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Hi My Name Is Gina........


jerseygirl221

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jerseygirl221 Rookie

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.


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love2travel Mentor

and I have Celiac Disease! I was just diagnosed 2 weeks ago. I look forward to meeting many new people on here who can support me on my journey. I live in Burlington County NJ. I am 36 and I have 2 children-ages 9 & 11 who have not been tested yet.

Glad to have you join our elite club, Gina! Well, sort of. :huh: At first this celiac stuff can be overwhelming but eventually it becomes second nature. I was diagnosed in February and it took nearly two months to really get my mind wrapped around it. Already my numbers are negative (they were overwhelmingly positive) and I am on my way to healing! So, hang in there. It truly CAN be done! :)

Twinklestars Contributor

Hi Gina! Congratulations on your diagnosis. I'm new to the forum too. I'm not yet diagnosed, but am in the process. Regardless of my results, I'll be sticking around because I can't imagine living like this for any longer. I'm a Mum too, I have 4 children :) Looking forward to seeing you around!

Stephanie1221 Newbie

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

pricklypear1971 Community Regular

Nice to meet you both, I am new to the forum, diagnosed with Celiac since June 2011. I am a mother with three, two still at home ages 8 and 13...I have a concern right now, I have been gluten free since July however I continue to break out with rashes on my back, stomach, and leg, what else could it be? I am dairy free and sugar free nonetheless I do eat a variety of fruit daily.

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Stephanie1221 Newbie

Well, if you're celiac it's probably Dermatitis herpetiformis.

There's a whole section on this board about it. In short, the Iga antibodies get in your skin and the sores/rash are an external expression of your gluten intolerance. If you want to test the rash and see if it acts like DH, go on a low-iodine diet in addition to the gluten-free diet. You can find a lot of info about a low-iodine on the thyca website (for people going through thyroid irradiation - diet advice works for everyone).

Thank you, I will look into that....

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    • Scott Adams
      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
    • Tammy Pedler
      As soon as I see gluten free I read the labels. I always find stuff that I cannot have on the products them selfs. Like spices, when the labels says  everything listed and then after like say garlic salt then the next thing is spices. When it says that that can contain wheat and other things I can’t have.. 
    • Scott Adams
      While hypoglycemia isn't a direct, classic symptom of celiac disease, it's something that some individuals with well-managed celiac disease report, and there may be a few plausible explanations for why the two could be connected. The most common theory involves continued damage to the gut lining or nutrient deficiencies (like chromium or magnesium) that can impair the body's ability to regulate blood sugar effectively, even after gluten is removed. Another possibility is delayed stomach emptying (gastroparesis) or issues with the hormones that manage blood sugar release, like glucagon. Since your doctors are puzzled, it may be worth discussing these specific mechanisms with a gastroenterologist or endocrinologist. You are certainly not alone in experiencing this puzzling complication, and it highlights how celiac disease can have long-term metabolic effects beyond the digestive tract.
    • trents
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