Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Your Child Had A Colonoscopy?


Gardening

Recommended Posts

Gardening Apprentice

I'm really nervous - the GI wants to rule out IBD/Crohn's and seems pretty confident that my daughter has celiac.

She has to be on a liquid diet for two days w/Miralax in preparation for surgery. She is only 2.5 and I don't know how to explain why she can't eat for two days. :( I'd do it with her in solidarity, but I don't want to be physically weak for her surgery.

Any tips? How long should the procedure last? I know I need to make a list of my questions and call a nurse...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Gardening Apprentice

My 17 mos old had the scope last Tuesday, endo and colon. She did really great with the prep, and it was tough! I just offered lots of different varieties of juice (watered down of course)and kept her busy. We went to a local amusement park to keep her mind off of food and I didn't let her sisters eat in front of her.

The surgeon came out right away and told us what he saw, biopsy results took almost a week.

I hope this helps. Good luck!

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

finally diagnosed Apprentice

Thank you! I'm glad she did so well! How did the amusement park work out with all the (I assume) diarrhea? I was planning on staying at home.

Also, how long did the actual surgery last? And what were her results?

Hi Gardening. I just wanted to clarify for you that this is a procedure not a surgery, there is no incision, they refer to this as a "flip flop", she will have the endoscopy then the colonoscopy right after.. they are given light sedation "twilight" usually by an IV and they don't remember anything...I hope this helps, everyone's procedure time is usually different due to the anatomical make up of our insides.. some are an 1hr some are more.. i like to think of it as long as the doc does the job right the first time.. a surgeon once said to me when i asked how long will the procedure take (i was having my gallbladder out) and his response was "as long as it takes me to do a good job and do it right".. good luck, as for the liquid thing, you can do it with her and then eat in hiding when she can't see you to keep your energy up.. ;) I hope this helps some, no matter what procedure our children or even we have is nerve racking enough.....

MacieMay Explorer

Ohhhhh! My daughter didn't have the Miralax prep. She had to take little tummies, day 1 and day 2 and then an enema the night before and morning of. I didn't even give her the little tummies on day 1 because she had 3 hugh BM's, earlier in the day. She still wears diapers so the pooping wasn't really an issue for us. Maybe if you start the prep early enough in the day she you can get out later in the afternoon. I guess it will probably depend on how she is feeling.

The procedure took about an hour and the Dr. came right out to talk to us to let her know how she did. I was more concerned about her going under anethesia for the first time, then anything. She did fine with the procedure and the dr. told us that everything looked ok but the biopsies would reveal more. Turns out, her biopsy results came back normal too. So, we are still looking for answers.

I hope this helps and you get the answers you are looking for.

Gardening Apprentice

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

finally diagnosed Apprentice

MacieMay - Thank you, that is very helpful! My daughter isn't potty-trained, either, but she has a terrible time with diarrhea and blistering diaper rash.

finally diagnosed - True, no incision - I guess I was thinking of the biopsy component, though. A friend's child's duedenum was perforated during the same procedure, so I have a lot of anxiety about it. :(

i hear you about the anxiety.. yes perforation is a risk, i was trying to be helpful regarding the surg/procedure.. that is why we can't compare time frames.. you want to make sure your doc goes slow and gets it done once and right.. good luck with this.. i hope all is well..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MacieMay Explorer

My daughter had a terrible time with diaper rashes too starting shortly after her 1st birthday, after 6 weeks of treating it with desitin and nystatin, I finally linked it to whole milk. I stopped giving her the milk and the rash went away. I think she is lactose intolerant. We give her some milk products here and there, but she drinks lactaid now, her diaper area doesn't look great but nothing like the blisters and irritation before.

Ohhhh... it was horrible, the poor thing. I know how it is, I hope your little one does OK with the prep.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    2. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    4. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,428
    • Most Online (within 30 mins)
      7,748

    thilbert
    Newest Member
    thilbert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.