Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Official


Poppi

Recommended Posts

Poppi Enthusiast

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

What the heck? I love coffee. Love is in fact not a strong enough word to describe how I feel about coffee. Sweet brown nectar of the gods.

But I get this weird mini-gluten reaction to it. I'm fine, I drink a cup of coffee and about half way through I feel super sleepy, my stomach just get unsettled and nauseous and my back pain starts to flare up. It only lasts a couple of hours and luckily it passes and I don't deal with 5-10 days of inflammatory symptoms like I do with gluten but it still makes me sad.

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

Sounds like the trial separation is going to end in a divorce. No more coffee for Sara! :(

kiwibird75 Newbie

Oh Poppi! I feel your pain :( I go from a normal tummy to massive D with coffee, especially if it has milk in it (I know, duh, lactose...) but the coffee had to go. My coffee guy is probably noticing the lack of funds!

Tea is better for me, but not nearly as satisfying at the moment, but hopefully with time... right???

Chin up chicky - There are worse things in the world.

xx

K

txplowgirl Enthusiast

Hi poppi, I have never been able to drink coffee because it also made me sleepy and sick to my stomach. I found that it has something called tannins in it as well as in cigarettes too. Anything with tannins in it does that to me.

adab8ca Enthusiast

crap crap crap

that is too bad...but at least you know (small teeny consolation)

Darn210 Enthusiast

Poppi, just wanted to let you know that you are not alone as I have seen this on the board before (I'm not actually a coffee drinker, I prefer tea). I have seen that some people have successfully reintroduced coffee after giving their guts a chance to heal. Also, some have successfully switched to decaf instead as caffiene was the problem. You might want to try a milder roast or even just go with 1/2 a cup . . . but you might want to wait until you've been gluten free a little longer. I don't want to get your hopes up, just wanted to list a couple of possibilites.

Lisa Mentor

\

I just went a full month with no coffee and then got my son to grab a cup from the shop across the street. Same reaction. :(

Oh well. Now I know, right?

What's the shop across the street? Does home brewed bother you also?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jungle Rookie

Some coffee shops put msg in their coffee.

ElseB Contributor

I've been gluten free for 3 years, very strict adherence to the diet, and now I'm suddenly having problems with coffee. It started last week. I get bad gas before I"m even halfway through the cup. I don't drink a lot of coffee, at most 4 cups a week, but I ENJOY those 4 cups!!! I like tea too, but I WANT MY COFFEE!!! I think I'll try a trial separation...maybe my gut is just cranky at the moment.

Poppi Enthusiast

What's the shop across the street? Does home brewed bother you also?

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

mushroom Proficient

I haven't had any caffeine since 1972 :o but I drink decaf capucchinos all the time :lol: For me, it's the caffeine, so I drink herbal teas also, no coke!!

kareng Grand Master

It's a Tim Horton's. I've also tried a local shop that roasts their own beans and a couple varieties of the Starbucks Via packets. Same reaction every time.

I haven't made any coffee at home since a month before I went gluten free because I was hooked on the Caramel Starbucks Via.

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

kareng Grand Master

Some coffee shops put msg in their coffee.

Who puts msg in coffee? What? Aghhhh!

But really, who does that?

Poppi Enthusiast

You have a Tim Hortons across the street? Does that greasy donut smell drive you nuts? Not in a " I want donut" way. We loved them when we have been in Canada & not gluten-free, but they smell greasy.

Maybe give it a couple of months and try some plain home made coffee?

Well it's not exactly across the street more like kitty corner from our back yard and there is an Earl's in between the Tim's and our house so we mostly smell their wood burning ovens which is quite nice.

  • 4 weeks later...
juj2003 Newbie

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

kareng Grand Master

Ohh- My first post here, and something I can actually help with (maybe).

If you have access to a Teavanna I would highly recommend their JavaMatte Tea. It is delicious and is reminiscent of coffee (also has the kick).

You may have the most significant & important post of the year! :D

Tea that tastes like coffee! :blink:

We will be expecting big things from you now! Welcome!

Adrienne2823 Newbie

After a full year I have just been able to tolerate one type of coffee: Folgers Simply Smooth. Every other type of coffee wrecks my gut so bad...

No Starbucks

No super strong coffee brewed at work either :P

But if you are willing, give the simply smooth a try.

kellynolan82 Explorer

In terms of gluten free, you can never go wrong with long-black! Then you'll know for sure whether it's the impact of gluten :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,220
    • Most Online (within 30 mins)
      7,748

    Dye42
    Newest Member
    Dye42
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.