Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Immediate Reaction?


samuella

Recommended Posts

samuella Apprentice

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beebs Enthusiast

I have read that it is not possible for you to feel it immediately because it takes a little for the immune response, the paed GI also said the same thing the other day, but I also know from this site that there are lots that don't match up with what the medical community say and believe. So maybe they are wrong on this too? I personally have reactions start around 2-3 hours after eating.

T.H. Community Regular

It's possible to have a fairly quick reaction, yeah. However, if this is a new reaction for you, I would write down what the ingredients you were eating and pay attention for the future, just in case it's a new allergy. A couple of my allergies (which I didn't know about until after going gluten-free) make me react similar to what you describe. These also tend to cause internal inflammation and gastro disturbances in many people.

For myself, I reacting to gluten within 20 minutes, and if it's bad, it happens in 1-2 minutes after eating. However, I believe that my own early reaction is gluten ataxia. I know of a little girl who reacts within minutes as well, although here reactions are gastro related. It just all comes back up or goes through her as soon as it hits her tummy.

kwylee Apprentice

I react with the wierd lightheaded feeling within 5 to 10 minutes of ingesting gluten, dairy or soy. It subsides within 30 minutes to an hour. All neuro, I've not had much intestinal disturbance, perhaps because I always test new foods by eating a few bites and waiting. Or perhaps because gluten doesn't affect me that way.

bigbird16 Apprentice

I get a pretty quick reaction -- under 10 minutes, starting with a hazy feeling and ataxia and moving on to other fun stuff.

samuella Apprentice

Thanks everyone. I feel fine today and I looked up the brand of the cookies and they seem to be well regarded, so I think it was probably just a fluke. It sounds like quick reactions can happen but not *so* quick I'd feel it while eating it, and the dodgy guts a few hours later was probably just a coincidence. It's so easy to see celiac/gluten in everything that happens! :)

lovesaceliac Newbie

My husband can usually tell within minutes of eating the offending food (always cross contamination only, he never intentionally eats gluten and we are very careful.) His first symptom is "brain fog" which goes away after a while. His worst symptoms appear the next day: severe joint pain, extreme fatigue (usally spends an entire day asleep in bed), followed by crushing depression/anger. Not real fun to live through or live with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lemontree1 Rookie

Is it possible to have an immediate reaction to gluten as a celiac, not an allergy? As in, you are eating something and feeling it right then?

Tonight I was at a friend's house and she had bought gluten-free cookies for me - very sweet of her. The package said gluten-free, the ingredients looked fine, but I didn't recognise the brand. It was an unopened box. But as I was eating it I started feeling really, really weird - a bit faint, my face felt heavy, my head felt foggy. It went away after a few minutes. I'm now (about four hours later) having some digestive disturbances, but that could be a coincidence. I've never been glutened so I don't know how I react.

Could I have been glutened? Or was it just a weird fluke?

Thanks!

There has been a time or two that I felt exactly like this while eating something.

Korwyn Explorer

I have reactions while I'm in the middle of eating something. The first time this happened I was about 1/3 of the way through a bowl of chili, and I noticed both my ankles and knees were aching and hurting. I didn't make the connection at that time, so I finished the bowl. By the time we were done with lunch I felt like I had the flu in all my joints and I could barely think my brain was so fogged.

Leper Messiah Apprentice

Initial reaction with brain fog, feeling spacey etc. This lasts max 24 hours then brief respite for a day or so before the fatigue sets in and doesn't leave me for 2 weeks, almost exactly to the day.

aeraen Apprentice

Within the hour for me, sometimes closer to 15 minutes. Mad dash to the bathroom. :o

My niece was diagnosed as an infant, and she throws up within 5 minutes. My SIL considered it an easy way to train babysitters who thought "One little cracker won't hurt."

TB4me2000 Newbie

If it's gluten, I know in about 20 minutes. Something that just doesn't sit well in my sensitive, healing stomach/intestines usually takes a few hours for me to realize something's not quite right.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.