Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Found Out That My Gastroenterologist Ordered Another Test For Igg, Iga, Igm .

Simona19

Recommended Posts

Simona19 Collaborator
Simona19
Posted

Hi again!

My gastroenterologist ordered the test for IgG, IgA and IgM after two months I have been on the gluten free diet. It came back negative. He told me that I can eat gluten because the results are negative. He told me that I should eat everything (fat, sugar, gluten). I saw in his eyes that he doesn't believe me. He thought that I'm making myself more sick that I'm. My biopsy from the small bowel showed:

Duodenum, biopsy: Small bowel mucosa with focal epithelial infiltration by lymphocytes (>40 lymphocytes/100 enterocytes). The villous architecture is preserved. No crypt hyperplasia identified. The findings are nonspecific and are associated with early celiac disease (MarshI). Correlation with clinical findings and serology suggested.

IgG, serum 1213, referance range: 694 to 1618;

IgA, serum 251, referance range: 81 to 463:

IgM, serum 186, referance range: 48 to 271.

He also ordered test for my pancreas which came back elevated for hormone gastrin (sign that isn't working properly), thrypsin (still pending) and test also showed inflamation in my body.

I also had undigested fat in a stool sample. All this is the sign of pancreatitis or pancreatic insuficiency, but he ordered me to eat everything and come back to see him after month. Hm... I can't eat that because after any fat I'm very sick.

Any thoughts? Any referal to a good doctor in New Jersey, New York?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

How have you been feeling since you went gluten free? Have you seen resolution of any of your issues? If the diet is helping you don't need your doctors permission to continue on it.

nora-n Rookie
nora-n
Posted

Those were no celiac blood tests, just total IgA and so on.

Simona19 Collaborator
Simona19
Posted
  • Author

These days I haven't been eating much. I have cut out completly dairy too. Before my "diagnosis" I had diarrhea very often. After I ate something with milk in it I was just running to the bathroom like crazy. I just realized that I have always experienced a gigantic abdominal pain, bloating and very very bad diarrhea ( sometimes 9-11 times a day)during my period. I was always very sick, and what I ate was just a piece of bread, tea, chicken soup with noodles, crackers, but no milk. Three times it was so bad that I ended up at the emergency room. Doctors told me that I might have IBS. Was the gluten the cause? I think so because for the two months on Gluten Free and Milk Free diet I didn't have any diarrhea yet. Not even through my period( I had just one since I went gluten-free).

After reading older posts I'm overvelmed from the people's reaction to stay so easily Gluten free. In my mind I know that it is bad for me, but my stomach still crave foods with gluten in it. Every doctor that I saw told me that I can eat gluten. Tests are confusing. I'm following very stricktly no gluten, no milk, no fat and no sugar diet. Right now I'm sick. Maybe it's my pancreas or the gluten withdraw, but when I will be ok again, I don't know how I would cope with all this. I'm very good cook, baker (special Europien pastry, weding cakes,..), and I need to taste some things in a process of making them. I would have to change all my recipes which would be very hard becauce many ingrediences don't have substitutes. I don't even know how I feel about all this. I'm looking for a medical proof that I can't eat gluten. What you think? Do I have a celiac disease?

Simona19 Collaborator
Simona19
Posted
  • Author

Those were no celiac blood tests, just total IgA and so on.

What should be tested?

My doctors don't know what to do with me. To them I'm just a hypochondriac. I feel much better now. I still have a issue with my pancreas, but all over I'm better. I don't have insurance, and I need to pay for the tests myself. Would I tell them that it is something wrong with me just for fun? I would have to pay many bills for it later.

cassP Contributor
cassP
Posted

What should be tested?

My doctors don't know what to do with me. To them I'm just a hypochondriac. I feel much better now. I still have a issue with my pancreas, but all over I'm better. I don't have insurance, and I need to pay for the tests myself. Would I tell them that it is something wrong with me just for fun? I would have to pay many bills for it later.

you sound like me. i personally needed a diagnosis to motivate me 100%. so, she's right above- about your test- but you're off to a good start- at least you know you're not "IGa deficient"- which "should" mean that if you're ingesting enough gluten- your Celiac panel should be conclusive

Celiac panel should include: Endomysial Antibody, Ttg Iga & Igg, and Antigliadin IGA&Igg i believe.... but this is your personal decision- i dont wanna be responsible for telling someone to eat wheat.

if you really want the blood test- you're gonna have to eat enough wheat for 4-6 weeks- and don't worry about the cost- do a payment plan every month- your health is worth it. the price of a biopsy is another story- but your blood test may be definitive enough.

after all that- u MAY want to order the Gene test through Enterolab- that was enough for me to stick to the diet.

hang in there :)

Skylark Collaborator
Skylark
Posted
I'm looking for a medical proof that I can't eat gluten. What you think? Do I have a celiac disease?

The absolute best medical "proof" that you can't eat gluten is removing it from your diet and feeling better. The best doctors don't really trust the tests because so many people test negative and still get sick from gluten.

You have a Marsh I biopsy and you say your chronic diarrhea improved gluten-free. If you really don't believe your biopsy, you can go back to eating gluten and see how you feel. If the diarrhea comes back you have the strongest answer you could possibly get. Personally, I wouldn't challenge with gluten and risk developing more autoimmunity with the Marsh I biopsy but it's up to you.

Since you are not IgA deficient, the formal testing would be anti-gliadin IgA, anti-tTG IgA, and anti-endomysial IgA after you have been eating about four slices of bread worth of gluten daily for a month. You will not have antibodies if you're not eating enough gluten for long enough. Some people prefer to get Enterolab testing. It isn't diagnostic, but it's easier to get a positive result.

As far as baking gluten-free, Open Original Shared Link is written by a professional French pastry chef and she has worked out a lot of gluten-free recipes for her celiac husband.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.