Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headache Survey


Newtoitall

Recommended Posts

Newtoitall Enthusiast

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Since going gluten/dairy/corn free my headaches have really abated. It used to be I could have a migraine for days. Now I will get a headache if I need to eat. Unfortunately if I don't eat in time the headache might last the rest of the day. But it's usually gone by morning. They are not like migraines. Just tightness usually or sometimes just in my forehead. Does that make sense?

Mother of a Celiac Rookie

My daughter, with Celiac, who is now gluten, grain and corn, dairy, and chocolate free, gets headaches when she has something that she has an intolerance to. They usually last as long as that food is in her system. Most of the time they are also accompanied by stomachaches too, if not then sometimes they are caused by an on coming sickness. She has been getting a lot of headaches lately that we are trying to figure out...

eatmeat4good Enthusiast

Had daily migraine headaches for years and years. Sometimes unable to get out of bed 2 or 3 days.

Gluten free 6 months...now I only get a migraine with my menstrual cycle.

Susie M. Newbie

I'd like for anyone willing to contribute by copy pasting with their answers.

What causes your headaches.

What are they like? How long do they last?

What do you Trust above all else to help get rid of the headaches.

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

When you take something, how long do you find it takes to help? does it totally elivate the headache?

Thanks again to anyone who can contribute, Please have others you know fill it out, the more the better for any future new members looking for quick easy info on something to take.

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

CarolinaKip Community Regular

I use to have 9 plus migraines a month until I went gluten-free. I'd go through so much migraine meds! Now I only get a dull headache when I get into some gluten. I have not had a migraine in 10 months gluten-free! A lot cheaper on meds now!

etta694 Explorer

Something.. I think dairy and acidic foods but I'm not sure, starts a whole series of sick feeling and an awful headache with sharp pain. I have taken acetaminophen but.. I was not thinking at all and didn't even look to see if it had gluten in it... but it killed the pain for 3 hours. It came back with a vengeance when I ate gluten free spaghetti sauce and rice pasta...and a gluten free peanut butter cookie. All acidic foods.

I hope there are some more posts here because this is a question for me too.

And now, from another thread, I think it may be SA (salicylic acid sensitivity! Ureka!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
ilikepie Apprentice

A lot of foods I am intolerant to cause me headaches. The biggest offenders are sugars and alcohol. I can eat most whole raw fruits, but ANYTHING else sweet gives me major headaches. It usually depends on how much of it I eat. If I take a sip of alcohol or eat less than a teaspoon of cane sugar, I will have a severe throbbing headache for at least 4 or 5 days, day and night. It's best if I lay still and not talk or move. I used to take ibuprofen, which helped minimally, but, it's so hard on the stomach...not something I want to further aggravate. I usually just try to drink lots of water because it feels like it dehydrates me, or like all the water has been sucked out of my brain.

Kate79 Apprentice

I've been suffering from chronic migraines constantly for the last two years, and was really hoping when I found out that I had celiac disease that going gluten free would help. I was diagnosed and went gluten free last June. I've tried going Dairy free for two weeks, but that didn't seem to make much of a difference. If anyone has any suggestions, I'd definitely appreciate it.

As for my medications, my Walgreen's pharmacist has been really good about calling the manufacturer's and making sure everything is gluten free, and she has been able to find alternatives that are. The Imitrex does seem to help the pain, but it never goes completely away.

Just wondering if you've been tested for vitamin deficiency. Low levels of magnesium and vitamin d, among other things, can contribute to migraines.

Kate79 Apprentice

Going gluten free seems to have resolved most of my migraines. I still get them with my monthly cycle and if I accidentally have gluten. They vary in severity - before going gluten free I had low-level headaches that would last for several days as well as very severe migraines with nausea and vomiting that would keep me in bed for 1-2 days. I never found any regular or prescription medications that worked for me, so I just try to sleep it off when I get one.

Evangeline Explorer

Gluten causes me to get headaches. But after avoiding all grains for 2 months, I tried to eat corn again. It felt like my head was about to explode. My brain felt bigger than my skull.

I now believe I am part of those 45% of Celiacs who are intolerant to the gluten in corn as well and have begun a grain-free diet.

I don't take anything when I have a headache. I write down the foods I ate the day and that day and try to start noticing patterns.

T.H. Community Regular

I get very sudden, skull pounding headaches from some of my allergens, like sugar-cane, coffee (just inhaling near the stupid stuff), and soy.

I get a dizzying pounding headache that leads to vertigo when I get gluten. So far, all grains have given me the same headache, except that when I have tried some of these grains in the wild (some grow native, near me), I get no headache, so gluten cc is what I believe is the issue. I am growing some of these grains in my yard, as well, to determine if there are any grains that are actual problems, or if it's all gluten cc.

The biggest issue with this has been with corn in medication, so at the moment, ALL medication has given me a horrible headache, so I can't take any meds that help - they just make it worse. :-(

Sometimes a warm shower helps, sometimes a cold compress on my forehead, but usually, I just do something to distract myself and suffer for a while, unfortunately.

  • 3 weeks later...
jstwnttbhealthy Newbie

what gives me a headache or a migraine (depending on the amount ingested) is msg. it's in so many food under disguise: Open Original Shared Link

lizard00 Enthusiast

What causes your headaches.

Gluten and soy

What are they like? How long do they last?

migraine level, make me nauseaous

What do you Trust above all else to help get rid of the headaches.

nothing works except for time and rest

Have you had trouble with any headache medications? (I.e contains gluten, soy, ect.)

nope

When you take something, how long do you find it takes to help? does it totally elivate the headache?

it usually doesn't help at all (if it's gluten or soy related)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,021
    • Most Online (within 30 mins)
      7,748

    maltawildcat
    Newest Member
    maltawildcat
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanCel
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.