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How Many Of You Are Also Casein Intolerant?

julie5914

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julie5914 Contributor
julie5914
Posted

I know that casein intolerance is linked to celiac, but I don't know to what extent. I have definitely felt better gluten free, but sometimes I react to yogurt (don't seem to have trouble with milk). Most of all, I don't want to be doing all this gluten-free work for nothing and have damage from casein. I know that I am not lactose interolernt from a breath test.

So, do you guys also have casein intolerance, and how did you know for sure? I don't get blood levels checked again until Oct.

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frenchiemama Collaborator
frenchiemama
Posted

I'm beginning to think that I have a problem with dairy and also egg yolks. I plan to have the york food scan done, but I can't afford it right now.

jenvan Collaborator
jenvan
Posted

I am casein, whey, all forms of milk intolerant! Just really figured it out from a food intolerance test. However, a ton of foods showed up for me, and some of which I have never noticed an issue with. Food intolerances are definitely real, however, I think there still needs to be more research on how a food intolerance can or can not damage the body. The best confirmation is to keep a food journal and do a rotation diet. Elminate dairy for a few weeks, then introduce it back in and notice if symptoms start to return. Intolerance symptoms usually differ from classic allergy symptoms--they are more like-- gastrointestinal issues, head aches, fatigue etc. I am actually cf/milk-free right now for a few weeks to see how I feel. According to the test I am also intolerant of just about everything! --rice, egg, milk, soy, almonds, peanuts, some fruits and vegetables too.

The lab I used was great plains. I used them b/c they were less $ than york, and my insurance actually paid for it, whereas my insurance won't pay for york. You can ck them out at Open Original Shared Link

Jnkmnky Collaborator
Jnkmnky
Posted

We're not casein intolerant that I know of, but since posting here we've decided to go dairy free. We've got Pacific rice milk *almond and hazelnut flavored, and Lundberg farms drink rice *vanilla and original flavors. I'm using olive oil and pam. We had tacos without cheese, made Chebe without cheese. I've been gluten free before in my life for 4 months one time. I felt better. This is the first time I've ever been dairy free and I feel GREAT. I really notice a difference in my energy, my senses, my circulation. I can't believe how noticiable the dairy free has been for me. My kids say they feel great, too. They all like the rice milk on their cereal. They had apple butter *no dairy in that* on their toast yesterday and thought it was great. We aren't missing it at all. My husband tells me that he'll go along with this until he wants ice cream. I didn't expect him to go along AT ALL! But he's on board. I think when he has that first bowl of ice cream, he'll feel gross inside and have a better understanding of how bad dairy is for his body. So, I'm actually looking forward to his first bowl of ice cream. Why do you feel you need to pay for an expensive test to go dairy free? I believe dairy free can be evaluated by trying it for a week or two. Are you afraid of the restrictions added to the gluten-free diet? Kinnikinnick makes lots of gluten-free casein free bread products that are very tasty. Chebe can be prepared dairy free. Rice milk is ooookkkkaaay. Kids can get used to it faster, I think. Coffee isn't quite the same without half and half, but the Almond flavored Pacific rice milk is pretty good. You have to add a lot, though. I've read that the body absorbs nutrients better when you go dairy free. You can look that up to see for yourself. There are reasons this is true, I'm just not equipt to explain. ;) Our country has the highest consumption of dairy products in the world and the most cases of osteoporosis and hip fractures because dairy consumption causes the body to be unable to absorb calcium! I'm making a large salad everyday, filling it with spinach, grapes, tomatoes, etc and we're eating it with lunch and dinner. Supposedly, there's plenty of calcium in leafy greens, etc to give our bodies what we need.

tarnalberry Community Regular
tarnalberry
Posted

Casein induced villi damage is very very rare. It can happen, but mostly it just causes uncomfortable symptoms. And it's not detected by the same tests as the gluten intolerance testing.

I determined I was having problems with dairy by doing an elimination diet. I plan to test it again in the future, however.

Emme999 Enthusiast
Emme999
Posted

I'm allergic to all forms of dairy - including the components whey & casein. I found out by means of an ELISA blood test (through US BioTek labs). Otherwise I would not have known! How wild is that? I had guessed that I was lactose intolerant, but had no idea about the allergy - and that I was actually causing trouble for myself while ingesting huge amounts of whey protein on a daily basis.

When I removed dairy from my diet (mid-March), I had a lot of problems resolve. I'd had such a wicked case of bursitis that I had to drop out of my spinning classes as the University and had been in pain all of the time - when I got rid of the allergens (milk products - eggs - sesame), my body stopped hurting. That was much more productive for me than any anti-inflammatory!

There are a ton of links that talk about the dangers of milk products. I listed some of them in another post a while ago: Open Original Shared Link

I came across another site last night that might be helpful to those who are trying to avoid casein (along with gluten). I haven't had much time to look at it - but it seems pretty informative. Here's the link: Open Original Shared Link

Best wishes to all of you!

- Michelle :wub:

aaascr Apprentice
aaascr
Posted

I was diagnosed some 20 years ealier of having allergies (not just intolerance) to dairy, eggs, and a lot of other proteins as well. Celiac was simply the icing on my already flat cake... ;)

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bmorrow Rookie
bmorrow
Posted

Hi,

I am casein intolerant. I was diagnosed by York and EnteroLab. I have had trouble all of my life with dairy products. I could never drink milk, and if I ate ice cream, I would become congested and also have stomach problems. I also tested intolerant to yeast, but I don't avoid it like I do the casein and gluten. I still have stomach problems with bloating and gas, so it could be the yeast???

Merika Contributor
Merika
Posted

I test allergic to dairy (York +1) but eat cheese. I lose weight, get leg aches, and generally feel like crap after several weeks NOT eating it. Milk gives me stomach cramps, and I avoid it.

That said, I do not tolerate yogurt well, but I don't get the same reaction as I do with milk. I think I have (an additional) reaction to the acidopholus added. I figured this out after taking probiotics for 4 days and thought I was going to die, i had such a bad reaction (and they were gluten-free). I have never felt so sick, cold, and *wrong* in all my life. :blink:

Also, the fruit in yogurt is processed with alcohol, so if you are allergic/intolerant of alcohol, that could be an issue too.

Merika

mytummyhurts Contributor
mytummyhurts
Posted

I have been gluten-free for a few months now and feels lots better. I haven't taken anything else out of my diet. I do know about lots of people w/celiac disease having dairy issues too, but I haven't noticed anything yet. Maybe because my celiac disease was caught really early on, my villi wasn't as damaged and I'm not sensitive to lactose.

What exactly is casein? Is it only found in dairy?

Carriefaith Enthusiast
Carriefaith
Posted
Casein induced villi damage is very very rare. It can happen, but mostly it just causes uncomfortable symptoms.
Tiffany, do you have any info on this? I am quite interested.

What exactly is casein?
Casein is the milk protein
tarnalberry Community Regular
tarnalberry
Posted
Tiffany, do you have any info on this? I am quite interested.

Open Original Shared Link

There are some others on pubmed, but I can't find the ones I saw a while back and don't have time for the search. (Can't remember the exact search term I used... :-( )

Carriefaith Enthusiast
Carriefaith
Posted

That's fine! Thanks Tiffany :)

skbird Contributor
skbird
Posted

I was tested through EnteroLab and found to be negative on casein intolerance (I was 6, and <10 is negative). I eat a lot of cheese, some goat milk, yogurt every day. I am also not noticably lactose intolerant. But I possibly have a connective tissue disease and everything I've read says that dairy can cause inflammation which worsens those conditions.

I'm really confused about this. Is it possible to not be casein or lactose intolerant and *still* need to drop dairy? I can't decide what to do. I have been having a lot of gastro problems lately (8 months gluten-free at this point, and avoiding several other allergens/intolerances) and I'm just super bummed out at the idea of possibly having to drop dairy, too.

Does anyone else here have any kind of connective tissue disease, and if so, have you dropped dairy? I'm pretty optimistic about things but wow, this might be a biggie for me. Nevermind the possibility of another disease! Sheesh!

Stephanie

tarnalberry Community Regular
tarnalberry
Posted

I believe that some people have a problem with whey (another milk protein) that is separate from the casein issue.

Also, I have heard - but do not know that there's sufficient evidence about this one - that the byproducts in milk from the large-scale dairy industry does affect some people sensitive to the items. So you might consider organic, small-scale dairy farm products. And some people believe that dairy just isn't good for grown people anyway - particularly dairy from another species.

julie5914 Contributor
julie5914
Posted
  • Author

What is connective tissue disease? I have stiff muscles more than usual lately and a leg injury I got last Fall from running that won't go away, but I don't think I have anything...

mouse Enthusiast
mouse
Posted

I have been tested for food allergies and they came up with all dairy products, soy, corn. egg whites, peanuts. The dairy is my highest and I try to avoid it like the plague. But, I still like a cheese omelet - one egg white the rest are yokes, maybe once a month. But then I have to breath on my nebulzer two times in a row to stop the wheezing. I also carry an Epi-pen. Finally after almost 20 years I stopped craving a glass of milk with a tuna fish sandwich. I was told that mine is not casein, but the protein. I also have some food intolerances, but the others are definately allergies.

Armetta

tarnalberry Community Regular
tarnalberry
Posted

I find avoiding casein (which I discovered I needed to do by a dietary test) to be harder than avoiding gluten. :-(

tinaturb Newbie
tinaturb
Posted
I know that casein intolerance is linked to celiac, but I don't know to what extent. I have definitely felt better gluten free, but sometimes I react to yogurt (don't seem to have trouble with milk). Most of all, I don't want to be doing all this gluten-free work for nothing and have damage from casein. I know that I am not lactose interolernt from a breath test.

So, do you guys also have casein intolerance, and how did you know for sure? I don't get blood levels checked again until Oct.

<{POST_SNAPBACK}>

I KNOW I am alos casein intollerant. I do handle GOAT products a bit better and can take Lactaid to help, SOMETIMES!

Tina :rolleyes:

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