Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Had A "last Meal"


glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor

So, I usually try to stay positive on here...especially with new people since I know how hard this is to deal with. But, I have to vent and maybe this looming cloud over my head will go away. I never ate a last gluten meal. My last thing I ate was at a pot luck at work, frozen Simeks meatballs cooked in a crockpot....really!? I never thought, hm, I will never eat some of my favorite foods again...I should ENDULGE! Instead I STOPPED the day I found out I had Celiacs. It's been almost a year (in November) and I am just now realizing this? What the heck? But, for some reason, whenever I see a delicious pizza or sub sandwich from my favorite places....I just WISH I would have had just ONE more thing...I can't even remember the last time I actually enjoyed my favorite foods and never knew it would be the last time I would ever eat them. I am just mad at myself for the moment...it will pass I know, but I am just so angry at myself for not eating one more thing....but why hold on to the "woulda, coulda, shoulda"...nothing I can do about it now. Thanks for listening whoever reads this!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I never knowingly had a last gluten meal either. At the time it didn't seem that important - only getting rid of it. Now I purposely didn't smoke one last cigarette because I couldn't bear to think that would be the last. I just woke up one morning and said 'You've already smoked your last cigarette." Better that way :o

jerseyangel Proficient

I never knowingly had a last gluten meal either. At the time it didn't seem that important - only getting rid of it. Now I purposely didn't smoke one last cigarette because I couldn't bear to think that would be the last. I just woke up one morning and said 'You've already smoked your last cigarette." Better that way :o

I agree--I think it's better that way. I never had a "last meal" either. I had been so sick for a while before my endoscopy that I wasn't eating much at all and what I did eat made me sick.

The doctor saw something during the endoscopy and his orders when I left were to begin the gluten-free and lactose free diet--which I did and never looked back.

Now, at 5+ years into it, I do sorta wish I had been able to do a last hurrah, so to speak, I guess because time has put a distance between how sick I was then.

I do understand your feelings, though. I made up for it by learning how to make favorites gluten-free. After a while, your taste buds will forget what the real things tasted like and readjust. Mine did, anyway :)

Jestgar Rising Star

My last gluten meal was thrown up violently a few hours after I ate it.

i-geek Rookie

I spent a week recovering from my "last meal" and came down with a nasty cold right after, probably due to my overtaxed immune system. So NOT worth it.

glutenfreeinminnesota Contributor

Haha, I suppose you are all right! I was soooo sick for years and finally had an answer...it seemed stupid to continue eating something that was "poisoning" my body...so that's why I was so quick to just do it! I always enjoyed food while I was eating it, but absolutely couldn't live with the outcome every day. I forget just how miserable I was I suppose...I miss foods that were slowly "killing" me I guess. So thank you for putting it into a better perspective for me :)

cassP Contributor

there was probably wheat in those meatballs ;)

my last gluten meal was going to be Bang Bang Chicken and Shrimp from Cheesecake.... it's not a meal you would equate with gluten- but its one of my MOST favourite meals on the planet- and i was sure gluten was probably in the sauce (an imitation recipe online had soy sauce in it).

anyways- when i was ordering my takeout- i had a sudden CRAVING for their popcorn shrimp- and in a split second, i said what the hell and ordered it... got home and started pounding them... 2 minutes later i got hot and NAUSEOUS, heart rate shot up to 160bpm... it was HORRIBLE!!!

boy do i understand the longings tho... tonight i totally wanted to drive thru McD's... i wanted cheeseburgers!!!! with squishy buns...i could taste it :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bridgetm Enthusiast

I often crave that one last sub sandwich or cookie or pizza or breaded chicken... Then I remember how awful I felt after eating that junk even before I started having trouble with gluten. Everyone apologizes for eating that junk in front of me, but I can just picture what's happening inside their bodies and feel no jealousy at all.

It's true about your taste buds though. I just brought a load of laundry upstairs and someone was baking brownies in the lounge next door to the laundry room. They smelled amazing and I thought "I want one" but then I realized that it didn't sound that good after all. The smell just reminded me that I was hungry.

Skylark Collaborator

We really forget how desperate we were to feel better. I was so run-down I didn't really care much what I ate. At this point I'm like Bridget. I'll smell gluten food and get hungry but I wouldn't eat it.

gf-soph Apprentice

I did do the 'one last meal' but it was mostly a lot of favourite junk like gluteny chocolate, marshmellows, bikkies etc. I will say it helped, but only because it reminded me that it really wasn't that great. I also felt pretty sick after, which helped. I think regardless of whether you had that meal or not, it's still really hard getting through the first months when everything is adjusting. Funnily enough after 2 years gluten-free, the smell of gluten toast makes me feel really queasy. Don't know why, but it does!

Interestingly, I'm 3 months through an elimination diet and believe it or not one of the challenge foods was chocolate. I loved the first few bits, but by the second day having it I realised that it wasn't nearly as nice as I imagined it was when I couldn't have it. I still have been craving it like mad once I've finished the challenge period, so knowing you don't want it that badly doesn't stop you actually wanting it...if that makes sense!

Take heart that the cravings do lessen, and I think your tastebuds really do change. At the very least, for me I think the vividness of my old taste memories have faded over time, so I don't crave things with such intensity.

sahm-i-am Apprentice

I totally get this! And I agree that our taste buds and cravings change. I craved mushroom soup last month - I have never liked mushrooms before, but that day I was buying 3 different kinds of 'em to chop and saute! Now I crave that instead of homemade wheat bread. Weird!

But, I have not found a good substitute for Cinnabons! Oh My! The one thing that keeps me from cheating is the fear that it will taste off now and ruin the 'memories'! Hope that makes sense.

Wendi

GlutenFreeManna Rising Star

Yikes, "last meal" makes it sound like celiac is a death sentence. You can get gluten free pizza and bread for sandwiches. I tried the King Arthur Gluten Free pizza crust recipe this weekend and it tasted almost like a Pizza Hut pizza to me. I couldn't tell it was gluten free. For bread look for Udi's or Katz. I haven't tried makign my own bread yet, but I'm going to soon because homemade gluten free goodies seem to be the best tasting.

lynnelise Apprentice

I understand where you are coming from, I sometimes see things and wish I could have them one last time. Then I think even if I ate it again I'd still be thinking that I wish it wasn't the last time. I'm not even sure I could enjoy it because I'd be so miserable thinking about never having it again!

sandsurfgirl Collaborator

My last gluten meal was at an all you can eat pizza place and I ended up nearly passing out from the dizzy spells, having every heart attack symptom on the list including shooting pain down my left arm, etc and ended me in the ER thinking I might die. When my husband dropped me off (no sitter and they wouldn't let our small kids come in cuz of germs) I told him "If I don't make it out of here alive or I'm unconscious please don't fall apart. Stay strong for the kids if I die." He cried dropping me off and our family lived through a day of terror.

So... it's just not worth it.

There are very few things I can't replicate gluten free or can't find in existence somewhere. Beer is a tough one. Good dark beer like Guinness, but after what I've lived through it's not worth it.

It's weird the things we grieve though. I was having a pity party myself recently because I got glutened when I ate out the last two times.

Go make yourself some gluten free treats and indulge!

bridgetm Enthusiast

Yikes, "last meal" makes it sound like celiac is a death sentence. You can get gluten free pizza and bread for sandwiches. I tried the King Arthur Gluten Free pizza crust recipe this weekend and it tasted almost like a Pizza Hut pizza to me. I couldn't tell it was gluten free. For bread look for Udi's or Katz. I haven't tried makign my own bread yet, but I'm going to soon because homemade gluten free goodies seem to be the best tasting.

I have found plenty of replacements for my favorites and I often think that they taste better than their gluten-free counterparts, but at the same time it's just not the same.

sandsurfgirl Collaborator

I post this all the time but Gluten Free Pantry's basic white bread mix is AMAZING. So "normal" tasting, makes a nice big loaf and holds together nicely for a sandwich. Their french bread and pizza mix is great too. Makes wonderful pizza crust.

TrillumHunter Enthusiast

I have thought of that, too. I remember leaving the drs office SO FREAKING GLAD that something so simple was what made me sick for so long.

I would have had an everything bagel from my local bakery, but oh well.

moyer17 Newbie

So, I usually try to stay positive on here...especially with new people since I know how hard this is to deal with. But, I have to vent and maybe this looming cloud over my head will go away. I never ate a last gluten meal. My last thing I ate was at a pot luck at work, frozen Simeks meatballs cooked in a crockpot....really!? I never thought, hm, I will never eat some of my favorite foods again...I should ENDULGE! Instead I STOPPED the day I found out I had Celiacs. It's been almost a year (in November) and I am just now realizing this? What the heck? But, for some reason, whenever I see a delicious pizza or sub sandwich from my favorite places....I just WISH I would have had just ONE more thing...I can't even remember the last time I actually enjoyed my favorite foods and never knew it would be the last time I would ever eat them. I am just mad at myself for the moment...it will pass I know, but I am just so angry at myself for not eating one more thing....but why hold on to the "woulda, coulda, shoulda"...nothing I can do about it now. Thanks for listening whoever reads this!!

I felt the same way, I found out through just routine tests so I was not prepared at all. The analogy of the smoker is pretty wise which is something I can relate to (quit 3 years ago) Biopsy was positive and follow up bloodwork very positive. I kind of wish I had a big store bought birthday cake that night, or perhaps a dozen donuts. Oh well, I am very fortunate that there are a number of gluten free foods and and great websites like this.

i-geek Rookie

Yikes, "last meal" makes it sound like celiac is a death sentence.

I think that, for me, I don't so much mourn the foods themselves as I do the convenience factor- and yes, celiac is a death sentence for convenient eating. I remember the last Jimmy John's sub I ate and how convenient it was to grab for lunch from the shop a few blocks away. It was tasty, sure, but not worth the blinding, nauseating migraine that set in an hour later. I don't care about the sub sandwich- I can make really good from-scratch gluten-free bread here at home and top it with my own meats and dressing. On the rare occasion that I want a sandwich, that does the trick. It would be so nice, though, not to have to worry about packing my lunch every single day because there's nowhere safe to eat anywhere close to my work building.

sherrylynn Contributor

I think that, for me, I don't so much mourn the foods themselves as I do the convenience factor- and yes, celiac is a death sentence for convenient eating. I remember the last Jimmy John's sub I ate and how convenient it was to grab for lunch from the shop a few blocks away. It was tasty, sure, but not worth the blinding, nauseating migraine that set in an hour later. I don't care about the sub sandwich- I can make really good from-scratch gluten-free bread here at home and top it with my own meats and dressing. On the rare occasion that I want a sandwich, that does the trick. It would be so nice, though, not to have to worry about packing my lunch every single day because there's nowhere safe to eat anywhere close to my work building.

That is exactly what I mourn is the conveniece of grabbing somthing from subway or mcdonalds. It is somtimes tiring to have to cook all the time.

Cypressmyst Explorer

:lol: It has only been 3 months for me but my last meal, unknowingly, was a hurrah. Pizza from a decent place in Milwaukee, organic brownies that were delicious, and Guiness beer. I affectionately call it the "trifecta." :lol:

The next morning I woke up feeling run down and awful and remembered my cousin telling me about gluten and to watch how I felt after I had pizza the next time (My favorite meal). So I went off gluten the next day for a month to see what improved.

Turns out that dang near everything did. :blink:

I'm not going to lie, I miss my Guiness but not at the expense of my thyroid, joints, muscles, brain etc...

But at least the last thing I had was a Guiness...totally worthy of a last gluten "meal."

Green's Dark Ale is pretty good too though. ;) Best of all, it's not killing me. :ph34r: (Can't wait til they bring their stout stateside!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.