Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation!


missj

Recommended Posts

missj Rookie

I'm wondering how common constipation is instead of the "D". That is my primary symptom along with nausea. My doc said that it is not a "classic" symptom but from what I have read on here, constipation is super common. Is this more common with gluten sensitivity than with actual Celiacs? How many of you have the big "C" and instead of the big "D" as the primary symptom? Sorry if it's TMI or you don't want to share. I'm just super curious about all of this and how others presented in the beginning. The two people I know with Celiac had the more classic symptoms and have severe reactions to being glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



etta694 Explorer

I'd like to know this too, since I get the big D that practically does me in. When it hits - not a gurgle, not a cramp, not a toot - ZERO movement :blink: and then I start to turn grey. It took 3 weeks last time to get things moving again. :) There... how that for TMI. But I am curious because it seems most people have C.. I meant D.. it seems most people have D.

Here's a C thread

ladymiss Rookie

I've had 'C' most of my life. I just thought it was 'normal' for my body to only have a BM every 4 days or so.... My naturopath was aghast to find this out. This was the case even when I was a vegetarian for 15 years.

Only in the last three to four years have I had monthly rotating bouts of C and D. And finally as my health came crashing in me, mostly D.

I recently received the diagnosis of gluten intolerant.

TMI TMI :rolleyes: but an interesting thread.... :)

mushroom Proficient

Your doc was wrong. Constipation and diarrhea are each classic symptoms of gluten intolerance, or alternating between the two. However, he was not taught that in medical school :P

Igg postive Rookie

I'm wondering how common constipation is instead of the "D".

Missj,- I primary have C with bouts of D. The thing is I have hypothyroidism. The one main symptom of hypothyrodism can be C. So that may be causing it or gluten. I was positive to the IGG test so I am at least have gluten Intolerance but will know more after my biopsy. Its best to have a proven celiac doctor check you out.

ElseB Contributor

I have diagnosed Celiac, and I've never ever have D, only C.

Emma-Lee Rookie

"C"!!!!!!!!!! This is why I did not think I could have Celiac. But now I know that I do....so I think either


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

oh boy..... yes- C is extremely extremely CLASSIC... C was my biggest problem... the D usually came with lactose. and then i went thru phases where it was all malabsorption bms... fatty, floating... lymphatic material.. (SORRY TMI)

but ya, C was the most common for me

salexander421 Enthusiast

Still going through the testing process but I definitely already know I have some form of gluten intolerance and my problem is mostly constipation. It seems like I'll be constipated for a week or so and then it's the cramping and having to rush to the potty, but not necessarily D just having to go all of a sudden. This is probably TMI but there's also times when all that comes out is gas and mucous...gross :P

Constipation has also been both my girl's main problem, they're still in the testing process also.

shopgirl Contributor

It was my symptom too for a couple years before I was diagnosed. But I think there were some other issues going on there too

etta694 Explorer
:lol:
nuttmegs17 Apprentice

I'm C for the records - every 3 days about :)

Is there a test to determine malabsorption...I have floating stools but my puffy face and lightheadedness/dizziness (despite balanced diet) is making me think it is all catching up with me.

catarific Contributor

Prior to September 2010, I had always been constipated. Then all of a sudden I had this terrible flare up (or food poisoing, whatever) and then I had been D since until very recently. I came down with a sinus infection and my doctor prescribed ampicillin (small doses - 250 mg) because of my D. But now - the D has totally stopped - how weird - and I am back to C again after 6 months suffering with D. And the malabsorption issues seems to have stopped and the other food tolerances have too (fruit, corn, rice). Yesterday I had a fruit salad with banana and pineapple and the day before strawberries! It is definitely in the C phase again - after the antibiotic. Is this normal?

shopgirl Contributor

Prior to September 2010, I had always been constipated. Then all of a sudden I had this terrible flare up (or food poisoing, whatever) and then I had been D since until very recently. I came down with a sinus infection and my doctor prescribed ampicillin (small doses - 250 mg) because of my D. But now - the D has totally stopped - how weird - and I am back to C again after 6 months suffering with D. And the malabsorption issues seems to have stopped and the other food tolerances have too (fruit, corn, rice). Yesterday I had a fruit salad with banana and pineapple and the day before strawberries! It is definitely in the C phase again - after the antibiotic. Is this normal?

Hmm. Have you tried probiotics? Maybe you have some kind of intestinal flora imbalance from the D and the antibiotics.

txplowgirl Enthusiast

Hah! I got everyone beat I think. Before I went gluten free I had a BM maybe once ever 4 to 6 weeks, for me that was normal. I was like that as far back as I can remember.

I can remmeber fighting with my mother and grandmother when I was 9, the were trying to give me an enema.

The dr's kept telling me to eat more fiber, kept giving me rx's for differnt laxatives. Nothing ever worked, just made me sick.

Now. regular like clockwork.

ladymiss Rookie

hey, i just thought to share something interesting i learned today.

i spoke with my naturopath about recent health screen results (from a health fair includes blood test). my cholesterol levels have gone up significantly from last year. it's only been in the last few months that i've gone gluten free. but i have been eating a diet high in animal proteins- as i couldn't tolerate legumes for a while. she knows that i've had ongoing bouts of constipation. she said when constipated the body reabsorbs the cholesterol from the waste left in the gut. yikes! she also mentioned that if eating animal proteins, to pay attention if they seem to be related to bouts of C. and something else to consider, the more fiber/ veggies and fruits one is eating, the more water you need to drink to help with C and moving things through.

goodnews Apprentice

This is a great thread to see...I haven't been diagnosed yet, but I have C as well and was reluctant to purse Celiac testing because of that. But I have read a lot more about it and see how common it is. I am waiting on the genetic test to come back and my dr. may want to do another endoscopy to get more samples if I have the genetic markers for it (he only took ONE of my small intestine and said that it was inflamed and the report said it could be indicative of celiac). He recently told me to start miralax to help with the constipation. It is worth a shot. Sometimes I do go once a day, but it is typically hard to go and sometimes I only go a couple times a week.

cap6 Enthusiast

My C just keeps getting worse. I thought I was getting well but now with the C I feel crummy more days than not. If C is a symptom of celiac why do I still have it? Makes no sense. I have been gluten-free for a year, don't cheat, am not tempted to cheat and have been glutened very few times. I am so frustrated. :angry:

missj Rookie

My C just keeps getting worse. I thought I was getting well but now with the C I feel crummy more days than not. If C is a symptom of celiac why do I still have it? Makes no sense. I have been gluten-free for a year, don't cheat, am not tempted to cheat and have been glutened very few times. I am so frustrated. :angry:

When I tried my first 100% gluten free diet my constipation got worse because I wasn't getting enough fiber. I have heard FiberCon is the best supplement to try. Anything with that cilium husk stuff will bloat you up more before working. You can also try some magnesium oxide supplements as well, as they draw water into your colon. Just play with the dose until you find one that works well for you.

Also, I have done a mag citrate clense (2 bucks at the drug store)a few times and it usually helps a bit. Then you can start with a nice fresh colon! I hope this helps a little! Good luck!

  • 1 month later...
Lalama Apprentice

Just reading all these posts about C. I have been having this issue for the last two months. And with it-my periods have been extremely painful. My naturopathic doctor put me on these physilium husks capsules (which also have some other natural ingredients) and I have been taking them for about 6 weeks now. They helped me to go-but I was having D instead of a normal bm-and felt kind of bloated from them. But I have been doing a lot of research and I don't think it's good to take them for as long as I have been. Not sure if that's the case? But since stopping them I am now feeling backed up again and really bloated. Very frustrating...

Whatnext? Rookie

Yes constipation is definitely a symptom. My symptoms were constipation, gas and bloating. Oh and excruciating stomach aches every so often.

My blood tests recently came back positive for Celiac. I just had a biopsy (to confirm and check the extent of damage) on Tuesday but the results are back yet.

hsmomof6 Rookie

As a kid I would be very irregular, only once every 3 to 4 days, but then I'd get bouts of D. As an adult, I would be mostly C and then 10 months ago everything went crazy and I was mostly D alternating with extreme C. I started losing weight like crazy and that's when we started looking for a cause. They checked everything. I've had scopes from both ends, CTs of my abdomen and small bowel, blood tests for all sorts of things. It took them 10 long months to finally check me for Celiac. I've been gluten-free for almost 4 weeks now (other than a few accidental glutenings in the early weeks) and I am now regular for the first time in my life. What a difference.

deaja Rookie

For years I've had C then D then a few days of C, etc. I always thought it was just me. I was either C or going multiple times a day. My docs never thought that was enough reason to test me for gluten/celiac until I specifically asked for it.

Now that I'm going gluten-free, I've been C, but I think my system will stabilize and just needs a little time. (It hasn't even been 3 weeks.)

Speaking of the first paragraph, can I say that I'm kind of annoyed with the GI doctor (not so much my general practicioner) who in January kind of acted like everything must be in my head since all tests came back fine and never even brought up gluten!

BeckyMR Newbie

Hah! I got everyone beat I think. Before I went gluten free I had a BM maybe once ever 4 to 6 weeks, for me that was normal. I was like that as far back as I can remember.

I can remmeber fighting with my mother and grandmother when I was 9, the were trying to give me an enema.

The dr's kept telling me to eat more fiber, kept giving me rx's for differnt laxatives. Nothing ever worked, just made me sick.

Now. regular like clockwork.

I haven't posted on here much, but have learned so much from everyone on here :-) I am not officially diagnosed, but know that I am at least gluten intolerant. I too have always had SEVERE "C" since I was a child. I have been to the Dr. numerous times and told that I need to eat more fiber and drink more water. We have been working on our diet as a family for the last few years and getting more and more educated on what is healthy etc. We have eaten a limited gluten diet during this time. I just put together about a month ago that I was gluten intolerant so I have been 100% gluten free for about a month (to my knowledge at least). I am also working with a doctor to get my adrenals, thyroid and hormones back in balance. Even doing all that, I am still taking 2 doses of Miralax a day to go to the bathroom once daily. The first week I was gluten free I went 2X a day, but then it went back to just the one time. How long before I can expect to start going on my own without aid??? I would love to hear other peoples experience on this.

  • 4 months later...
gailc Newbie

The big 'C'? 12 days for me, laxatives and stool softeners did not work. Doctors said over a period of about 30 years, 'what was normal for me was normal', but then they shut me off before i was able to say 12 days, so they never heard that. 5 laxatives, one a day on day 7 thru 11 worked, or did it? It was day 12. First I ever heard of 'normal' numbers was on the Dr. Oz show, he got concernecd if less than 3 a week. I yelled at the TV 'HOW ABOUT ZERO!!!'.

on the gluten-free diet after two weeks, every day and stool softeners when gluten-free, just one on one day worked for 14 days(it was an experiment).

My worst was about 6 weeks--miserable, then I went cross-country skiing for about 8 hours, very strenuous. that worked.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.