Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Travel


cait

Recommended Posts

cait Apprentice

We just got back from two weeks at my mom's. As I feared, despite bringing our own cutting boards, pots & pans, colander, etc., I managed to get low level CC the entire time between my mom not really understanding (despite efforts to explain the need to use our cutting boards, etc), going to restaurants, other people eating gluten, etc. My reactions aren't horrible when it's an occasional incident (though certainly not at all pleasant), but after two weeks, my body is totally worn down. I'm exhausted, my joints hurt, and I'm still reacting to EVERYTHING, even when I'm being careful in our primarily gluten-free house. We're home for 1.5 weeks and then we're going away for another 2 weeks. The whole time we're away we'll be staying with other people. The majority of the time we'll be staying with family in a rented house, and of course I'm the only gluten-free person. Then we come home in time to jump full force into the school year. I had hoped that after a summer of being gluten-free I'd be starting the year in better shape, but now I'm worried I'll be a wreck by then. Is there ANYTHING I can do to limit CC on this next trip? I guess the big thing is that my partner or I need to be involved in making anything that I eat, but on this trip cooking dinner often happens at the same time we're putting our kids to bed, so on nights that aren't our assigned nights things will happen when we're not present and there's no way of knowing that other people have been safe. Add to that the fact that my MIL already spends much time complaining about my partner and I being vegetarian and reminding us of all the ways that we're difficult and horrible (like insisting that our children need to ride in carseats and be adequately sun-protected on the beach), and I'm really worried about how to make this a workable trip. Ugh. Am I just screwed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Wow. This trip doesn't sound like fun, and it sounds like opting out isn't an option.

If it's a road trip, I guess I'd spend the next week cooking and freezing individual portions of safe food to take in a cooler. Then purchase a teensy crock pot. (They're cheap, but I don't think I've seen one with a removable liner.) A blob of frozen cooked food cooked on low is ready about 8 hours later, and could be cooked in your bedroom, if necessary (no gluteny hands touching it).

Since it's a rental house, you won't have to worry about taking up too much freezer space!

I'd also take a pint of chocolate sauce. I'd label it "Gluten Free Cocoa Cane Sauce" or something equally unappealing so that nobody would give it a second look in the refrigerator. I found a simple recipe on Allrecipes.com. Mark Bittman's latest cookbook featured a recipe where you freeze bananas for 15 or more minutes, stick cut up sections on a skewer (before or after you freeze), then dunk them in chocolate sauce (and ground nuts if you like). This is my favorite dessert (and sometimes breakfast, with or without peanut butter) when everyone is having dessert. Frozen chocolate dipped cherries are great too! And a poached (or fresh sliced) pear with chocolate drizzled on it is outrageously good.

So sorry about your challenging MIL. Hope you have a good trip despite her. I have a snarly MIL too.

As for dining out, I haven't had a lot of luck. I generally tell my partner to have fun with his family ... this is their time and I'm quite happy staying home with a book. MIL makes snide remarks that bother me for a minute or two, but she can't hurt me as bad as gluten can. :P

Good luck, hope you feel better soon, and that the next trip goes better.

cap6 Enthusiast

cait ~ I have no words of wisdom for you but I can sympathize with you 100%. Every year we rv all summer and encounter much the same as you. The last 2 weeks we stayed with friends and it was either dinner at their place or out to eat at places I couldn't eat. I just went out to our rv and made my own meal, which I know isn't a luxury you have, or I scrubbed a section of their kitchen counter and made my own meager meal (that sounded pretty pitiful didn't it!lol ).

My partner's sister usually joins us once or twice during the summer for a week or more at a time and that is when it gets really hard for me and I usually have a pity party or two. We almost always eat somewhere I can't, or won't, they love breweries. I get so tired of always taking my own lunch and watching them eat. I honestly don't know what the answer to all of this is. I dislike the old "one day at a time" thing but i guess that is about all we can do.

come dance with me Enthusiast

My mum went gluten free when my child was diagnosed. Her house is fully gluten free now. When we stay with one particular friend I know she's a clean freak (think As Good As It Gets lol) so I'm happy to take our own and know there will be no risk of cross contamination. We haven't stayed anywhere else. We normally book into a motel when we travel other than to visit my mum or that one friend.

Reba32 Rookie

Designate a space in the kitchen and/or eating area as a strictly Gluten Free Zone. Heck, I'd even get some yellow caution tape and cordon it off for yourself! Family should not be so horrible to you and grumble that you're being difficult. It's your health, and if they properly understood the consequences of you being glutened, they should be nicer and more careful about it.

Show them a picture of some damaged intestines due to Celiac, maybe that'll get their attention :P I think I've still got mine around here somewhere ;)

GlutenFreeManna Rising Star

Unless the people you are staying with understand cc risks and are very careful to clean up after themselves you will have a hard time staying gluten-free. It takes cooperation from others to have a mixed household. I just had my inlaws come stay with us for 4 hellish days in which they probably cc'd me 3-4 different ways. Despite our requests that they not bring gluten into our house, they did it anyway. I'm paying the consequences now with bad glutening symptoms. Even people who are considerate and try to not make you sick though can make mistakes or forget. Since they don't live gluten-free on a daily basis it's easy for them to slip up.

I think the best solution is to cook/prepare as much of your food in advance (like another poster suggested) and have a separate gluten-free prep space. If you can keep most of your food and cookware in your room, away from the gluten in the kitchen it would help too. Perhaps request that no one use flour and they eat chips (corn and potato) instead of crackers for snacks. If your family will take your imput on food you may be able to suggest things that are "normal" and gluten-free so that most the meals would be safe if made with your cookware (and then of course you may have to oversee the prep for every meal to make sure no glutne sneaks in).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,246
    • Most Online (within 30 mins)
      7,748

    IRENEG6
    Newest Member
    IRENEG6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.