Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Symptom!

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

My understanding is that pregnancy changes everything. :P

jerseyangel Proficient
jerseyangel
Posted

Could they be caused by the virus (cold) you had?

K8ling Enthusiast
K8ling
Posted
  • Author

Could they be caused by the virus (cold) you had?

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

jerseyangel Proficient
jerseyangel
Posted

I wondered about that! I have never had mouth ulcers before EVER even with a cold. so I am curious about this.

I've had something like that after a cold--like a cold sore but inside the mouth. It hasn't happened to me in years--I was under a lot of stress when it would happen.

Lisa Mentor
Lisa
Posted

Yes, there is some research that links cold sores or mouth ulsers to Celiac....now, to put my finger on it? :huh:

From PubMED:

Aphthae are seen in patients with hematinic deficiency (iron, folate, or vitamin B12); celiac disease; Crohn's disease; HIV infection, neutropenia, and other immunodeficiencies. The mouth ulcers in Behçet's syndrome are often major aphthae with frequent episodes and long duration to healing

Diagnosis of aphthae is based on the patient's history and clinical features because specific tests are unavailable. A full blood chemistry (hemoglobin level, differential white cell count, and red cell indices), iron levels, and possibly red cell folate and serum vitamin B12 measurements, and other investigations may help exclude systemic disorders. Biopsy is rarely indicated.

srall Contributor
srall
Posted

My daughter and I both had mouth ulcers which going gluten free has cleared up.

Good luck on that gluten free baby btw

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rainer83 Newbie
rainer83
Posted

I used to get those when I used to use lipgloss made with wheat germ. I also used to use shampoo with wheat germ and it would made my scalp so itchy, my teachers used to think I always had lice.

cap6 Enthusiast
cap6
Posted

mouth ulcers were a big deal with me before going gluten-free. I would get 8 or 9 at a time. I still get them once in awhile but since going gluten-free they never ulcerate to the point of total pain. Good luck with your little bun.

SGWhiskers Collaborator
SGWhiskers
Posted

Look into hand foot mouth disease (not hoof and mouth disease). It is a coxsackie virus that causes prolific mouth ulcers along with a cold. I had the type that does not cause hand and foot spots, just mouth ulcers and the cold. I was as sick as ever with that virus. I don't remember if it caused GI problems as well, but I do remember a really bad GI issue sometime that year. It was 7 years ago now. If I didn't have mild celiac symptoms all growing up, then that virus was certainly the triggering event for my celiac. And if you google it, remember I was a school employee at the time working with kindergarteners and elementary kids. When I went into the doctor, he called his student in to see because the spots on my tonsils looked like strep, but then I had ulcers on the roof of my mouth as well which we learned was a hallmark of coxsackie vs. strep.

Skylark Collaborator
Skylark
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Eilidh Newbie
Eilidh
Posted

Hey,

So I get mouth ulcers...but really badly. I only get one or two at a time and they last for up to 2 1/2 weeks! They are EXTREMELY painful and I end up eating very little food when I have them. The form that I have is called Aphthous ulcers. They are an auto-immune infection that often occurs when you have a low immune system. SO, when you get sick, or get cross-contamination, or eat gluten, your immune system has to work a lot harder to deal with the gluten and leads to low levels of immunoglobulin in the oral mucous membranes. Then if you end up injuring the inside of your cheek, your body has a very hard time replenishing your oral mucous membrane....leading to a canker sore or mouth ulcer.

Thats at least as much as I could find out. They are not contagious, and so you didn't contract it from the kid with the cold.

As for the pregnancy... celiac has been known to effect women getting pregnant, because the body takes such a long time to heal. When my mom was trying to get pregnant with me (before she knew she was celiac)she went to the doctor and he said that she wasn't absorbing nutrients, and to eat a lot of ice cream...and it worked. It might not be it...but it is all I can suggest.

I hope this helps a bit.

Good luck with the baby,

Eilidh

Danig5 Newbie
Danig5
Posted

My mouth has ulcers!! THis is a very new symptom and I think I got cc'd with the kidlet sharing snacks while we had colds.

Usually I only have gastro problems but the mouth ulcers are actually preferable to me LOL I can handle those easily.

Can my symptoms change with pregnancy? We are working on putting a gluten-free bun in the oven.

I am new to this blog thing but I have Celiac and in the past I have had horrid ulcers that required medical attention they have since disappeared now that I know what is wrong with me. :) best of luck

Marz Enthusiast
Marz
Posted

Heya,

I don't think I got full on ulcers, but I did have problems with biting my cheeks, and having the sore stay around for several days. Nowadays I have a sore spot for an hour and then I'm all better :)

K8ling Enthusiast
K8ling
Posted
  • Author

Thanks guys! This hung out for about 2 weeks and then FINALLY went away. It was quite difficult to eat!

I went to the doctor again yesterday and I am showing physical symptoms of being pregnant so they gave me a blood panel and a hormone shot (getting pregnant isn't an issue but staying pregnant is) so I am at home on partial bed rest.

Thanks for all the help guys! I'll keep you posted!

cyberprof Enthusiast
cyberprof
Posted

I had canker sores in my mouth all my life. They disappeared gluten-free. I often get one or two when I've been glutened.

Ditto.

I eat lots of extra garlic (raw preferred) which stings a bit but helps them heal faster.

Good luck! I hope you have good news on the baby soon.

SoyBoy Rookie
SoyBoy
Posted

B-complex deficiency can cause mouth ulcers, and of course is common with Celiac. Since you are working on getting pregnant, do you happen to be taking folic acid supplements? I think I remember reading somewhere that folic acid may mask some B12 deficiency symptoms, and may even lower B12 levels. I

K8ling Enthusiast
K8ling
Posted
  • Author

Yep! Def taking B6 and a prenatal (gluten-free of course).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.