Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was I Wrong?


Roda

Recommended Posts

Roda Rising Star

My parents are here for a visit. I really enjoy their company, but obviouslly I offended my father. I've decided since there are three of us in the house that are gluten free that no guests have free access to my kitchen. This is to avoid CC. Everything was fine until breakfast yesterday. My mom had fixed my dad breakfast with regular toast. They had separate butter, but she gave him the whole jar of strawberry jam. I didn't hear her tell him to scoop and dump so I scooped some in a container for him. He got mad and said he was capable of not contaminating it and accused me, through my mom, of treating him like a child. Ugg. Yes, he is capable, the problem is whether or not he remembers. He CC'd several of my things when we were there in June visiting. Luckily I realized it before I ate the stuff. So am I being ridiculous? I just want my home to be the one place I don't have to constantly stress and worry.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I do stuff like that if I'm around when they are fixing gluteny food. I just say, "this way, if I goof up, I'm making myself sick and it can't be your fault.".

Your mom probably just reminded him right before you came in!

sariesue Explorer

Do other members of your household eat gluten? If your house is gluten-free, then I wouldn't bring gluten into the house just for your parents. My house is almost entirely gluten-free, when my parents come visit they eat gluten-free in my house. If we go out to eat they can eat whatever they want. You could offer them the same choice, to either eat gluten-free in your home so there is no risk of CC OR to eat out if they will inisist that they can't go a few days without gluten.

captaincrab55 Collaborator

My mom had fixed my dad breakfast with regular toast. They had separate butter, but she gave him the whole jar of strawberry jam. I didn't hear her tell him to scoop and dump so I scooped some in a container for him.

Roda, IMHO... Mistake 1, Could of been just allowing evil bread in your house.... Mistake 2, Was the toast made in your toaster??? Next time just have some fresh baked gluten-free bread...

Way to often the simple things about gluten-free are so confusing and hard to understand by our loved ones... I'm fast learning to remove chance and confusing situations by controling the choices at my house...

btw, You did right scooping it to a smaller container...

bigbird16 Apprentice

You weren't wrong at all. Your house, your rules. I've told guests that they may not bring gluten, dairy, or soy into the house under any circumstances. If they go out to eat, they may not store leftovers in my fridge (eat it all or pitch it, basically). Still, one guest who was staying a week cced me with soy sauce, cooking chicken for me after cooking chicken for her kids and not cleaning the pan well between cookings. She had takeout packets with her, which I found out about later. It ruined Thanksgiving. Your health is non-negotiable, and you should feel safe in your own home.

tarnalberry Community Regular

I'm going to say that you guys just had a bad moment.

We have a mostly gluten free household, though my husband does have his own bread and toaster no matter how rarely used it is. When my IL's visit, they often do bring gluteny foods in. Yeah, it makes me paranoid. But my FIL had a heart attack a number of years ago, and they follow (loosely) the Ornish diet, which is heavy on whole grains and soluble fiber. They rely a fair amount on whole wheat products, particularly shredded wheat for a midnight bowl of cereal and whole wheat toast for sandwiches for lunches that they take with them during the days they go off to a dance convention.

Asking them to not bring gluten into the house would require a very large shift in their whole day's eating pattern and affect their ability to get the diet they try to maintain in a way that is at least mildly comfortable for them. Since my MIL is fairly good about contamination issues, however, I don't ask them to make that huge of a compromise. Shared meals are gluten free, of course, and outside of one pan kept just for them and their regular oatmeal, anything that is cooked in my cookware is gluten free. Condiments are scoop/dump or dish into a bowl. And they've gotten used to it.

But have I ever had the worried "you didn't double dip, did you?" panicked question come from my mouth? Oh yes. Even more so the week they were here right after our daughter was born. But - and I think this is where you and your dad need to talk - they forgave me any perceived offense and I apologies for any taken with the understanding that it's all born out from a little sense of paranoia on my part and a habit that can be really hard to break on their part. We just offer each other the grace and space to be faulty in this area (amongst so many others :) ).

Yes, it may have been a little offensive, but having been in your shoes, I understand it and might have done it myself. But I also would rather be safe in my house than avoid offending anyone. :P Your dad may not understand the emotions wrapped up in having ONE safe place, in all the world, where you don't have to be on constant alert. Talk to him about it.

sariesue Explorer

I'm going to say that you guys just had a bad moment.

We have a mostly gluten free household, though my husband does have his own bread and toaster no matter how rarely used it is. When my IL's visit, they often do bring gluteny foods in. Yeah, it makes me paranoid. But my FIL had a heart attack a number of years ago, and they follow (loosely) the Ornish diet, which is heavy on whole grains and soluble fiber. They rely a fair amount on whole wheat products, particularly shredded wheat for a midnight bowl of cereal and whole wheat toast for sandwiches for lunches that they take with them during the days they go off to a dance convention.

Asking them to not bring gluten into the house would require a very large shift in their whole day's eating pattern and affect their ability to get the diet they try to maintain in a way that is at least mildly comfortable for them. Since my MIL is fairly good about contamination issues, however, I don't ask them to make that huge of a compromise. Shared meals are gluten free, of course, and outside of one pan kept just for them and their regular oatmeal, anything that is cooked in my cookware is gluten free. Condiments are scoop/dump or dish into a bowl. And they've gotten used to it.

But have I ever had the worried "you didn't double dip, did you?" panicked question come from my mouth? Oh yes. Even more so the week they were here right after our daughter was born. But - and I think this is where you and your dad need to talk - they forgave me any perceived offense and I apologies for any taken with the understanding that it's all born out from a little sense of paranoia on my part and a habit that can be really hard to break on their part. We just offer each other the grace and space to be faulty in this area (amongst so many others :) ).

Yes, it may have been a little offensive, but having been in your shoes, I understand it and might have done it myself. But I also would rather be safe in my house than avoid offending anyone. :P Your dad may not understand the emotions wrapped up in having ONE safe place, in all the world, where you don't have to be on constant alert. Talk to him about it.

I think that your case is little different than most if your father is on the Ornish diet as part of his treatment for his heart problem. I know when my grandfather had heart failure he had a very strict no salt diet low fat diet that was crucial to keeping him alive and with it he lived 10 years longer than any dr expected. This special diet was also considered medically necessary, not just a choice. That case is very different than a parent who just don't want to go without gluten for a few days. This can be a bigger issue if the person has a 100% gluten-free household or is super sensitive. IMHO regardless of what restrictions you put on a guest, they should be informed prior to arrival so they can make alternate lodging plans if they don't feel they can comply with the restrictions they have the option of finding a hotel. Or make an agreement with you. Like with your parents, you could agree that they could have the shredded wheat in your house, but have certified gluten-free oatmeal and get their sandwiches at Subway or a local deli on the way to the competition instead of bringing bread into your house.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

When you were young & lived in your parents home, they set the ground- rules..It was their home... now you are an adult & you have your own castle so now you rule your domain.. So as a child you had to respect their house rules & now they need to understand you are an adult & they when at your home must respect your rules... It goes both ways...since all are adults now...

Plus your father should understand diets since he follows one himself. Would he have liked it if you fed him fatty , greasy foods & didn't respect his illness? He would have thought you didn't care about him & his welfare, for sure ---- so he needs to respect your issue as well...

I don't permit any smoking in my house& many find that offensive of me!!!! But I get deathly ill from smoke....

Time for Dad to grow up.....

srall Contributor

This is a toughie, and we have the same issue with visiting parents and in-laws here too. The house is mostly gluten free, although every once in awhile my husband will bake something for himself.

As far as visitors, we haven't been made sick yet so I guess we're being pretty careful. I am very close to declaring a gluten free house though. A couple of weeks ago my husband and daughter went on a camping trip and I sent her with a bunch of gluten free food. My husband decided to make a cake for himself and I as usual nagged him about being safe with the flour. Imagine my horror when I woke up Saturday morning delighted to have the house to myself for the weekend only to realize there was a coating of flour all over the fruit bowl in the kitchen. There was flour everywhere. So instead of lounging in front of the t.v. I spent the morning decontaminating the kitchen.

I think no matter how close people are to these issues (I mean...my husband has been witness to the havoc gluten plays on myself and my daughter, and yet he is so careless,) I just don't think you "get" it until you "live" it.

I'm sure your dad was momentarily offended and hopefully it's forgotten. I think if you've got 3 people gluten free, you just can't worry too much about offending people when all you are trying to do is be safe.

notme Experienced

if i could have one more visit with my mom, she could eat any damb thing her heart desired. i would keep my eyes open and probably throw alot of things out when she left, lol

MY DAD will be eating gluten free if he ever comes to visit me. i figure once in 15 years, i got nothing to worry about.....

when my husband's parents come to visit, i cook the meals but i let them have gluten if it goes with the meal: ie: chili (gluten-free) with saltines <poison - but i make a huuuuge show of removing some of the meal for myself and separating anything else i might eat farrr away from the gluten when serving.

tarnalberry Community Regular

I think that your case is little different than most if your father is on the Ornish diet as part of his treatment for his heart problem. I know when my grandfather had heart failure he had a very strict no salt diet low fat diet that was crucial to keeping him alive and with it he lived 10 years longer than any dr expected. This special diet was also considered medically necessary, not just a choice. That case is very different than a parent who just don't want to go without gluten for a few days. This can be a bigger issue if the person has a 100% gluten-free household or is super sensitive. IMHO regardless of what restrictions you put on a guest, they should be informed prior to arrival so they can make alternate lodging plans if they don't feel they can comply with the restrictions they have the option of finding a hotel. Or make an agreement with you. Like with your parents, you could agree that they could have the shredded wheat in your house, but have certified gluten-free oatmeal and get their sandwiches at Subway or a local deli on the way to the competition instead of bringing bread into your house.

You're right that it's a little different. If they were not in that situation, I may well ask that they do not bring in any gluteny foods. (I'm not sure, since I haven't had to try to make that decision.)

But Roda is in the position where she has allowed these foods in her house and simply asks that they take proper precautions. She can certainly change her mind on the rules (allowing it in the house) if she feels it's appropriate. (I am totally on board with the "your house, your rules" thing.)

So this isn't a broken rule thing, this is just a sensitivity to words and feelings sort of thing, really. (At least, based on how I read it.)

captaincrab55 Collaborator

if i could have one more visit with my mom, she could eat any damb thing her heart desired. i would keep my eyes open and probably throw alot of things out when she left, lol

If I could see my Mom one more time, I could tell her she has Celiac Disease... It would be a gluten-free meal for her....

anabananakins Explorer

He was probably feeling sensitive because of your mum saying the same thing moments before. Or he was being really conscious of making sure to do the right thing.. People don't like being nagged, but they don't realise how important this is to us and that we're going to nag to be sure. I do the same at my mum's place, especially with my sister. You did the right thing and I think you're being nice letting them have their gluten-y bread in your house. I won't let anyone bring gluten into my place.

Roda Rising Star

Yes, I do believe it was taken wrong because of my mom just before, telling him to be careful. My husband does still eat gluten, and is very careful. There is a dedicated area just for him and therefore my parents. Luckily he has now gotten over it and we have been having a good time. I worry because there are threee of us in the house and I want my boys to be able to navigate the house freely without worries.(leave the worries to mom). The only time he has eaten gluten in my house was the day I posted this and this morning. I didn't say a word this morning and everything went fine. I have fed him gluten free, and he made the comment to my mom that everything was delishious. I even made him "reubens" on my bread. I was hoping to do a little experiment on him while he was here without knowing by eating gluten free while he was here for the duration. It didn't pan out since he has been drinking beer. Oh well :lol: We have been having a great visit and that's what counts! ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,216
    • Most Online (within 30 mins)
      7,748

    billiam3some
    Newest Member
    billiam3some
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed. To answer your core question: yes, living in a environment with significant, constant gluten exposure, especially from airborne flour in a home where milling and baking occurred, would have created a perpetual state of autoimmune activation for you, even beyond the direct ingestion. This chronic exposure is strongly linked to the development and exacerbation of the very autoimmune disorders you describe—Migraines, Meniere's, Hashimoto's, and more. Your body was under constant attack, and the lack of care and understanding from your family compound that trauma significantly. It is not your fault. Many in the community share similar stories of a cascade of illnesses finally explained by a celiac diagnosis, often coming too late to prevent irreversible damage. While I cannot speak to the legal aspects of your inheritance situation, your experience with the medical neglect and the lasting impact of your childhood environment is deeply valid and shared by others who understand this unique type of suffering. Thank you for having the courage to share your truth. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out" to "empowered choice." Instead of "you can't have that," use language like "we choose these safe foods so your tummy feels happy and strong." Involve her directly in her own care; let her be the "Gluten-Free Detective" at the grocery store, picking out exciting new treats, or make her the head chef in baking a special dessert that everyone gets to enjoy. When eating out, empower her by having her call the restaurant ahead to ask about safe options (with your help), making her feel in control rather than a passive victim. Acknowledge her feelings—"It's okay to feel sad that you can't have the roll, I sometimes feel that way too"—and then immediately pivot to a positive action, like unwrapping the special brownie you brought just for her. This combination of validation, involvement, and reframing turns a limitation into a shared family challenge where she feels supported, capable, and loved.
    • Scott Adams
      I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free.
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      It's strange to see two very different results in what appears to be a single blood test--one is positive and one is negative for a celiac disease test. Are these results separated by time? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...