Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hope This Helps :)


jay88

Recommended Posts

jay88 Apprentice

Hi everyone thought id share with everyone my good news!I have grown up with chronic insomnia roughly from the age of 6 I was always fatigued and tired and struggled throughout my childhood and then finally the breakthrough came at the age of 21 (so thats 15 years of sleeping 1 hour a night!) I decided to take an IgG food intolerance test and shown I had positive reactions for gliaden and cows milk! and now after a long wait, (about 4 months in fact!) Im officially no longer an Insomniac, i started sleeping it still takes me an hour to drop off but when i do i sleep through the night.

I do just sit there and think to myself I have been ill my whole life due to food!! its scary to think

Unfortunatly, I still have Brain fog which i can not for the life of me get rid of!

hope this gives people hope :)

James


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wheeleezdryver Community Regular

Hi everyone thought id share with everyone my good news!I have grown up with chronic insomnia roughly from the age of 6 I was always fatigued and tired and struggled throughout my childhood and then finally the breakthrough came at the age of 21 (so thats 15 years of sleeping 1 hour a night!) I decided to take an IgG food intolerance test and shown I had positive reactions for gliaden and cows milk! and now after a long wait, (about 4 months in fact!) Im officially no longer an Insomniac, i started sleeping it still takes me an hour to drop off but when i do i sleep through the night.

I do just sit there and think to myself I have been ill my whole life due to food!! its scary to think

Unfortunatly, I still have Brain fog which i can not for the life of me get rid of!

hope this gives people hope :)

James

That is great!

  • 1 month later...
viviendoparajesus Apprentice

that is great your sleeping better and not having insomnia any more. my sleep got better too when i went off gluten. i used to have trouble falling asleep and staying asleep.

  • 2 weeks later...
Mummyto3 Contributor

I'm another insomniac. I struggle to get to sleep and then when I do, i wake up 2 to 3 times in the night. Whats gliadin???

love2travel Mentor

I've had chronic insomnia for years but the past nearly four it has worsened due to severe chronic pain. It takes a couple of hours to fall asleep then I wake up probably 20-30 times a night. It is difficult for me to get into a good position so I must move often. :huh:

It would be AWESOME if I were to find that this is also related to my celiac. I have been strictly gluten-free nearly five months and would be thrilled if my insomnia improves on this diet.

Marilyn R Community Regular

I used to have insomina. It went away when I went gluten-free. I notice right away when I've accidently injested gluten, because I get maybe an hour's worth of sleep. I'll just lay there and wish, and thoses of you who know, I fidget. I hate the fidgets. :ph34r:

gailc Newbie

Same for me HOORAY, except when I get dosed.

I used to wake up more tired than when i went to bed, then as the day went on I'd feel better then tired around 8 and second wind around 9 then stay up until about 3.

Now i get tired around bed time and then REALLY tired and fall asleep right away. SWometimes I get tired earlier wake up about 7 hours later to discover I'd missed dinner.

I guess that's ok

I feel good when I wake up now


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Whats gliadin???

Gliadin proteins comprise one of the two main protein groups in gluten.

https://www.celiac.com/articles/8/1/What-is-gluten-What-is-gliadin/Page1.html

Newbee Contributor

Looks like I've had celiac my whole life (I'm 37) and just getting diagnosed now because I asked to be tested for it. I've never slept well. I'm soooooooo looking forward to when I heal and hopefully can sleep well!!

bartfull Rising Star

I've had insomnia all my life - sort of. I am one of those people whose biological clock is set differently. I can fall asleep quickly during the day, but after dark I would lie awake for hours. For the past ten years or so, I also had trouble staying asleep. I'd sleep for two hours, then wake up and couldn't get back to sleep. So I'd get up and read for a while, then after an hour or two I'd go back to bed and sleep another hour or two - then repeat until morning.

Since going gluten free, I sleep seven or eight hours straight, every night. If this were the ONLY benefit of a gluten free diet, it would be worth it. I feel GOOD!

lovesaceliac Newbie

Unfortunately, this hasn't been the case for my husband who has been a chronic insomniac for over ten years. Going gluten free two years ago has totally changed our life - he's healthier, happier, thinner, stronger, etc...but still has restless leg syndrome and still sleeps poorly. Sleep is definatley worse when he gets glutened, but pretty bad all the time. As someone who shares a bed with him I've noticed on his particularly bad nights (anxiety attacks, bad RLS, etc.) his whole body seems to radiate heat. He gets so warm that it's uncomfortable for me to touch him. Anyone else have additional solutions to sleep problems?

bartfull Rising Star

I know this sounds crazy, but it works for restless leg syndrome. Put a bar of soap under the bottom sheet near his legs. I'm serious. They don't know WHY it works, but it truly DOES work.

For leg cramps, try a teaspoon of mustard before bed, or if not mustard, try pickle juice. Another crazy home remedy that really works.

lovesaceliac Newbie

I just read several online testimonials about the bar of soap remedy. A miracle for some, doesn't work for others. But hey, might as well give it a try. I'm going to put it in bed tonight w/o telling him and I'll report back. :)

bartfull Rising Star

I just read several online testimonials about the bar of soap remedy. A miracle for some, doesn't work for others. But hey, might as well give it a try. I'm going to put it in bed tonight w/o telling him and I'll report back. :)

Make sure it is unwrapped.

GFinDC Veteran

B vitamins and magnesium are two remedies often suggested on this board. I used to have low grade fevers and wake up sweating a lot. Most likely there is still something in his diet that he is reacting to. Additional food intolerances are common with celiac disease. Any of the top 8 food allergens are possible or multiple foods for that matter. Soy and dairy are fairly common problems but so are nightshades, eggs, corn, nuts etc, etc.

There are a couple threads on "night sweats" on the board.

stellinpa Newbie

Unfortunately, this hasn't been the case for my husband who has been a chronic insomniac for over ten years. Going gluten free two years ago has totally changed our life - he's healthier, happier, thinner, stronger, etc...but still has restless leg syndrome and still sleeps poorly. Sleep is definatley worse when he gets glutened, but pretty bad all the time. As someone who shares a bed with him I've noticed on his particularly bad nights (anxiety attacks, bad RLS, etc.) his whole body seems to radiate heat. He gets so warm that it's uncomfortable for me to touch him. Anyone else have additional solutions to sleep problems?

I have had Restless Leg Syndrome for years. I took medication for it and it really helped me. Unfortunately the medication stopped working several months ago. Going Gluten Free did not seem to help but just recently I cut milk out of my diet and the last 2 nights I had the best sleep I've had in years! I don't know if it is related or not but it's worth a try.

He might want to see a Neurologist about his restless legs.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,127
    • Most Online (within 30 mins)
      7,748

    Steve715
    Newest Member
    Steve715
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Just wanted to add that checking B12 and Vitamin D only is not going to give an accurate picture of vitamin deficiencies.   B12 Cobalamine needs the seven other B vitamins to work properly.   You can have vitamin deficiency symptoms before the B12 blood level changes to show deficiency.  You can have "normal" B12, but have deficiencies in other B vitamins like Thiamine and Niacin, for which there are no accurate tests. Take a B Complex supplement with all the B vitamins.  Take additional Thiamine B 1 in the form Benfotiamine which has been shown to promote intestinal healing.  Thiamine Mononitrate found in most vitamin supplements is not easy for the body to utilize.  What makes thiamine mononitrate not break down on the shelf also makes it hard for the body to absorb and utilize.  Thiamine and Niacin B 3 deficiency symptoms include anxiety, depression and irritability.  The brain uses more Thiamine than other organs.  Take the B Complex and Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and look for health improvements in the following weeks.
    • knitty kitty
      Hello, @rei.b, Ehlers Danlos syndrome and Celiac Disease can occur together in genetically predisposed individuals.  Losing ones gallbladder is common with celiac disease. I'm glad Naltrexone is helping with your pain.  Naltrexone is known to suppress tTg IgA and tTg IgG production, so it's not surprising that only your DGP IgG and DGP IgA are high.   Have you tried the Autoimmune Protocol diet designed by Dr. Sarah Ballantyne, a Celiac herself?  The AIP diet helps lower inflammation and promotes intestinal healing.   The AIP diet is a Paleo diet that eliminates foods that can cause intestinal inflammation until you heal on the inside, then more foods can be added back in.  The low histamine AIP diet will help reduce inflammation further.   Histamine is released as part of the immune response in celiac disease.  Foods also contain various amounts of histamine or provoke histamine release.  Lowering the amount of histamine from foods helps.  The body, with help from B vitamins, can clear histamine, but if more histamine is consumed than can be cleared, you can stay in an inflammatory state for a long time. Cutting out high histamine foods is beneficial.  Omit night shades which contain alkaloids that add to leaky gut syndrome found with celiac disease.  Night shades include tomatoes, peppers including bell peppers, potatoes and eggplants.  Processed foods like sausages and gluten-free processed products are high in histamines.  All Grains are removed from the diet because they are inflammatory and provoke histamine release. Blood tests for deficiencies in B vitamins are notoriously inaccurate.  You can have vitamin deficiency symptoms before blood levels show a deficiency.  Blood levels do not accurately measure the quantity of B vitamins stored inside the cells where they are utilized.  The brain will order stored vitamins to be released from organs into the blood stream to keep the brain and heart supplied while deficiency occurs inside organs, like the gallbladder.  Gall bladder dysfunction is caused by a deficiency in Thiamine Vitamin B 1 and other B vitamins.   The eight essential B vitamins are water soluble and easily lost with diarrhea and constipation, and the malabsorption and inflammation that occurs with celiac disease.  Because they are water soluble, the body can easily excrete any excess B vitamins in urine.  The best way to see if you are deficient is to take a B Complex and Thiamine in the form Benfotiamine and look for health improvements in the following weeks.  Most B Complex supplements contain Thiamine Mononitrate which is not bioavailable.  The body has a difficult time utilizing thiamine mononitrate because it doesn't break down easily.  Benfotiamine has been shown to promote intestinal healing.   Remember your intestines are in a damaged, permeable state.  Treat them tenderly, like you would a baby until they heal.  You wouldn't feed a baby spicy bell peppers and hard to digest corn and nuts.  Change your diet so your intestines can heal.   I use a combination of B12 Cobalamine, B 6 Pyridoxine, and B1 Benfotiamine for pain.  These three B vitamins have analgesic properties.  They relieve pain better than other otc pain relievers. 
    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.