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- lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Help figuring out stomach pain
Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone? We cut out oats and it didn't make any difference. She doesn... -
- badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Still unsure.....
Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea? -
- knitty kitty replied to cristiana's topic in Related Issues & Disorders28Ectopic heartbeats - any relation to digestive issues?
@cristiana, Yes, I found high carbohydrate meals would trigger mine as well. I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine. Heart palpitations are a symptom of thiamine insufficiency. Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy. The more... -
- knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff26
Does anyone here also have Afib
I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine. The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain. Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins. It should tell you what form of thiamine is in...
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Hi, My 3 year old was diagnosed a couple months ago. We went gluten free, very strict, and everything improved. Energy, no more meltdowns, bad rash is mostly gone. She's doing great. Except she complains every day of stomach pain. She describes it as squeezing. Any ideas from anyone? We cut out oats and it didn't make any difference. She doesn't drink milk, though she has cheese. It doesn't seem to coincide with the cheese. She says it hurts when she wakes and then other random times during the day. We are SO strict with her food. We don't eat out, out whole house is gluten-free. I make everything from scratch. She eats very healthy. She's not picky and we do tons of fruit, veggies, meat, etc. we don't do a lot of processed food.
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By badastronaut · Posted
Ok so I couldn't find the thiamine you suggested but I was able to buy a bottle of 'standard' thiamine (100 mg). Should I just try half a tablet to see if I notice any difference? If it turns out it does have effect I can always buy the more expensive stuff. Or is that not a smart idea? -
By knitty kitty · Posted
@cristiana, Yes, I found high carbohydrate meals would trigger mine as well. I learned from Dr. Lonsdale that high carbohydrate diets can deplete thiamine. Heart palpitations are a symptom of thiamine insufficiency. Diets high in refined simple carbohydrates (empty calories) need additional Thiamine to process the carbs into energy. The more carbs one eats, the more Thiamine is required to process the additional calories. 500 mg more Thiamine is required for every additional one thousand calories. This is named "High Calorie Malnutrition." Sufficient calories are being consumed, but not enough of thiamine to burn the carbs for energy. Instead to ration out the small supply of thiamine, the additional calories are stored as fat. It takes less thiamine to burn fat than to burn carbs. Do read Dr. Lonsdale' article here... Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ -
By knitty kitty · Posted
I used to suffer with migraines, but I have rarely had one since I started taking additional Thiamine. The form called TTFD (tetrahydrofurfuryl disulfide) can improve neurological functions in the brain. Benfotiamine is another form that improves migraines. Look at the label on your B Complex vitamins. It should tell you what form of thiamine is in it. If it says thiamine mononitrate, you're probably not getting sufficient thiamine. Thiamine Mononitrate is a form used in vitamin supplements and foods because it is shelf stable. Shelf stable means it won't break down when exposed to heat and light sitting on a shelf waiting to be bought in a store or warehouse. It also is very difficult for the body to break it down and utilize it. Only about thirty percent of the amount of thiamine mononitrate on the label is absorbed. Do take a look at Dr. Lonsdale and Dr. Marrs' website hormonesmatter.com. Dr. Lonsdale has done much research on Thiamine. Keep us posted on your progress! -
By knitty kitty · Posted
@DebJ14 The Spectracell Test for Micronutrient Deficiencies tests intracellular levels of the nutrients INSIDE Leukocytes (white blood cells) which are in the bloodstream. This still is not reflective of current stored vitamin levels inside organs. The genetic MTHFR mutation does occur frequently with Celiac Disease. Taking the methylated (activated) forms of the B vitamins is necessary. A good multivitamin may not be sufficient to correct deficiencies. Malabsorption due to the intestinal damage of Celiac Disease may prolong deficiency states. Vitamin deficiencies need to be corrected quickly to prevent long-term problems. Taking a B Complex twice a day increases absorption. Taking a multivitamin as well is fine as multivitamins usually also contain some necessary minerals.
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