Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Said "gluten", Not "cheese"


BethM55

Recommended Posts

BethM55 Enthusiast

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kayo Explorer

Oh yes, all the time. Well meaning friends will ask, can you have carrots? rice? I just look at them puzzled. People really don't seem to understand the differences between vegetables, fruits, dairy and grains so expecting them to understand what gluten is like asking them to speak Chinese. Unless you deal with food intolerances yourself I find very few people are educated about what they put in their mouths. I've always been someone who cooks and someone who enjoys trying different recipes, foods and cuisines so I feel like I was lucky in a way. I had a leg up when I had to give up gluten (and soy, and foods high in fructans and fructose) because I could adapt the foods I already knew how to cook.

My sister, who was recently diagnosed celiac, went to a restaurant and told her server she was gluten free. The server proudly boasted that everything in the restaurant was gluten free. My sister asked, even the bread? The server said yes. Knowing this was not true she asked the server to check. The server came back, apologized, and admitted she had no idea what gluten was.

So many restaurants are trying and yet there's still a long way to go.

ElseB Contributor

I was in France last summer and while I don't speak a lot of French, I was able to say "pas du ble" (no wheat). Unfortunately some waiters kept thinking I meant "pas du lait" (no milk)! I don't really think it was my French but rather that the idea of someone not being able to eat wheat was incredible to them!!!

You're so right about people having no idea what they're eating. I overheard a hilarious conversation on a train once in which a woman was telling her friend about how she was trying to eater better, and so she was eating whole wheat rice (who knew there was a wheat-rice blend!). She also talked about how someone she worked with had a wheat allergy which meant that she couldn't eat whole wheat bread, only white bread. Hmmmmm, what did she think the white bread was made with????

K-Dawg Explorer

Kayo - your post made me laugh so hard -- "yes, everything is gluten free, even the bread" O.M.G. That is usually my sign to run out the door because you KNOW that even if you order a gluten-free meal, somewhere down the line someone will gluten it via cross-contamination, etc.

I just can't get over it...even the bread is gluten free. awesome funny (and, of course, terrible)

KDawg

Oh yes, all the time. Well meaning friends will ask, can you have carrots? rice? I just look at them puzzled. People really don't seem to understand the differences between vegetables, fruits, dairy and grains so expecting them to understand what gluten is like asking them to speak Chinese. Unless you deal with food intolerances yourself I find very few people are educated about what they put in their mouths. I've always been someone who cooks and someone who enjoys trying different recipes, foods and cuisines so I feel like I was lucky in a way. I had a leg up when I had to give up gluten (and soy, and foods high in fructans and fructose) because I could adapt the foods I already knew how to cook.

My sister, who was recently diagnosed celiac, went to a restaurant and told her server she was gluten free. The server proudly boasted that everything in the restaurant was gluten free. My sister asked, even the bread? The server said yes. Knowing this was not true she asked the server to check. The server came back, apologized, and admitted she had no idea what gluten was.

So many restaurants are trying and yet there's still a long way to go.

GlutenFreeManna Rising Star

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

Is it possible the chef thought you couldn't have cheese on your salad because it was bleu cheese or a commercial shredded cheese with flour dusted on it? I have heard some shredded cheeses have wheat flour put on them, but I have never seen it in the store so I don't know if it is true. Or perhaps their cheese is cross comtaminated. I went to a pizza place with a gluten free pizza crust option and I asked if I could have one of the specialty cheeses other than mozarella. The server went to check and came back to tell me only the mozarella was gluten free. What that meant was they kept some moz out of the regular prep area to prevent cross contamination, but all the other cheeses were probably cc'd from being used on regular pizzas.

BethM55 Enthusiast

Is it possible the chef thought you couldn't have cheese on your salad because it was bleu cheese or a commercial shredded cheese with flour dusted on it? I have heard some shredded cheeses have wheat flour put on them, but I have never seen it in the store so I don't know if it is true. Or perhaps their cheese is cross comtaminated. I went to a pizza place with a gluten free pizza crust option and I asked if I could have one of the specialty cheeses other than mozarella. The server went to check and came back to tell me only the mozarella was gluten free. What that meant was they kept some moz out of the regular prep area to prevent cross contamination, but all the other cheeses were probably cc'd from being used on regular pizzas.

Good point. I'll keep that in mind and ask next time. I'm fortunate not to be as sensitive as some to CC, but I'd like to avoid it anyway. So far so good today...

I asked for and the server brought a plate of dipping oil, so I could dip the bread I brought with me. We left a nice tip for her. She was pleasant and helpful, worked to be sure my dinner was ok for me.

psawyer Proficient

I have heard some shredded cheeses have wheat flour put on them.

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethM55 Enthusiast

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.

Commercial shredded cheese generally contains more than cheese, however. Anti-caking agents and other chemicals that, IMHO, do not belong on cheese. Ok, I'm a bit of a purist, and maybe a cheese snob... But I prefer to avoid extra chemicals in my food. Give me real cheese, please! :lol:

GlutenFreeManna Rising Star

In the years I have been on this board nobody has ever been able to provide an actual case of this. I consider it to be one of those celiac urban myths.

Hence the reason the rest of my sentence said "but I have never seen it in the store so I don't know if it is true."

Jestgar Rising Star

Hence the reason the rest of my sentence said "but I have never seen it in the store so I don't know if it is true."

Some people have difficulty staying focused through an entire paragraph, especially when newly diagnosed. The important parts are sometimes worth repeating. :)

MelindaLee Contributor

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

I had two similar experiences this week! 1. At the Grocery store, they had a marinated roast with sample. They were wonderful and checked the marinate (and I got a list of gluten free meats from the meat counter, so BONUS), then proceeded to offer me a sample, and stuck a pretzel in it! :lol: 2. I called ahead to a restaurant to see if they offered anything gluten-free. I was assured they did. When I arrived I told the server I need the gluten-free menu. He attempted to inform me what on their regular menu I could have. "How about the Ruben, though you will have to skip the cheese and the 1000 Island dressing...or...you could have the meatloaf". :huh: REALLY???? I did follow up with a call back to the manager of the restaurant to "educate" them. Gotta ove people, sometimes. :blink:

EDIT: uhm...that was "Gotta love people"

BethM55 Enthusiast

I had two similar experiences this week! 1. At the Grocery store, they had a marinated roast with sample. They were wonderful and checked the marinate (and I got a list of gluten free meats from the meat counter, so BONUS), then proceeded to offer me a sample, and stuck a pretzel in it! :lol: 2. I called ahead to a restaurant to see if they offered anything gluten-free. I was assured they did. When I arrived I told the server I need the gluten-free menu. He attempted to inform me what on their regular menu I could have. "How about the Ruben, though you will have to skip the cheese and the 1000 Island dressing...or...you could have the meatloaf". :huh: REALLY???? I did follow up with a call back to the manager of the restaurant to "educate" them. Gotta ove people, sometimes. :blink:

EDIT: uhm...that was "Gotta love people"

I'm SO glad it's not just me! :lol:

mbrookes Community Regular

After telling a server that I can't eat wheat, barley or rye, I have been asked if rice is OK. I have also been told in restaurants that the bread is gluten free.

Here is the one that bothers me. If I order prime rib, sometimes I'm told that I can't have the au jus. I thought that was the juice from the roast, which should be OK. What is au jus?

sandiz Apprentice

We had out of town guests this weekend, and consequently ate several meals out. Twice, after discussing gluten free with the servers, they came back and questioned me about cheese. :blink: "The chef says you can't have this item because there is cheese on it." "OMG, there's cheese on your salad! Is that ok???" I'm pleased they are asking and alert, but they are alerting to the wrong foods. What is this? I'm ok with dairy, fortunately. It's the gluten, people! Has anyone else experienced this strange phenomenon? :lol:

If you eat out and have salad with cheese on it I would say no to the cheese. Most restaurants have pre shredded cheese and they have a powder on them to stop the sticking, this has gluten in it. So please don't know the waitress or the chef for the question.

sandiz Apprentice

After telling a server that I can't eat wheat, barley or rye, I have been asked if rice is OK. I have also been told in restaurants that the bread is gluten free.

Here is the one that bothers me. If I order prime rib, sometimes I'm told that I can't have the au jus. I thought that was the juice from the roast, which should be OK. What is au jus?

From having a restaurant ourselves, yes the au jus should be the drippings from the roast but you will have so many people to feed that you make it bigger. Adding beef base which has gluten in it and maybe a little flour for a slightly thicker au jus.

psawyer Proficient

Most restaurants have pre shredded cheese and they have a powder on them to stop the sticking, this has gluten in it.

Again, in the years I have been on this board nobody has ever been able to provide an actual case of this.

Jestgar Rising Star

Again, in the years I have been on this board nobody has ever been able to provide an actual case of this.

And gluten/flour would be sticky anyway. It wouldn't be used to keep shredded cheese free flowing.

anabananakins Explorer

I had cheese last night that had an anti-caking agent, but the ingredients were specified (corn starch and something else) so it was gluten free. I'd heard mention of it here so it was interesting seeing it, especially since it made absolutely no difference to the stickiness of the cheese which was no more or less sticky than other grated cheeses. Seemed really unnecessary and annoying for anyone sensitive to corn starch.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,702
    • Most Online (within 30 mins)
      7,748

    Coach Chris
    Newest Member
    Coach Chris
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.