Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin A Deficiency?


Coolclimates

Recommended Posts

Coolclimates Collaborator

I was just diagnosed with Vitamin A deficiency as well as a Zinc deficiency. All my other vitamins were apparently ok. I've read that Vitamin A deficiency is very rare and only happens in people with severe Celiac disease. Well, I was diagnosed with celiac disease back in May 2010 and just came positive for the HLA DQ2 gene as well. Also, my IgA levels are still quite high, despite being on the gluten free diet since May. It's very frustrating.

Does anyone else have Zinc dificiency besides me as well as Vitamin A??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Yep, I have them both.

ravenwoodglass Mentor

Hopefully your doctor is going to monitor you progress with the supplements. Too much vitamin A is not a good thing so be sure to follow the supplement regime your doctor advises and don't overdo the supplements.

A more serious concern is that your antibody levels are not coming down. What are you typically eating? Are you going with whole unprocessed foods? It is a pain but you need to do so for a bit to get those levels down. You have another post, I think, in which you are looking at the possiblity of other intolerances. If you antibodies are not coming down it is likely, IMHO, gluten is contributing to your continued issues more than other intolerances.

Coolclimates Collaborator

I've been VERY careful about what I'm eating, but probably not careful enough. I have been eating some processed foods (although they say they are gluten free) and eating out at restaurants sometimes. I just don't know what it could be. It's driving me crazy. Hope to have some answers this week...

WheatChef Apprentice

Try eating beef or chicken liver once a week. There's all the vitamin A you need!

Coolclimates Collaborator

I can't stand liver or other organ meats, unfortunately. I'm not even that wild about meat. But I'll eat more if necessary.

WheatChef Apprentice

Meats and especially meat organs are your best sources for all fat soluble vitamins. If you simply can't stand it though, alternative sources include eggs or better yet some simple fish liver oil! One teaspoon of the Cod Liver Oil I have in my fridge contains 850 IUs of Vit A and over 400 IUs of Vit D (they work well together). Add to it the additional anti-inflammatory and cognitive boosting effects of fish oil supplementation and this may be something you'd want to try out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Coolclimates Collaborator

I started taking a Vitamin A pill today but the only ones I could find also had Vitamin D added. I wonder why I can't just find plain Vitamin A pills? I suppose extra Vitamin D wouldn't be too bad (I'm already ok on that vitamin), but I'm not sure if it could cause problems. Sometimes too much of any vitamin can be a problem.

WheatChef Apprentice

Considering that the latest scientific recommendations for pregnant women are to supplement with 4,000 IUs/day for VitD I don't think you'll have much of an issue hitting the toxicity levels for it. Also considering that recommended level for supplementation, I'm betting the standard range given on your test results were out of date and ridiculously low. The "Adequate Intake" value given to us by our always dangerously inept at nutrition government is at 200, so they're only off by a factor of 20... Apparently the only recorded case of toxicity from VitD supplementation was the result of a manufacturing error whereby pills contained over 400x the labeled amount and resulted in a man taking between 150,000 and 2,000,000 IUs every day for almost 2 years. The man fully recovered. Vitamin D is necessary for the proper genetic expression of over 200 different proteins so you will probably only experience a side effect of better health/athleticism/respiration/etc.

  • 1 year later...
USF1970 Apprentice

I too have just been diagnosed w/Vit. A deficiency. It's manifested in my eyes.......dry, itchy and red. My ophthalmologist had to 'go to the books' to determine the cause. He got suspicious when I told him that I wondered if my glaucoma eyedrops contained gluten. Don't know if he would have DXd w/o me mentioning that. At any rate, heading back to my GI next week for more tests. And so it goes. BTW, I'm my doc's 'most compliant celiac disease patient'.......wonder what his least compliant celiac disease patient looks like.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,919
    • Most Online (within 30 mins)
      7,748

    globello
    Newest Member
    globello
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.