Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You First Went Gluten Free, Did You Lose Weight?


Prezwilson15

Recommended Posts

Prezwilson15 Newbie

I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 57
  • Created
  • Last Reply
rachbomb Rookie

I lost weight after I switched to a gluten-free diet. My doctor was pretty upset with me but I wrote it off that I was now eating all whole foods and basically no carbs (except for occasional rice and corn chips). He did have me start tracking calories though and I figured out that while I was full I was not consuming as much as I should be but it has now stabilized. In all, I lost 15 lbs since starting the diet (5-10 was ok by me!) and I stopped dropping after 2-3 months.

sleer Contributor

Did you start losing weight immediately?

alex11602 Collaborator

It took me about 3 months to stop losing too and I lost about 40 lbs, my weight has pretty much stabilized in the last month. That may be because I mostly lived on pasta and crackers before because I thought bland food would be good for my belly :lol:

GlutenFreeManna Rising Star

I lost 20 lbs my first month. I had it to lose however, as gluten makes me gain weight instead of wasting away. My weightloss stopped when I added carbs back into my diet (I had cut out all grains and all sugar as part of my elimation diet).

txplowgirl Enthusiast

I have always been overweight and couldn't lose it no matter what I did. When I went gluten free it wasn't to lose weight but get rid of all the other problems I had. D, migraines, tingling, depression, stomach pain, anxiety, etc.

Losing weight was a shock. I went from 235 to 160 and it has stabilized. That's 75 pounds and I wasn't even trying. Took almost 2 years. But that's because I realized I was super sensitive. Can't really eat any of the gluten free processed foods. I have to stay with mainly whole foods. Plus finding out I have other food intolerances might have helped to.

Gfreeatx Apprentice

I lost about 10lbs in the first few months, but gained about half of it back once I started to figure out everything I could eat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



julandjo Explorer

Like others mentioned, I started out overweight. I couldn't lose weight no matter what I did. Once I went gluten free I still ate the same # of calories (I'd been tracking for a while and continued when I went gluten-free), but the weight started dropping off. Quickly at first, then slower. I'm 17 months in and have lost 55 pounds. I went from a size 16 to a size 6. I'm at a great weight now. My body was hanging on to every calorie I ate because the Celiac damage had left me malnourished. Now that I can absorb nutrients I'm so much healthier. Who would have ever guessed I was fat due to malnourishment?! :P

stellinpa Newbie

I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula

I lost weight as soon as I eliminated Gluten. I figured it was because I was eating more regularly. I lost 10lbs in the first month and have kept it off.

I did read somewhere that some people lose wt. and some gain wt. I'm glad I'm on the 'losing side'

Menic Apprentice

I've lost about 30 lbs. (which I had to lose) over the course of a year. I think this is mostly attributable in my case to no beer and no fast food anymore. Cooking non-processed foods and making my own healthy meals has mostly been the culprate of my loss.

jemms Apprentice

since being off dairy and gluten I have lost 40 lbs. I still want to (need to) lose about 50 lbs. right now my weight has bee at a standstill...I hope the weight loss will kick in again.

angel9165 Newbie

I thought I might but gee, I found enough really good gluten-free food that I haven't. B)

shadowicewolf Proficient

i lost 25ish before i started and am still loosing weight and not even trying :/

love2travel Mentor

When I first went gluten-free (prior to my gluten challenge) I gained weight as I was in panic mode and ate weird processed things I normally would not such as potato chips. Then I went back on gluten for my challenge and after my celiac diagnosis in February have lost a few pounds but need to lose more. I do not eat processed junk and must work hard to lose weight. I guess it does not help that I love to bake! In fact, I bake more now than I ever did before (and I have always loved baking). Must put a stop to this madness. :lol:

BaldurBen Newbie

About six months after I was diagnosed (Nov. 2006) I had lost fifteen pounds. Now that my diet is more varied, I've probably gained about five of those back and stabilized there.

Poppi Enthusiast

I lost 10 pounds in the first 2 weeks and then stabilized at 129. After years and years of my weight swinging wildly between 125 and 150 it hasn't budged in 3 months now.

deinanthe Newbie

Yes, I lost weight after being diagnosed last year. Anyway, I'm down about 20 and still losing gradually, which is great because I have it to spare and am very happy to lose a healthy pound or two a week. Back when I was still having gluten and unaware of the whole celiac thing, I think the biggest thing that brought on my weight gain was that I would get nauseous if I got hungry. The hungrier I was, the more nauseous I was, to the point of getting sick to my stomach. Needless to say, I didn't let myself get hungry if I could help it. And for some reason, that made me gain weight. ;)

Bubba's Mom Enthusiast

Losing weight without trying was the first symptom my PCP took as real. I had lost 20 lbs. in just a few months.

I was diagnosed on June 28th of this year and have been trying to eat things that are healthy. I'm still losing weight. I didn't know if was due to malabsorption..or lack of breads/cookies/ etc. in my diet? I mostly eat fruits and veggies, and meat, some rice.

T.H. Community Regular

I always think I lost more than I did (keep messing up my actual weight with how much I lost, LOL), but looking to make sure I'm not screwing up...

I lost 50 pounds in the first 6 months (I was about 50 pounds overweight, though). Over the next few months, it fluctuated between about 5 pounds, up or down, and then finally dropped another 10 pounds within 5 months.

Since then, we think we've figured out the pattern. If I get glutened frequently, my weight starts to climb, no matter what I eat or how many calories. If I don't eat gluten, my weight drops rapidly into 'woo hoo skinny!' and stabilizes there. But if I eat any of the foods we realized I am allergic to, then my weight keeps dropping (lots of D) and the weight doesn't stabilize.

I got too skinny, really, until we figured everything out. I've gained a little from my lowest weight, at this point. :-)

mamabear272 Explorer
Who would have ever guessed I was fat due to malnourishment?! :P

I feel the same way! I never would have guessed (nor would anyone else) that I was malnourished!

I re-started Weight Watchers in Jan and from then till my dx in June I lost 7 lbs. When I got dx, I dropped 6 lbs in 3 weeks. I think I've put some on in the last couple of weeks but that's cause I spent some time eating gluten-free junk! I'm starting back today using WW simply filling plan. It consists of "power foods" which are fruits, veggies, lean meats, fat free milk, etc.

Brooksbelle Newbie

3 weeks in and down 7 pounds without even trying. My appetite has stabilized; before going gluten-free I always felt this weird mix of bloating/nausea/hunger all the time. I still need to lose a few pounds too--so I'm happy about the weight loss. =)

CarolinaKip Community Regular

I had lost a lot of weight before going gluten-free. I didn't lose anymore once I went gluten-free. I started to gain 3 months gluten-free and now have gained 10 pounds. I needed to gain some of it back, but now trying to stable my weight. I don't eat a lot of gluten-free replacement foods or junk. I believe in treats every now and then :)

AmyE Newbie

Unfortunately I have lost about 5 lbs which is alot being as I am already about 10lbs underweight. I want to gain some weight. I feel I am wasting away because so many foods cause me pain. It's ironic because I am a recovering anorexic and when I was mentally sick, I didn't want to eat over fear of gaining-----now it's not my mental state, but my physical state. Ain't life one giant irony!!!

okieinalaska Apprentice

Didn't lose a pound! But I was a bit overweight before and still am although weight watchers is now helping with that.

Jungle Rookie

I gained 10 lbs in the first two months (and wasn't trying to gain or lose) Now after 4 months gluten-free we are back to normal again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    2. - Seabeemee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Labs ? Awaiting in person follow up with my GI

    3. - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      EMA Result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,164
    • Most Online (within 30 mins)
      7,748

    Kellyc79
    Newest Member
    Kellyc79
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Seabeemee! The fact that the genetic testing shows you do not have either of the two genes associated with the potential to develop celiac disease (HlA DQ2 and HLA DQ8) pretty much ensures that you do not have celiac disease and the biopsy of the small bowel showing "normal villous architecture" confirms this. But you could have NCGS (Non Celiac Gluten Sensitivity) which would not damage the villous architecture. You could also have SIBO (Small Intestine Bacterial Overgrowth) or H. Pylori infection. And with your resection of the small bowel, that could be causing it's own problems like you describe. When was that surgery done?
    • Seabeemee
      My Doctor messaged me that I have no sign of Celiac disease so until I meet with her next week I don’t know what the labs mean. I am being evaluated by my new GI for Celiac disease because of digestive issues (bloating, distention, fullness in mid section, diarrhea).  I also have been diagnosed with GERD and some associated issues hence the endoscopy. I also was diagnosed with NAFLD after an abdominal CT scan in December - which surprises me because I gave up alcohol 5 years ago, workout 5 days a week, cardio / weights and cook from scratch every night. Anecdotally,  I do feel better when I do not eat a lot of carbs and have been staying away from gluten 95% of the time until my follow up.  History: I had an emergency bowel obstruction operation in August 2021 for a double closed loop obstruction, open surgery removed 40 cm of my small intestine, my appendix, cecal valve and illeocectomy. Beside the fact that this put me in the situation of no longer being able to absorb Vitamin B12  from my diet and having to  inject Vit B 12 2x a month, I also became Iron deficient and am on EOD iron to keep my levels high enough to support my Vitamin B12 injections, as well as daily folic acid. I tested positive for pernicious anemia in 2022 but most recently that same test came back negative. Negative Intrinsic Factor. My results from the biopsies showed 2nd part of Duodenum, small bowel Mildly patch increased intraepithelial lymphocytes with intact villious architecture. Comment: Duodenal biopsies with normal villous architecture and increased intrepithelial lymphocytes (Marsh I lesion) are found in 1-3% of patients undergoing duodenal biopsy, and an association with celiac disease is well established however the specificity remains low. Similar histologic findings may be seen in H pylori gastritis, NSAID and other medication use including olmesartan, bacterial overgrowth, tropical sprue and certain autoimmune disorders. So my GI ordered Labs for Celiac confirmation: Sorry I couldn’t upload a photo or pdf so typed below: TEST NAME                               IN RANGE and/or RESULTS RESULTS:  IMMUNOGLOBULIN A :           110 GLIADIN (DEAMIDATED) AB (IGG, IGA)                            <1.0 GLIADIN (DEAMIDATED) AB (IGA)                                     <1.0 GLIADIN (DEAMIDATED) AB (IGG)                                    <1.0 TISSUE TRANSGLUTAMINASE ANTIBODY, IGG, IGA TISSUE TRANSGLUTAMINASE AB, IGG                                     <1.0 TISSUE TRANSGLUTAMINASE AB, IGA                                     <1.0 INTERPRETATION: <15.0 ANTIBODY NOT DETECTED  > OR = 15.0 ANTIBODY DETECTED RESULTS: HLA TYPING FOR CELIAC DISEASE INTERPRETATION (note The patient does not have the HLA-DQ associated with celiac disease variants) More than 97% of celiac patients carry either HLA-DQ2 (DQA1*05/DQB1*02) or HLA-DQ8 (DQA1*03/DQB1*0302) or both. Genetic counseling as needed. HLA DQ2 : NEGATIVE HLA D08: NEGATIVE HLA VARIANTS DETECTED: HLA DA1* : 01 HLA DA1* : 05 HLA DQB1*: 0301 HLA DQB1*: 0501 RESULTS REVIEWED BY: Benjamin A Hilton, Ph.D., FACMG I appreciate any input, thank you.         
    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.