it for a month. So far: neuro first then GI. FUN. :angry:

  • 2 months later...
Cheryl-C Enthusiast

I voted for GI even though I also get some neuro - my GI responses are more severe than the neuro, so that's why I voted GI. I get the runs for a day, followed by constipation for about 4 or 5. Bloating, gas, rumbly gut. Not fun.

On the neuro side, I get anxious, depressed, anti-social and grumpy.

I also get sinus migraines, but I'm not sure which category that fits into.

Boo to gluten. <_<

Skylark Collaborator

I'm calling my depression and insomnia from gluten neuro. This poll is getting really interesting...

brendab Contributor

I first get stomach pain that turns into constipation in a couple of days. The rest is anxiety, depression, brain fog, grouchiness, headaches/migraines, forgetfulness, bloating, slight weight gain, insomnia, chronic fatigue, intense cravings for wheat products...........I forgot what else..........I had gluten yesterday! LOL

Chattyaholic Rookie

I voted G.I. issues. If I stick to my gluten-free diet religiously then I'm fine, but if I give in to a craving and have something with gluten then I pretty much just stay home the next day (at least the morning/early afternoon) because of "bathroom issues." :(

It's interesting to see what others are saying. I have been thinking my foggy brain and forgetfulness was because of menopause, but maybe not???

Superfudge Rookie

I said both, but I'm a newbie to this

sweeeeet Rookie

basically bloating, distention, diarrhea vs. constipation (IBS) stomach cramps.

Also extreme fatigue, spinning head, headache, dry eyes, brain fog. I didn't know if that was neuro related so I put GI related.

  • 2 weeks later...
Bennie Rookie

GI issues and feel very tired

  • 1 month later...
pickyguin Newbie

I voted other. I have Muscle and Joint pain when I eat gluten. I've been poked, prodded, stuck, Biopsyed and still tested Neg. When not eating gluten I can move and I have no pain or muscle tremmers. This has been a painful 25 years and finally @ 48 years old I live vertually pain free unless something unknowen to me is in my eats.

  • 3 months later...
Sarah B Apprentice

I get a little stomach pain and fatigue. The one thing other than fatigue that I notice is neuro problems. I can't think straight or remember things.

I'm still trying to figure out if its gluten but so far going gluten free is the only thing that seems to work.

India Contributor

I've been gluten-free for a year and I'm lucky that I've only been glutened properly once. However, as well as GI issues, tiredness, brain fog etc, the longest-lasting effect was a big increase in my word muddling. Weird.

LivesIntheSun Apprentice

I go 'mental' and I get a canker sore in my throat

Emilushka Contributor

I get stomach pains, bloating, nausea, reflux for about the first 12 hours after the glutening. Then it moves into plain old bloating and GI cramping for a day or two. Then it moves into diarrhea and discomfort for another 5-6 days. All in all, I've had a week's worth of symptoms from 2 bites of wheat pasta (accidentally given to me by a waiter). I've also had a couple hours of plain old stomach cramping without anything else after a contaminated pan was used. I don't get neurological symptoms, though.

revenant Enthusiast

Hmmm I have equal neuro and G.I

GI: Constipation 1 day, and then diarrhea 2 days. Bloating, acid reflux, grumbling tummy... tummy pain :o

neuro: Anxiety, 'black cloud' depression, paranoia, anxiety, going from mania/hyperactivity on and off with intense fatigue/sloww moods, horrible attention span, visual disturbances, rage

So, this is more neuro for me actually but I put both

Muffy Rookie

I voted both but I don't feel my GI symptoms much, but they do take a lot of damage. The neuro affects are what actually bother me and they are similar to the others listed here. One thing that is very common for me as well is a difficulty swallowing. Like to the point where I have almost actually chocked on food that I can't neither swallow or move out of the back of my throat. It happens right away.

Does anyone get this? Do you think this would fit as a neuro or GI?

Cypressmyst Explorer

I get this. :P The choking I mean. I'd put it as GI not neuro, but next to GI symptoms neuro are the most common.

I don't know why Michael J. Fox hasn't been able to find a cure for Parkinsons, it's right there on his plate.

jeannieknits Rookie

I turn into a raving jerk! and it's funny (?) how long it took me to realize the connection. (my poor kids)

YEARS.

so, neuro issues: anxiety, rage, hyperactivity then brain fog.

gastro: first sign is a sharp pain across the top of my belly under my ribs....then I know what's coming. then it's the IBS, constipation for a day the D for the next 2-3 days. all the while grumbling belly and bloating and discomfort, insomnia....ugh.

I got glutened 2 weeks ago from a "gluten free" cupcake--from a bakery that I trusted. obvious CC issue, that I alerted them to. I was scared to death to try another cupcake, but I did, this week and was fine, thankfully.

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  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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